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Low grade ureter and renal pelvis kidney cancer diagnosis.

Posted by pcondon @pcondon, Sep 5, 2022

Has anyone had personal experience as a patient or as a doctor with new drug Jelmyto. Success, side effects?

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vickipm | @vickipm | Mar 7 10:59am

Hi pcondon. Have you had any luck getting information about experience with Jelmyto?
My husband is supposed to start it in April. Thanks.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 17 5:48pm
In reply to @vickipm "Hi pcondon. Have you had any luck getting information about experience with Jelmyto? My husband is..." + (show)
@vickipm

Hi pcondon. Have you had any luck getting information about experience with Jelmyto?
My husband is supposed to start it in April. Thanks.

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@slm189, might have experience with Jelmyto to share with you, Vicki.

@vickipm, was your husband able to start Jelmyto closer to home?

REPLY
vickipm | @vickipm | Mar 19 10:00am

They are still working on it. First yes, then no.
We leave for a Rhine cruise with husband having a drainage tube, nephostomy, in his back, no bag.
Anyway, more procedure and then chemo in May. It's been a long 18 months. But no info about effects of Jelmyto.

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