"Looking forward." Has PN taken that away from me, too?

@dbeshears1 Debbie - sounds like you have a doctor who is an idiot. At this point in our life, who knows us better as to our physical abilities or lack thereof than us. It is extremely difficult when you see someone in the medical field, place your confidence in her or him and they don't listen to your concerns. It's like it goes through one ear and out the other. I had that happen last October, I told the practitioner she was wrong on her diagnosis, I got up and walked out. Went to a different doctor 8 days later and I was correct. I told him what the other doctor said, and he rolled his eyes. Obviously, I switched doctors. All practitioners are not alike and lately, I've found nurse practitioners to be more willing to listen. I believe that their training is different and at times, they can spend more time with patients.

Ray,
I had an incident 6 years ago when I was labeled as not eligible for a treatment because of the physical therapy involved, based on my label “uses a walker”. No test or assessment of ability, just based on seeing me with it. So for 6 years now, I keep my walker in my car when I go to appointments. I use my foldable cane in case I need help with a curb or step as many of my walks into a large complex may be long (SC has a lot of retirees, so especially at doctor appointments, finding handicapped parking is difficult). When I get to the office door, I neatly collapse my cane and put it in my bag, so while it’s not the prettiest walk while being led around the office, there’s no visible evidence of using assistance. (Fingers crossed they don’t make me climb up or down from a tall exam table! I know not to put myself in risk of injury)

I do have a problem with doctors who cut & paste from previous visits or from other doctors’ reports and I sometimes still see “uses a walker” (or cane). So now I make it a point at those visits to say “Note I’m not using a walker or cane” - and point out that I’d like the report to state that or exclude the walker/cane reference since I obviously can walk unassisted.

I am disabled, I can’t deny I am affected significantly by my PN. I know it sounds like a game, but I don’t want to automatically be denied a treatment of any kind that may improve my quality of life. I’d like to at least be able to have a discussion or reasonable assessment of ability to qualify vs a blanket rejection, especially if people are relying on outdated or unreliable notes in other doctor reports.

I find it carries over to my friends and family too. Sometimes I just don’t want to always “look” handicapped, or want to avoid the discussion of health. So I probably contribute to the appearance of being able to do a lot more than I can!

Good afternoon, @ray666, @dbeshears1, @mob55, @julbpat, @liloldlady, and all who are blessed to find kindred souls here at Connect ~
I've been pondering this business of no longer looking forward to in-person celebrations, get-togethers, and other events that are mostly out of my ability to attend, and there are many! Boy, this topic certainly resonates with me! Like so many of you, in my younger years, I enjoyed some very fulfilling careers and also some extensive travel and really still could, if it weren't for the limitations of my long time and now severe P.N. and some unpredictable digestive tract surprises. 😜 As a lot of you know, in 2022 I experienced extensive lumbar surgery and then hip replacement (this latter from a fall 10 weeks after the back surgery). I spent several weeks in a new, lovely rehab facility which for all practical purposes was more like a luxury hotel because I was a "guest" (their word), not a "patient". Terribly and consistently understaffed, the one thing I LOOKED FORWARD to was getting home!! What I saw as interminable boredom turned out to be a gift from God. Because of that experience, I know that staying independent in my own home is a joyous freedom I look forward to every day. Sure, I have the occasional "blues" from weather changes or this-or-that. But I am content to look forward to keeping up my home, doing a bit of shopping, preparing (or not!) what I want (or don't want!) to eat, getting to set my own daily routine as to when I feel most like exercising, showering, eating, and taking medication when needed, as opposed to having to take it according to a precision-followed time-chart, with no say in the matter. I look forward to being able to maintain a decent social life, -- though mostly on Zoom -- because of aforementioned complications with mobility, etc. In living out this new normal, what I miss the most is the expectation/ability to be reliable and dependable, hence the option of Zoom as opposed to in-person gatherings. I live alone with my sweet lapdog (my husband passed 12 years ago) and I really respect you, Debbie, and you, Ray, for the loving presence that you maintain for the happiness of your husband and partner. You are gifting them the joy of looking forward to giving you outings, things to do, and understanding aid where needed so that you may do these things together. That's awesome for all involved!
Ok, to avoid extensive rambling, I'll wish all of you the very best as adjustments and more adjustments present themselves. I'm with you in it, and I sure appreciate our discussions, suggestions, and topics that come to be shared! Blessings!! ~ Barb

Hi, Debbie

I'll make this short as I see you've already received some great replies. It can be a tricky business convincing people that a disability of any sort and of any severity is not an either/or proposition. I find myself all the time having to assure people, "OK, that's right, THIS is something I'm uncomfortable doing –– that's why I've brought my cane –– but once I've done THIS and done it safely, I'm still able-bodied in more ways than not. Don't let this cane fool you!"

Ah, life with PN! 🙂

Havea great day, Debbie!
Ray (@ray666)

I only need mine along when it’s nighttime and I need to play whackamo if someone does something out of line 😁 Sort of like having a baseball bat available if you need to use one.

I only need mine along when it’s nighttime and I need to play whackamo if someone does something out of line 😁 Sort of like having a baseball bat available if you need to use one.

I love my 2 nurse practitioners! I call them Dr’s because I believe they deserve titles. That Dr 6 years ago is long gone from my line-up, facilitated by my geographic moves. You’re right - we know our bodies! I’m happy to say I’ve had mostly very good doctors, GREAT PCPs! I hope you are making out ok, I think of your big obstacles often, and yes, we all have bigger mountains to climb sometimes. You’re my hero

" … Obviously, I switched doctors."

It took me a while, Ed, before I realized I had permission to switch doctors. My German Grosmutter had set the tone for our extended family. To her, it was "Yes, Doktor," "Oh, yes, Doktor," "Whatever you say, Doktor." My grandfather, my mother, my dozen uncles. aunts, great-uncles and great-aunts: they all thought of their doctors as king and would never have switched doctors. I can't say for a fact that if they'd switched doctors they'd have lived longer, healthier lives; I do know that a discouragig number of the members of my extended family died young and in pain. I'm grateful that I relate differently to my doctors. With few exceptions, I trear my doctors with respect, but I regard our relationship as teamwork; my best doctors are like coaches: they've the smarts to call good plays but from the sideline. whereas I'm in the game, and like veteran quarterback, I'm seeing the action up close; I'd like to always have the final say, whether the next play will be a downfield toss or a hurry-up running play.

Merry Monday to everyone!
Ray (@ray666)

Haha - it sure helped/helps with social distancing! I also feel pretty smart when I use it at a grocery store to slide something off the top shelf for me!

My cat, too, is terrified of my cane. Fortunately, he doesn't seem to understand that it's me who is wielding the cane. He sees it as some sort of "evil stick" and the fact that it protrudes from my hand in no way means I'm responsible for the evil the stick does. 🙂