Anyone out there living with stage 4 lung cancer?

Posted by nursed2075 @nursed2075, Mar 10, 2020

Is anyone living with stg4 lung cancer? How are they doing?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Welcome! I’m living with stage 4 lung cancer which nodules had spread to liver and stomach. Did chemo treatments (Carbopltin, Pemetrexed , pembrolieumab) for 7 or 8 months. Tough road so went on Keytruda and have stayed the same since except do not get sick. Have blow out for a day and half and than feel good till next treatment. (Every 21 days). So far so good.

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Hi @nursed2075, I'd like to add my welcome. You'll notice that I modified the title of your discussion and moved it to the Lung Cancer group here: https://connect.mayoclinic.org/group/lung-cancer/

You'll find many relevant and helpful discussions in the group. And supportive, information members like @merpreb, @schmeeckle64 @burrkay @donnalb @richcolleen @janlanderz @nicee @jiatennis @edb.

Nursed, I assume this a new diagnosis. I can imagine you're scared, but love that you're approaching this with a healthy dose of optimism. What treatment plan is being recommended for you?

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@merpreb

@nursed2075- having cancer sucks and so does chemo. I drank tons of water to help get the chemicals out of my system. One of the chemicals that I had was cisplatin and that absolutely killed my appetite. I was also wiped out.
I forced myself to eat, small helpings of at least some protein. I also could handle pastries and the like.
Believe it or not exercising will help with energy.
What type of lung cancer do you have? Did you have any surgery?
Do you have family at home to help you?

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Adenocarcinoma with met. Its in my left lungs. Did not spread anywhere. Stg 4. I hope that I have the right treatment plan. I am scared but optimistic.

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@nursed2075

Yes i have been diagnosed. I have had 2 rounds of chemo, and I'm wiped out. No appetite for food. Any suggestions?

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@nursed2075- having cancer sucks and so does chemo. I drank tons of water to help get the chemicals out of my system. One of the chemicals that I had was cisplatin and that absolutely killed my appetite. I was also wiped out.
I forced myself to eat, small helpings of at least some protein. I also could handle pastries and the like.
Believe it or not exercising will help with energy.
What type of lung cancer do you have? Did you have any surgery?
Do you have family at home to help you?

REPLY

Yes i have been diagnosed. I have had 2 rounds of chemo, and I'm wiped out. No appetite for food. Any suggestions?

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@nursed2075- Welcome to Mayo Connect. Yes, we have a lung cancer group. I am the mentor for lung cancer and health. I do have stage 4 lung cancer. Many people in the lung cancer group do. I'm horrible on my cell phone otherwise I'd put the link here. You can access it the same way you found this group.
Why are you interested in stage 4 lung cancer patients? Have you been diagnosed with it?

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