low dose naltrexone treatment

So sorry to learn about your dizziness problem. I have the same issue from Long Covid-since 2023. I do take LD Naltrexone mitered to 4.5 mg once a day. It seems to help with fatigue but not so much with dizziness, I'm afraid. for me what helps the dizziness is not overdoing activity. When it starts, I have to stop and rest for a while. I understand your concern about putting an extra burden on your spouse. My husband basically does almost everything. I can do my own laundry and our towels and linens, do dishes once a day and I also pay bills. But he does the grocery shopping, makes dinner, and takes care of our outdoors. We have a housecleaner come twice a month; my husband usually vacuums as needed. I hate feeling like I'm not doing my share. Fortunately we are both retired. Good luck with the LD Naltrexone -having more energy does seem to keep the dizziness at bay.
longer

I meant LD Naltrexone compounded to 4.5mg, mot mitered

Thanks for sharing your experiences. It helps me understand what I might expect.

My loved one has taken it several different ways. The cheapest way was her her to get a syringe and mix capsule contents with some water but she said it tasted awful.

We were able to get a compound pharmacy to make it in varying doses per bottle so she can adjust the amount she takes based on her symptoms.

The dizziness is helped by working with the POTS cardiologist and mostly she takes low doses of midodrine & beta blocker for that.

Hello,
I started taking Low Dose Naltrexone (LDN) probably 5 years ago. I take it fibromyalgia and Chronic Fatigue. I believe it helps tremendously with the Fibromyalgia; I think the side effect on not having constant debilitating muscle and joint pain translates into less fatigue. When I had Covid in November 2023, I went to Mayo Clinic, the long covid program a number of months later. I was asked about taking the LDN, was it helping my Long Covid. I said I couldn't tell because I was on it before I got long covid. I believe that it does help, because I have not experienced a recurrence of pain. Fatigue increased for months, but that is more manageable now. Unfortunately, I don't think it helped with the dizziness, I agree that not overdoing it and pacing myself is the biggest help with that. I am quite sure I would have pain and headaches if I were not on LDN. I went off it twice at my doctors request, and the Fibromyalgia and general pain, headaches came back, which brought back more fatigue. He said he just wanted me to test it to remember why I'm on it. I am on the recommended 4.5 mg. for Fibromyalgia, took me several weeks to get up to that amount. In my experience, it is rather benign drug, I have no side effects and very low dose and is amazing for me to keep me out pain. And I don't take any prescription medicine except a compounded thyroid med, because I get side effects from any I have tried.

My long Covid symptoms are mainly lymphedema of hands, feet, arms and legs. Been on low dose naltrexone for about 10 months. No improvement noticed.

For pots dizziness I use compression knee socks and use hydration packs mixed with water (Liquid IV or TipTop - several brands). My balance is worse and a cane didn’t help - I’m not emotionally ready for a Walker. I use my little shopping cart when I go out and that helps.
I get very dizzy at my cat’s litter box and keep a folding chair next to it so I don’t bend as far.

I tried Fludro and then Midrdine - neither helped separately. Now I take the 2 pills together but not helpful…

I read about SGT - stellate ganglion block and vagus nerve stimulator which is non-invasive and clips onto your ear while you sleep. I’ll ask my doc next visit.

Good luck and don’t give up!

I’m interested re. your last comment about ’compounded thyroid med’ suggesting your are hypothyroid and likely Hashimoto’s too? A Dr.Lowe ( now dead) who specialised in hypothyroidism believed under medicated T3 lead to fibromyalgia…but his protocol did not work for me. I have both thyroid ailments , plus fibromyalgia (and type 3c diabetes from septic shock/ acute pancreatitis), and had LC nearly 5 years. I tried LDN and cannabis oil before LC but no obvious change to pain/ fatigue, now LC has made the fibromyalgia worse and I’ve got dysautonomia ( postural hypotension with syncope, but high HR too), no sense of smell.…tried a wide range of LC supplements/ drugs without improvement and currently trying ‘low and slow’ vagus nerve stimulation device. I’ll give the vTENS device a good trial, and if no improvement will try LDN again. It’s so slow to try to do one hopefully improvement one at a time!

I have been taking LDN (4.5 mg) since December. After 2 months, I found relief from my shortness of breath and lack of energy, enabling me to walk distances that I was not able to walk for the last 4 years. (Covid in August 2020) I do find that after walking, my legs are achy at night. Extra Strength Tylenol helps. I have been taking 50 mg of Imipramine for Fibromyalgia since before Covid. At one point, I weaned myself off it because there were studies that said it was not good for Long Covid - big mistake!! I am back on it and feel much better. With LDN, I still have problems with dizziness and balance. I do have POTS, IBS, etc. I'm not all better but am glad I walk distances again!!
Hope that helps!!

Thank you for that info. I am encouraged after your comments.