LOW COMPLEMENT COMPONENT C1Q

Posted by bhoudeshell @bhoudeshell, Aug 8 11:03pm

Hi everyone, I am currently being evaluated for a bleeding disorder and autoimmune. They think it could possibly be both due to low C1Q and possible delta dense granule deficiency. Does anyone know what autoimmune disease or any other health issues that could cause a low C1Q but normal blood work?

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artemis1886 | @artemis1886 | Aug 9 3:52am

https://rarediseases.info.nih.gov/diseases/12958/c1q-deficiency

bhoudeshell | @bhoudeshell | Aug 9 11:03am

In reply to @artemis1886 "https://rarediseases.info.nih.gov/diseases/12958/c1q-deficiency" + (show)

Thank you. I feel like there is not much out there about it. I think they tested me for lupus and it was negative

artemis1886 | @artemis1886 | Aug 9 8:01pm

In reply to @bhoudeshell "Thank you. I feel like there is not much out there about it. I think they..." + (show)

It is a frustrating walk trying to get the information we need. It seems like they bury it making it impossible. I wish you the best. I hope you get to feeling better.
https://www.cell.com/cell/fulltext/S0092-8674(24)00639-1

bhoudeshell | @bhoudeshell | Aug 10 8:37am

In reply to @artemis1886 "It is a frustrating walk trying to get the information we need. It seems like they..." + (show)

Thank you!

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