"Looking forward." Has PN taken that away from me, too?

Posted by Ray Kemble @ray666, Jun 11, 2025

This morning I had to psyche myself up. At 2, I'll be meeting a friend for coffee; he and I used to meet for coffee every Wednesday at 2 –– but that was before PN. In my journal this morning I gave myself a pep talk: "Come on, Ray, don't have second thoughts about having coffee at 2. You used to love having coffee at 2. Instead of trying to get out of it, why don't you try looking forward to it?" And that's when I realized, since PN, how few things I genuinely look forward to. The realization troubled me. Pissed me off, too. For the first time it struck me how "looking forward" is something I used to do about a whole host of things. Somewhere along the way (since my PN diagnosis) I'd stopped looking forward to things. Has that happened to you? Have you lost the instinctive eagerness for social get-togethers, weekend road trips, neighborhood block parties, Saturday shopping –– coffee at 2? Have you given in to the loss of "looking forward"? Or have you tried to do something about it? What have you done? And have you been successful? I'd love to know.

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Has any one tried the shoe inserts with the magnets in them?
There is so much crap & misinformation on the Webb & full of snake oil salesman, a person could wind up chasing his own tail.

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Profile picture for frankmoore @frankmoore

I also have a pair of Sketcher's with a wide Toe Box that are comfortable on my feet.

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In all the shoes I've bought since I was in younger man running insanely crazy distances, I've sought I wide toe box. These days, thanks to PN, aging, and over-use, my feet require extra attention. It's a lesson I've had to learn: that added attention to my feet, every day –– nail filing, pumicing the rough spots, a little amateur massaging with a high quality lotion –– adds up to happier feet, and happier feet means a happier me. 🙂

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Profile picture for frankmoore @frankmoore

I have no pain, balance is not so good. I have found if I walk fearful & carefull my balance is worse. If I charge like a raging bull my balance is better. I think my momentum is what helps my balance. I’ve always been a hiker @ if i was hiking up hill I was happy.I broke my back as a wild kid & think that has something to do with why I have neuropathy.

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I may not charge like a raging bull, but I do find that something less than over-timid walking means better balance. I'm still cautious, but at the same time I'm trying to stride out. Because of my PN, and even more because of the sepsis infection it took me a year to recover from (I've still a residue of symptoms), I've developed a routine: I rise from my chair, I begin a silent count to 30, while counting I start to shift my weight from foot to foot and slowly turn my gaze from right to left and up and down, then when I reach thirty I step out, heel/toe/heel/toe, alert, but not overly timid.

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Profile picture for frankmoore @frankmoore

Has any one tried the shoe inserts with the magnets in them?
There is so much crap & misinformation on the Webb & full of snake oil salesman, a person could wind up chasing his own tail.

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I was foolish to waste my money on a pair of those rip-offs a couple of years ago. That was before I wised up and discovered that 99% of these gadgets are a scam. I tried to return them, but their customer "service" was oddly quiet.

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I hear you, loud and clear. Doing just about anything...walking, exercising, any kind of social event has no appeal anymore. Lying in bed and watching TV is the only thing I look forward to any more, sad to say.

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Profile picture for heisenberg34 @heisenberg34

I hear you, loud and clear. Doing just about anything...walking, exercising, any kind of social event has no appeal anymore. Lying in bed and watching TV is the only thing I look forward to any more, sad to say.

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Good morning, heisenberg34 (@heisenberg34)

That for many of us is the toughest of tough challenges: fighting to maintain the wholeness of the spirit. If you've pain, there are various meds you can try (if you're lucky, one may provide some relief). If your balance is all wonky (as mine is), there are balance routines you can try (and, who knows, your balance may actually improve). But when PN begins to make your spirit falter, to change your whole sense of self –– oh, boy, that's a tough one! I fight that fight every day. I can sometimes get up in the morning feel like I'm wrapped in sourness. I can too easily think, Why, oh why, has this happened to me? My answer?My weapons? Journaling. (And coffee!) Generally, I'm up about an hour before my partner gets up, so for about an hour it's just me, the cat, my journal, my gel pen –– and, of course, my coffee! My goal is to be full-spirited by the time my partner gets up. If all goes well, I'll succeed. I'll still have my PN. My PN is a companion for keeps; I've learned to accept that. But the sourness will be gone; my spirit will restored. Do I make it sound easy? It's not. It's hard. It takes fighting the good fight over and over and over again, every morning. My life with PN: that's just how it is.

I'm rooting for you! I hope you've a bunch of better days just ahead!
Ray (@ray666)

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