Low Grade Adenosquamous Carcinoma. Anyone else diagnosed with this?

Posted by lilybird @lilybird, Jan 3, 2019

Looking for someone else who has been diagnosed with this type of cancer.

hi @lilybird, welcome to Connect. From what I have read, low-grade adenosquamous carcinoma (LGASC) is a rare, unique variant of metaplastic breast carcinoma. It must be hard to find others with the same diagnosis.

When were you diagnosed, Lily? What treatments have you had or will you have?

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I have also been told that I have a low grade adenosquamous cancer of the breast
I don't know what treatment option you have decided on
I feel as if they are treating me as if I have stage 4 cancer

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@cheeta

I have also been told that I have a low grade adenosquamous cancer of the breast
I don't know what treatment option you have decided on
I feel as if they are treating me as if I have stage 4 cancer

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Hi @cheeta, welcome to Connect. What treatment option have you and your team decided on?

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Has anyone on this site had this breast cancer? It is rare and I have not found very much research on it. If you have had it I would like to know how you are doing and what treatment you have had.
Thanks
Katrina123

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@katrina123

Has anyone on this site had this breast cancer? It is rare and I have not found very much research on it. If you have had it I would like to know how you are doing and what treatment you have had.
Thanks
Katrina123

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@katrina123, you'll notice that I moved your message to this existing discussion about low-grade adenosquamous carcinoma (LGASC). I did this so you can meet @cheeta and @lilybird.

What treatments have you had or will you have?

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@katrina123

Has anyone on this site had this breast cancer? It is rare and I have not found very much research on it. If you have had it I would like to know how you are doing and what treatment you have had.
Thanks
Katrina123

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@katrina123
It must be frustrating trying to find information on a relatively rare form of breast cancer. You may already be aware of https://www.metaplasticbc.com/ but it appears to be a good source of information and support. If you haven't visited it, you might find it of interest and assistance in your quest. Best of luck and blessings to you.

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@colleenyoung

@katrina123, you'll notice that I moved your message to this existing discussion about low-grade adenosquamous carcinoma (LGASC). I did this so you can meet @cheeta and @lilybird.

What treatments have you had or will you have?

Jump to this post

Thanks

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@lilybird I also have low grade adenosquamous metaplastic carcinoma. It was a very fast growing tumor. Three months after I had a mammogram that was negative I had a 2 cm tumor. I think because this tumor is so unusual it was difficult to identify on the mammogram. My local hospitals pathology department sent my specimen to Stanford’s pathology department to get a second opinion and I was glad that they did because the diagnosis went from a metaplastic carcinoma with a high mortality to a low grade adenosquamous metaplastic carcinoma with a much better chance of survival. The cancer had neural invasion so I don’t know whether it has metastasized. I had a lumpectomy in Jan 2020 then 4 weeks of radiation in April and now I have started taking Anastrozole. I am concerned because on top of breast cancer I have CVID a primary immune disease.
@lilybird I hope that you are doing O.K. What was your treatment?

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@elizm

@katrina123
It must be frustrating trying to find information on a relatively rare form of breast cancer. You may already be aware of https://www.metaplasticbc.com/ but it appears to be a good source of information and support. If you haven't visited it, you might find it of interest and assistance in your quest. Best of luck and blessings to you.

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My cancer is considered a low grade adenosquamous carcinoma which is not the same as a regular metaplastic carcinoma. Thank you for the site information anyway.

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@elizm I just realized that the site that you referenced does have some information regarding my cancer type. Thanks for the info.

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