Anyone with aggressive prostate cancer (Gleason 9) and low PSA?

Hi Everyone,

I’ve recently completed treatment for prostate cancer (Gleason score 9). Thankfully, the tumors had not spread beyond the prostate.

My treatment included:
- 42 sessions of Halcyon radiotherapy
- 2 years of Eligard injections

One challenge I faced was a delay of 11 months between diagnosis and the start of treatment. This was mainly because my PSA level was only 1.9, so my case was initially considered non‑urgent despite the aggressive cancer.

I finished the radiotherapy 2 years ago and the Eiligard injections 2 weeks ago. However, for the past6 months or so I have been dealing with a persistent burning sensation when I need to urinate. My urologist believes this is a side effect of the radiotherapy.

I’d really appreciate hearing from others who may have had:
- Aggressive prostate cancer with a low PSA level
- Experience with how monitoring is done in such cases, especially how the nadir is assessed

Thank you in advance for sharing your experiences and insights.