Lupus diagnosis need help

Posted by dorrielee @dorrielee, Jun 11, 2020

I was recently diagnosed with Lupus and I'm in Mason City IA. There is only 1 rheumatologist here. I was wondering if mayo is a better fit for me. It takes about 4-6 months to get into see him. I've been getting flare ups and to be seen by someone I have to go to ER.

Interested in more discussions like this? Go to the Autoimmune Diseases group.

@gingerw

@dorrielee Welcome to Mayo Connect. Your town is less than 100 miles from Mayo Clinic [Rochester, MN] campus. My vote would be to go to Mayo! Knowing you have limits to getting in to see your specialist, I think you would find Mayo Clinic much more responsive.
507-512-3059 is the phone number.
I hope you call and arrange an appointment. Will you come back and let me know how you are doing?
Ginger

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Things have gotten so much worse. I need to make a appointment but not sure how to go about it. Do I need a referral

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@dorrielee

Things have gotten so much worse. I need to make a appointment but not sure how to go about it. Do I need a referral

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@dorrielee – If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63. You don't need a referral but it may be helpful if your doctor will do a referral for you.

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It stinks. NAFL Disease. Stage 3 kidney disease. No energy. Breakouts. Yuck

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@vikingwoman

It stinks. NAFL Disease. Stage 3 kidney disease. No energy. Breakouts. Yuck

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@vikingwoman Welcome to Mayo Clinic Connect. You have come to the right place, to get support and information!
We moved your question to this related discussion so you can connect with others like me
– Lupus diagnosis need help https://connect.mayoclinic.org/discussion/lupus-diagnosis-need-help/

I was diagnosed with lupus in 1988. It took quite a bit of time to go through all the testing back then, as they eliminated one thing after another. For years the high protein I had was attributed to the lupus, but it turned out to be a rare kidney disease, instead.

The fatigue and flares can really be tiring. What medications are you on at this time? How do you plan your day? I am here if there are any questions I can answer for you.
Ginger

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