Hi Katrina,
Yes, I am so happy for you that they sent it out and got an accurate, much better diagnosis! And that you are cancer free!
My doc sent mine out to Mayo Clinic and it finally came back yesterday. At this point, I am supposed to be doing genetic testing and having sentinel node biopsy (SNB) surgery and then once those results are in, we will come up with a treatment plan.
I was prepared for it to come back as DCIS because my doc said it was highly likely, but I wasn’t prepared for the LGASC.
I am wondering if it is so rare, how they know the best way to treat it? I guess from past treatment experiences…..
What was Radiation like??
My doc said I would be doing that and also taking taking Tamoxifen, but I assume that will start after the genetic testing and SNB results are back. It’s all so confusing!
Have you had to do anything else since the radiation treatment?
Hello,
I was just recently diagnosed with LGASC and also Ductal Carcinoma In Situ (DCIS).
Being that LGASC is so rare, it would be nice to chat with others who have been diagnosed with this too. I’m not really sure how to use this site so any help would be appreciated. Thank you!
I also had Low Grade Adeno Squamous Metaplastic Carcinoma. Apparently, this is a difficult cancer to diagnose. Even the State University teaching hospital had to send my tumor specimen to Stanford University to get a diagnosis. From what I understand it is a combination of skin and glandular tissue. At first, I was told that I had a metaplastic carcinoma which is very fast growing and more likely to spread and is likely to recur. The 5-year survival rate for this is 55%. So, you can imagine how happy I was when my diagnosis was changed. I will never forget the 20 second hug that I received from my breast surgeon when she thought that I had the more serious diagnosis. I could just feel her concern for me. I am so glad that the original diagnosis was questioned, and they consequently sought out other opinions.
I had my surgery in January 2020. My surgeon recommended 4 weeks of radiation with a boost so that is what I did. So far, I am cancer free.
I am sorry that you had to get this diagnosis. What has your doctor recommended for you?
Hello,
I was just recently diagnosed with LGASC and also Ductal Carcinoma In Situ (DCIS).
Being that LGASC is so rare, it would be nice to chat with others who have been diagnosed with this too. I’m not really sure how to use this site so any help would be appreciated. Thank you!
@katrina123
It must be frustrating trying to find information on a relatively rare form of breast cancer. You may already be aware of https://www.metaplasticbc.com/ but it appears to be a good source of information and support. If you haven't visited it, you might find it of interest and assistance in your quest. Best of luck and blessings to you.
My cancer is considered a low grade adenosquamous carcinoma which is not the same as a regular metaplastic carcinoma. Thank you for the site information anyway.
@lilybird I also have low grade adenosquamous metaplastic carcinoma. It was a very fast growing tumor. Three months after I had a mammogram that was negative I had a 2 cm tumor. I think because this tumor is so unusual it was difficult to identify on the mammogram. My local hospitals pathology department sent my specimen to Stanford’s pathology department to get a second opinion and I was glad that they did because the diagnosis went from a metaplastic carcinoma with a high mortality to a low grade adenosquamous metaplastic carcinoma with a much better chance of survival. The cancer had neural invasion so I don’t know whether it has metastasized. I had a lumpectomy in Jan 2020 then 4 weeks of radiation in April and now I have started taking Anastrozole. I am concerned because on top of breast cancer I have CVID a primary immune disease. @lilybird I hope that you are doing O.K. What was your treatment?
@katrina123, you'll notice that I moved your message to this existing discussion about low-grade adenosquamous carcinoma (LGASC). I did this so you can meet @cheeta and @lilybird.
Has anyone on this site had this breast cancer? It is rare and I have not found very much research on it. If you have had it I would like to know how you are doing and what treatment you have had.
Thanks
Katrina123
@katrina123
It must be frustrating trying to find information on a relatively rare form of breast cancer. You may already be aware of https://www.metaplasticbc.com/ but it appears to be a good source of information and support. If you haven't visited it, you might find it of interest and assistance in your quest. Best of luck and blessings to you.
Has anyone on this site had this breast cancer? It is rare and I have not found very much research on it. If you have had it I would like to know how you are doing and what treatment you have had.
Thanks
Katrina123
@katrina123, you'll notice that I moved your message to this existing discussion about low-grade adenosquamous carcinoma (LGASC). I did this so you can meet @cheeta and @lilybird.
