Low TSH readings?

Posted by willow37 @willow37, Aug 24 3:15pm

I’m a little concerned with my TSH readings lately. My previous TSH reading was .040 which I did not even know could go that low. So my doctor decreased my dosage by 25MG. Now my TSH reading is .103 and that’s not even 2 months later so it’s going up which is great but now my doctor says he wants to decrease it even more by 50MG now instead of just another 25MG.

I am concerned by this because my body does horribly to large increases or decreases of any kind. Last time they did a 50MG decrease on my thyroid it shot up to over 2.5 and they had to increase my medicine dose back up. What is everyone’s opinion on this?

I asked my doctor if I could just try the decrease of 25MG like he did last time but he told me if something happened to my heart he did not want to get blamed for that?

Is my level that low to where I need to worry badly about my levels increasing slowly? Should I get a second opinion about decreasing it just by 25MG for now?

Also my vitals are all perfect right now and I remember before when I was on too much thyroid medication they were all sky high including my pulse. So I’m even more confused at this.

I feel great but I am loosing a lot of weight but have a feeling this is due to them having me on such a high dosage that was incorrect to begin with for many years and it made me gain quite a significant amount of weight so now that my thyroid dose is better its trying to make up for what was done to me from over medication.

Liked by willow37

I have had various experiences my adult life and never learned what felt best for me, except I felt better on the higher dose a couple of years ago and now my endocrinologist said my numbers were perfect and paid no attention to my lack of energy because of mild diabetes, and those numbers are acceptable.
My primary doctor gives me the lower dose and checks me once a year, so I guess I am stuck unless I decide to look for another opinion. So I can't help you because I really know nothing about this thyroid except that mine was removed and I live on this pill dose they decided on. I had the energy to can tomatoes today, so I get by on the work I wish to do and rest more than I would like. Sorry I can't give more information or advice. Dorisena

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Hi @willow37, welcome to Mayo Clinic Connect. As well as @dorisena, I'd like to bring @dawn_giacabazi @Erinmfs @contentandwell @eileena @mri8191 @jimana and @michellecrcrn into this discussion. You may also be interested in this discussion:
– Low TSH – Bumped from doctor to doctor https://connect.mayoclinic.org/discussion/low-tsh-bumped-from-doctor-to-doctor/

Willow, what thyroid condition do you have? What medication are you taking?

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@colleenyoung

Hi @willow37, welcome to Mayo Clinic Connect. As well as @dorisena, I'd like to bring @dawn_giacabazi @Erinmfs @contentandwell @eileena @mri8191 @jimana and @michellecrcrn into this discussion. You may also be interested in this discussion:
– Low TSH – Bumped from doctor to doctor https://connect.mayoclinic.org/discussion/low-tsh-bumped-from-doctor-to-doctor/

Willow, what thyroid condition do you have? What medication are you taking?

Jump to this post

I’m taking 2 different doses of synthroid my doctor has me on right now, and it’s really complicated.

He has me on 137 mg, 7 days a week, with 25 mg combined with the 137, 5 days a week.

Now he’s also wanting to drop that 25 mg another 2 days a week, so I would only be taking the 25 mg, 3 times a week, instead of 5 like I am currently taking.

I am worried about dropping the other two 25s which would equal a 50 mg lower dosage per week, because last time he did this my tsh levels went through the roof and were too high and he had to add more dosage.

I have talked to other doctors today and they say my reading of .103 is very low and .040 was extremely low and I just don’t know whether a sudden 50 mg drop like that would be wise, especially since he just cut out two of my 25s from taking them everyday with my 137s, not even 2 months ago.

It’s like my new dosage IS making my numbers go up but it just got changed recently and needs some time and it seems my doctor may be wanting rapid results, and while I feel comfortable possibly dropping another 25 mg pill for the 4th day I take the 25s, I do not feel that comfortable dropping a second one taking that mg drop to 50 mg.

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I have had Graves disease for over 45 years and have recently been able to get my thyroid under control after a 2 year attack on my body of another unknown autoimmune disease that sent my TSH reading at its height of 21. I had ablation long ago at 18
My opinion is this – if you are not going to an endocrinologist you should. It is too complicated to leave thyroid care to someone who is not. I have heard through the years over and over "your numbers are within the range". But I did not feel well. I am very proactive with my health and (sorry doctors but I do) complain and question when I do not feel well. My long time endocrinologist said – "I strive to have my patients numbers in the range but then will "tweak" the meds based on their verbal input of HOW THEY FEEL. No two people are the same." This doctor has retired and my current endocrinologist changes my meds in very small increments. Waiting 3 months in between each change before taking blood tests again. I complained about that but it has finally worked by his addition of liothyroxine to my levothyroxine. I didn't have energy in the late afternoon where I could almost lay down. It was an overall fatigue. (But my numbers were fine) He finally added the liothyroxine and most days I still have energy at 8 pm.
I hope this helps because it is a very complicated and individual road we all travel with thyroid problems.

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Living a long life with thyroid issues tells me that many doctors do not know enough about adjustments for improvement because historically people are living longer and they do not have a history of enough data to help the elderly. My surgeon, said to " try it and see what happens, and if it breaks, he can fix it."
I wish my thyroid issues would have been seriously addressed when I was younger. The best I can do is to eat right, exercise, and push myself to achieve a few projects that I can manage on good days. If I have encouragement from a family member, I can have a better day, so I put effort in my relationships which support me and I avoid relationships that criticize me. I don't need to take the recommendations of well meaning people who don't really know what is best for me. When I was in college classes in my late forties, I asked my son what my problem was with my teachers, and he said they didn't know what to do with me. That's my problem with doctors today. At my age i pretty much forge my own path and my granddaughters cheer me on. Dorisena

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