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Low platelets interfere with cancer treatment

Posted by arthur333 @arthur333, Jun 22, 2023

I have myeloma,treated with daratumumab,carfisomib,and pomalyst,.Recently blood platelets dropped even stopped these cancer treatments.I have taken Revlade(eltrombopaq) for two years already and still taking. I felt Revlade had no effect on my platelets. All cancer treatments been stopped. Cancer deteriorate.Felt helpless and don’t know what to do.

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Mentor
Lori, Volunteer Mentor | @loribmt | Jul 14, 2023
In reply to @arthur333 "Dear Lori Monday platelets count only 15 Have blood transfusion,platelet transfusion done Disappointed Arthur 333" + (show)
@arthur333

Dear Lori

Monday platelets count only 15
Have blood transfusion,platelet transfusion done

Disappointed
Arthur 333

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Hi @arthur333, it’s been quite a while since we’ve chatted. Just wondering how you’re doing. Has there been any positive changes with your bloodwork? Did you have the bone marrow biopsy yet?

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crhilston | @crhilston | Jul 14, 2023
In reply to @loribmt "Good morning @crhilston, I’m so happy to hear from you today. You’ve been on my mind..." + (show)
@loribmt

Good morning @crhilston, I’m so happy to hear from you today. You’ve been on my mind frequently lately. I’m sorry to say it isn’t surprising to see these new blood results being progressively lower and blasts increasing. It’s the nature of your blood cancer in later stages. And I don’t know how else to say this except for me to follow your lead with your reference of “Let go, let God’. If you’re a religious person, that phrase has guided your life in some manner from the beginning and it will help continue to be your guidance in your final days.
From experience, at this late stage in the AML journey, it just feels like our light grows dimmer as this disease progresses. It’s fatiguing and sleep seems to take over as energy for anything else takes a back seat.

No one can predict our last breath so, live each day to the best of your ability. Write down thoughts of anything you wish to share. I wrote notes to my husband and daughter…bits of wisdom I didn’t want to be lost. But never give up hope because miracles happen every day. Sending you a huge hug!

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Thank you, again, for your comments, thoughts, and support. Yes, I am a religious person; my faith has been my bed-rock my entire life. And, one of my greatest failures in 92+ years of blessed life, is that I could not impart my faith to my children. I'll let our Mayo community know as matters progress.

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jwkelly72 | @jwkelly72 | Jul 20, 2023

My oncologist team would give me high doses of liquid iron to counter anemia. Is there anything your team could do ? I also checked online for all nutrition that could help

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jwkelly72 | @jwkelly72 | Jul 27, 2023

My oncologist would give me liquid iron by iv until everything was normal, plus the formula I take Jevity 1.5 helps a lot

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