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Anyone out there living with stage 4 lung cancer?

Lung Cancer | Last Active: Sep 24, 2023 | Replies (143)
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@christine05

My journey start with SCC Oesophageal Cancer November 2022. Radiation and chemo January and February. But sadly today I’ve been informed I know have a couple of small tumours in each of my lungs. I feel broken.
Is it normal not to have a biopsy to confirm if the tumour is SCC as they’ve just assumed it’s linked to my oesophageal cancer which is now under control.
I start fortnightly chemo and immune therapy when I get back from uk November.
I was on a blind immune therapy trial and they have taken me off this now and say they are hoping I was on the placebo as otherwise it means my tumours probably won’t react to the immune therapy which could mean I only have 9 months instead of a couple of years.
Looking to hear others in a similar situation or any advice 🤍🤍🤍

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Replies to "My journey start with SCC Oesophageal Cancer November 2022. Radiation and chemo January and February. But..."
Matthew K | @flusshund | Sep 20, 2023

Christine,

I'm a doctor, but not the right type, so I don't know what is normal in Lung Oncology. I know it's not unusual for lung cancer to metastasize to the esophagus. I can imagine the reverse could also be true.

Sorry to hear about your developments. Since you're asking for free advice, ignore the timetable. I agree with Olivia Newton-John that living like you have an expiration date is no way to live. Try to forget those numbers as soon as you hear them and make every day count. Your mental health will be a lot better. I've told my Oncologist I don't want to hear a likely life expiration, and he no longer gives me an estimate.

I keep telling my other doctors that my metastatic lung cancer has not changed my plan to live forever -- or die trying. My kidney specialist lights up every time I say that.

Lastly, you, we, are not broken. We are wounded warriors. Old warriors in most cases, but warriors nonetheless. I wish you all the best.

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