I got a port for my intravenously performed treatment procedures going forward due to historically being a hard stick ( quite often several sticks for blood test etc ) seems to be the best decision for me so far!I would definitely recommend as of now ! Best of luck and prayers for you !
Full listed treatment combo is carbplatin,penfexy,Keytruda
Had first treatment yesterday through my portal no reactions at all yet. I’m prepared for side effects and I know it’s different for everyone !thanks so much for your very kind support !
Full listed treatment combo is carbplatin,penfexy,Keytruda
Had first treatment yesterday through my portal no reactions at all yet. I’m prepared for side effects and I know it’s different for everyone !thanks so much for your very kind support !
Hello- I wish you the best during your chemo. And you are correct that everyone is different. But so are other medications. Generally speaking, you will most likely be tired, and you might lose your appetite. Your tastes in food might change..mine did. I wanted spicy food so I could taste it. One of my medications had a very strong metallic taste, and I couldn't taste anything, so the spicier the better for me!
Some, but not all chemo's can be a culprit in hair loss.
Have you been told what your chemo will be?
I suggest that you have a caretaker if you don't already. Make things as easy as possible for yourself, at least for the first session or until you know how it affects you.
As each dose is given to you the effects might seem more noticeable, so be prepared for that.
Even if you have your port, you might be a bit tender for the first few times that it is used. The nurse will give you suggestions on how to care for it.
I suggest that you bring snacks and a book to read. This is to help you from being bored. If you feel ill ask the nurse immediately for help with it. Don't brave it out. And nap if you can.
Do you have any specific questions? Have you done any preparations for this at all other than your port?
Merry
It's my belief that cancer patients need to be babied, catered to, and adored.
Full listed treatment combo is carbplatin,penfexy,Keytruda
Had first treatment yesterday through my portal no reactions at all yet. I’m prepared for side effects and I know it’s different for everyone !thanks so much for your very kind support !
Hi @jblbrad, I am a stage IV (ALK mutation) patient. I’ve been fortunate to have a targeted therapy drug that’s kept me going for the past 3 years. Good luck to you this week! It sounds like you are armed with knowledge and help, both very important.
Yes, I’m beginning treatments chemo/katruda/ etc tomorrow . I had a port installed Friday so I’m ready to start. My bio marker test came back with KRAS g12C . 1st round treatment will be for I think 3 treatments every 3 weeks. I just wanted to ask what to expect going forward. I know that it is very different for each person. I’m 68 years old and a former smoker ( stopped in 2013. Thanks for any responses !
Hi @jblbrad, I am a stage IV (ALK mutation) patient. I’ve been fortunate to have a targeted therapy drug that’s kept me going for the past 3 years. Good luck to you this week! It sounds like you are armed with knowledge and help, both very important.
@sstiffel64, if I understand correctly, genetic testing showed that your lung tumor is a genetic mutation, namely multiple endocrine neoplasia type 1 (MEN1). As you likely were told MEN1 is a hereditary condition associated with tumors of the endocrine (hormone producing) glands.
You may also wish to join the discussions in the Neuroendocrine Tumors (NETs) support group, like this one:
- Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had? https://connect.mayoclinic.org/discussion/men1/
While she doesn't have MEN1, @lls8000 also has a genetic lung cancer type.
@sstiffel64, how do the results of the genetic testing affect your treatment plan? What are next steps for you?
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I got a port for my intravenously performed treatment procedures going forward due to historically being a hard stick ( quite often several sticks for blood test etc ) seems to be the best decision for me so far!I would definitely recommend as of now ! Best of luck and prayers for you !
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1 ReactionDo they recommend portal ? They are doing mine intravenously
Any plus or minus either way?
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1 ReactionWonderful news. All the "platins" can be rough on the stomach; keep an eye out!
Let me know if we can be of more help and I hope that you can keep us updated on his progress!
Merry
Full listed treatment combo is carbplatin,penfexy,Keytruda
Had first treatment yesterday through my portal no reactions at all yet. I’m prepared for side effects and I know it’s different for everyone !thanks so much for your very kind support !
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3 ReactionsThanks so much ! Continued Good luck to you as well ! I’m finding great strength in prayer and scripture ! Thanks again !
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3 ReactionsHi @jblbrad, I am a stage IV (ALK mutation) patient. I’ve been fortunate to have a targeted therapy drug that’s kept me going for the past 3 years. Good luck to you this week! It sounds like you are armed with knowledge and help, both very important.
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2 Reactions@sstiffel64, if I understand correctly, genetic testing showed that your lung tumor is a genetic mutation, namely multiple endocrine neoplasia type 1 (MEN1). As you likely were told MEN1 is a hereditary condition associated with tumors of the endocrine (hormone producing) glands.
You may also wish to join the discussions in the Neuroendocrine Tumors (NETs) support group, like this one:
- Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?
https://connect.mayoclinic.org/discussion/men1/
While she doesn't have MEN1, @lls8000 also has a genetic lung cancer type.
@sstiffel64, how do the results of the genetic testing affect your treatment plan? What are next steps for you?
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2 ReactionsGenetics came back from lung tumor. Men1
Has anyone else had this and any drugs that target it?
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1 ReactionAm thinking of you. Deep breaths!
Merry
Thank you so much !
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