Anyone out there living with stage 4 lung cancer?

Posted by nursed2075 @nursed2075, Mar 10, 2020

Is anyone living with stg4 lung cancer? How are they doing?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Profile picture for dianemb @dianemb

I was diagnosed September 2022 with stage 4 nsc lung cancer. I went through standard chemotherapy, immunotherapy and am currently in a trial of targeted therapy since August 2023. I feel well, just tired in the afternoons. 2024 was a really good year for me. Unfortunately now I have some clots in my lungs. The remedy is twice a day enoxaparin shots for 30 days. I think it’s a form of heparin. Once over the shock of that news I’m grateful they were found early on the c t scan. I keep wondering why this lung cancer occurred. Keep up the hope. Hugs

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@dianemb, I'm glad that 2024 was good to you. When we can get through years with minimal issues, it's a good year!
I'm glad that the CT scan showed the blood clots, and that they have an additional medication to try to treat them. Do your doctors think the clots could be related to your targeted therapy? Some of the targeted therapies have that as a side effect. I've been on mine for 4 1/2 years now.

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As my Tagrisso didnt work for me (so disappointing I have now started on a chemo regiment of Pemtrexed and Carboplantin. Had my first infusion 2 weeks ago.
So far no side effects other than forcing myself to eat as i really dont have an appetite. Lots of smoothies, which seem to work well.
Has anyone else been on this combo of Chemo Drugs?
Was wondering if I was going to get away with no side effects with next round of infusions?

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Profile picture for lindasimmonsihatecan @lindasimmonsihatecan

My husband was diagnosed in October 2024 with lung cancer also spread to his liver ….his appetite is in the tank presently….any suggestions

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My husband was able to sip protein drinks. He prefers Pure Protein vanilla.

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Profile picture for lindasimmonsihatecan @lindasimmonsihatecan

My husband is stage 4 cancer with metastasis to the liver . He just will not eat ….any suggestions

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Feeding tube .

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Profile picture for lindasimmonsihatecan @lindasimmonsihatecan

My husband was diagnosed in October 2024 with lung cancer also spread to his liver ….his appetite is in the tank presently….any suggestions

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Hi @lindasimmonsihatecan. Dealing with this diagnosis can be so difficult. Is he nauseated or just has no interest in eating? There are medications for each issue. Have you consulted with his oncologist or nurse? Many people recommend protein shakes in order to get high levels of nutrients. When I was first diagnosed (stage IV, mets to the liver too. 4.5 years ago), I would eat a bite or two, and then I just couldn't bring myself to eat any more. I only wanted vanilla ice cream shakes. What type of treatment is he currently having?

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My husband was diagnosed in October 2024 with lung cancer also spread to his liver ….his appetite is in the tank presently….any suggestions

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Profile picture for Merry, Alumni Mentor @merpreb

@nursed2075- Welcome to Mayo Connect. Yes, we have a lung cancer group. I am the mentor for lung cancer and health. I do have stage 4 lung cancer. Many people in the lung cancer group do. I'm horrible on my cell phone otherwise I'd put the link here. You can access it the same way you found this group.
Why are you interested in stage 4 lung cancer patients? Have you been diagnosed with it?

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My husband is stage 4 cancer with metastasis to the liver . He just will not eat ….any suggestions

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I was diagnosed September 2022 with stage 4 nsc lung cancer. I went through standard chemotherapy, immunotherapy and am currently in a trial of targeted therapy since August 2023. I feel well, just tired in the afternoons. 2024 was a really good year for me. Unfortunately now I have some clots in my lungs. The remedy is twice a day enoxaparin shots for 30 days. I think it’s a form of heparin. Once over the shock of that news I’m grateful they were found early on the c t scan. I keep wondering why this lung cancer occurred. Keep up the hope. Hugs

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Profile picture for Lisa, Volunteer Mentor @lls8000

Welcome to Mayo Connect @lezelle. There are many people here living full and longer lives with stage IV lung cancer. I'm stage IV with an ALK mutation, diagnosed over 4 years ago. I'm on a targeted therapy to keep the cancer at bay.
When were you diagnosed? What treatments have you had?

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I was diagnosed in November and have had 2 rounds (3 a week) so far. Another 2 rounds (spaced out every 3 weeks), coming in 2 weeks. It’s small cell carcenoma stage 4.

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So glad to hear your on the mend and enjoying life.
Cheers

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