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Looking for success stories for Uveal Melanoma Metastasizing to liver?
I was diagnosed with OcularUveal Melanoma in 2023I had successful radiation treatment. My recent scan of the abdomen shows 8 highly suspicious lesions in my liver yet none are big enough to biopsy. My next scan is 8/9 and I see an oncologist 8/12. I also have a 2nd opinion scheduled at MD Anderson in Jacksonville, Florida, my hometown. I am trying to remain positive that I can beat this. I have changed my diet to reduce all sugar, trying to eat very healthy, walking, and trying to reduce stress. I have 2 books, one I just finished titled How to Starve Cancer and another The Metabolic Approach to Treating Cancer. Anyone out there with advice or success stories they can share with me? Do’s and Don’ts ?
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PectaSol-C modified citrus pectin is said to slow down the spread of metastases. Also, lactoferrin might be of use. I use both. Best wishes, Paul
@borschtgirl17, there are a few discussions about Y90, also called radioembolization, regarding liver metastasis, not all are related to melanoma. See the search results here:
- Radioembolization https://connect.mayoclinic.org/search/discussions/?search=radioembolization
- Y90 https://connect.mayoclinic.org/search/discussions/?search=y90
My thoughts and my prayers are with you. I'm wishing for more than four years for you and hoping a cure is found soon. Are you also a member of a cure in sight?
Please enjoy your life. Give your fears to God. Follow-up when asked to for MRI & CT Scans. Do virtual visits with your oncologist.
It was 7 glorious healthy years before c showed up on my scans in my liver. I now am carrying a very heavy cross. Jan 16th 2025. April now and decisions on Y90 with 2 immunotherapy later. With this treatment it could possibly give me 4 years.
I have Big Faith that God has shown up and will do wonders so that I can share my testimony of Faith to others through this journey. I believe!!!
I am very healthy. No ailments. No one can tell what's going on inside of me.
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1 ReactionI'll be meeting with an oncologist in 2 weeks and they've given me a number to call a dietician. I'm really appreciating Dr. Mussalem's tips! I'll be asking my oncologist and gp to check for vitamin deficiencies, as well.
And, I can’t forget…exercise. I walk at least 5 days a week anywhere from 30 minutes to an hour!
My husband is fine. I urge you not to jump the gun on anything the book or Google tells you u til you meet with your oncologist or a dietician that is versed in the right steps to take for cancer. I believe in my heart of hearts that my liver lesions are stable because of the advice Dr. Mussalem gave me. She even ordered a lot of blood work in addition to my oncologists orders. She checked for vitamin deficiencies.
These tips are great, thank you!! I'm going to print them and add them to my research folder...and buy the foods!
Hi @me1229, It was for me. I was having back pain and stomach pain, particularly on the right, extreme fatigue - along with a variety of other symptoms. After a whole day they chalked it up to metformin and told me to get off of it, which concerned me, as it fights cancer, but I know there are other alternatives. My other half is healthy as a horse. He rarely ever gets more than a cold or the occasional flu. Is your husband alright?
@leigha67 first let me say one thing about my research as it relates to eating healthy…I think sugar is BAD for anyone, especially any product with “added sugar.” I always read the labels when I am grocery shopping!
Here are some nutrition advice I got from Dr. Mussalem. Some of the info is in response to product questions I had for her. I hope this helps !
1. If I want a protein bar the only one she recommends is Well Bean. They are only available online direct from their company. ALSO Feel Vegan, Skout and Laird Superfood Protein Bars.
2. Recommends if I have to have coffee cream she recommends I try Soy milk. The name brands she likes is unsweetened West Life, Edensoy or Silk brand. OR OATLY !Super basic Oatmilk
3. Drinking coffee is great for me but either light or medium roast. the dark roast loses the benefit of drinking the coffee. Antioxidants?
4. Green Tea up to 3 cups a day but a quality brand, not from China.
5. In smoothies try putting some turmeric and/or ginger.
6. Protein shakes as much as possible using Truvani protein powder purchased online or Whole Foods.
7. Sweet potatoes are great especially the purple ones.
8. Eat lots of beans and plant based whole grains.
9. Sunbutter/organic peanut butter can be bought at Walmart or through Amazon. Buy the one with NO ADDED SUGAR.
10. Ezekiel Bread in the green package (Sesame) she even likes Raisen English Muffins they make.
11. The pasta brand she recommends is “Brami”available at Whole Foods and Walmart. I LOVE this pasta. But she says the whole wheat pasta I used to eat is acceptable.
12. She likes the Rao Marinara Sauce.
13. “Actual Veges” brand black bean burger available at Whole Foods.
14. She recommends getting frozen Organic fruits at Walmart or Target because they have great prices. I can try Trader Joe’s also.
15. She talked about one interesting book called “What Happens in the Last Hour.”
16. One cookbook she recommended was called “BE A Plant Based Woman Warrior.”
17. She ordered some additional bloodwork for vitamin deficiencies.
18. Supplements for me - Natures Bounty 1000mg Turmeric (Plus Black Pepper Extract), pure O.N.E multivitamin and an Algae based Omega 3 plant based.
19. Eat plenty fresh fruits and veges.
20. She recommends the following olive oils.
OLIVE OIL
- [ ] Mild EVOO: California Olive Ranch 100% California Extra Virgin Olive OilThis extra virgin olive oil is sourced entirely from California. It has a moderate level of polyphenols (182 mg/kg).The aroma and flavor are mostly of ripe olive fruit, with descriptors like “ripe banana” and “nutty with a hint of ripe apple.”Cost: 40 cents per tablespoon ($13.49 per 16.9 fl oz bottle).
- [ ] High-Polyphenols: Lucini Italia Organic Extra Virgin Olive OilIf you’re looking for higher polyphenols (299 mg/kg) with a bit more pungency and bitterness, this olive oil fits the bill. It has an aroma and flavor primarily derived from green olive fruit.Price: 61 cents per tablespoon ($20.61 per 16.9 fl oz bottle). Note: Lucini Italia is the only “organic” olive oil approved in taste testing; others were rated as “Uncertain.”
- [ ] Very High-Polyphenols: Life Extension California Estate Extra Virgin Olive Oil While a bit pricey at 81 cents per tablespoon, this olive oil boasts very high polyphenols.