Has anyone on this site had this breast cancer? It is rare and I have not found very much research on it. If you have had it I would like to know how you are doing and what treatment you have had.
Thanks
Katrina123
Connect
Connect
Like
Helpful
Hug
Hi Katrina,
Yes, I am so happy for you that they sent it out and got an accurate, much better diagnosis! And that you are cancer free!
My doc sent mine out to Mayo Clinic and it finally came back yesterday. At this point, I am supposed to be doing genetic testing and having sentinel node biopsy (SNB) surgery and then once those results are in, we will come up with a treatment plan.
I was prepared for it to come back as DCIS because my doc said it was highly likely, but I wasn’t prepared for the LGASC.
I am wondering if it is so rare, how they know the best way to treat it? I guess from past treatment experiences…..
What was Radiation like??
My doc said I would be doing that and also taking taking Tamoxifen, but I assume that will start after the genetic testing and SNB results are back. It’s all so confusing!
Have you had to do anything else since the radiation treatment?
Thanks so much for your response!
Michelle
mchler,
I also had Low Grade Adeno Squamous Metaplastic Carcinoma. Apparently, this is a difficult cancer to diagnose. Even the State University teaching hospital had to send my tumor specimen to Stanford University to get a diagnosis. From what I understand it is a combination of skin and glandular tissue. At first, I was told that I had a metaplastic carcinoma which is very fast growing and more likely to spread and is likely to recur. The 5-year survival rate for this is 55%. So, you can imagine how happy I was when my diagnosis was changed. I will never forget the 20 second hug that I received from my breast surgeon when she thought that I had the more serious diagnosis. I could just feel her concern for me. I am so glad that the original diagnosis was questioned, and they consequently sought out other opinions.
I had my surgery in January 2020. My surgeon recommended 4 weeks of radiation with a boost so that is what I did. So far, I am cancer free.
I am sorry that you had to get this diagnosis. What has your doctor recommended for you?
Katrina
-
Like -
Helpful -
Hug
1 ReactionHello,
I was just recently diagnosed with LGASC and also Ductal Carcinoma In Situ (DCIS).
Being that LGASC is so rare, it would be nice to chat with others who have been diagnosed with this too. I’m not really sure how to use this site so any help would be appreciated. Thank you!
@elizm I just realized that the site that you referenced does have some information regarding my cancer type. Thanks for the info.
-
Like -
Helpful -
Hug
1 ReactionMy cancer is considered a low grade adenosquamous carcinoma which is not the same as a regular metaplastic carcinoma. Thank you for the site information anyway.
@lilybird I also have low grade adenosquamous metaplastic carcinoma. It was a very fast growing tumor. Three months after I had a mammogram that was negative I had a 2 cm tumor. I think because this tumor is so unusual it was difficult to identify on the mammogram. My local hospitals pathology department sent my specimen to Stanford’s pathology department to get a second opinion and I was glad that they did because the diagnosis went from a metaplastic carcinoma with a high mortality to a low grade adenosquamous metaplastic carcinoma with a much better chance of survival. The cancer had neural invasion so I don’t know whether it has metastasized. I had a lumpectomy in Jan 2020 then 4 weeks of radiation in April and now I have started taking Anastrozole. I am concerned because on top of breast cancer I have CVID a primary immune disease.
@lilybird I hope that you are doing O.K. What was your treatment?
-
Like -
Helpful -
Hug
2 ReactionsThanks
@katrina123
It must be frustrating trying to find information on a relatively rare form of breast cancer. You may already be aware of https://www.metaplasticbc.com/ but it appears to be a good source of information and support. If you haven't visited it, you might find it of interest and assistance in your quest. Best of luck and blessings to you.
-
Like -
Helpful -
Hug
2 Reactions@katrina123, you'll notice that I moved your message to this existing discussion about low-grade adenosquamous carcinoma (LGASC). I did this so you can meet @cheeta and @lilybird.
What treatments have you had or will you have?
Has anyone on this site had this breast cancer? It is rare and I have not found very much research on it. If you have had it I would like to know how you are doing and what treatment you have had.
Thanks
Katrina123
-
Like -
Helpful -
Hug
2 Reactions