Looking for success stories for Uveal Melanoma Metastasizing to liver?
I was diagnosed with OcularUveal Melanoma in 2023I had successful radiation treatment. My recent scan of the abdomen shows 8 highly suspicious lesions in my liver yet none are big enough to biopsy. My next scan is 8/9 and I see an oncologist 8/12. I also have a 2nd opinion scheduled at MD Anderson in Jacksonville, Florida, my hometown. I am trying to remain positive that I can beat this. I have changed my diet to reduce all sugar, trying to eat very healthy, walking, and trying to reduce stress. I have 2 books, one I just finished titled How to Starve Cancer and another The Metabolic Approach to Treating Cancer. Anyone out there with advice or success stories they can share with me? Do’s and Don’ts ?
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I have gone thru 6 out 6 PHP chemo procedures, which chemo directly to the liver. This procedure has significantly reduced the size of my liver tumors. Mayo now offers this treatment in Jacksonville. Treatments are every 2 months.
I didn't write treat! Pectasol inhibits Gal-3. MCP has different qualities, and all research can not be lumped together.
PectaSol-C modified citrus pectin is said to slow down the spread of metastases. Also, lactoferrin might be of use. I use both. Best wishes, Paul
Modified citrus pectin (MCP) is an alternative therapy. There is not enough scientific evidence to say that pectin can treat cancer. https://www.cancerresearchuk.org/about-cancer/treatment/complementary-alternative-therapies/individual-therapies/modified-citrus-pectin-mcp
@borschtgirl17, there are a few discussions about Y90, also called radioembolization, regarding liver metastasis, not all are related to melanoma. See the search results here:
- Radioembolization https://connect.mayoclinic.org/search/discussions/?search=radioembolization
- Y90 https://connect.mayoclinic.org/search/discussions/?search=y90
My thoughts and my prayers are with you. I'm wishing for more than four years for you and hoping a cure is found soon. Are you also a member of a cure in sight?
Please enjoy your life. Give your fears to God. Follow-up when asked to for MRI & CT Scans. Do virtual visits with your oncologist.
It was 7 glorious healthy years before c showed up on my scans in my liver. I now am carrying a very heavy cross. Jan 16th 2025. April now and decisions on Y90 with 2 immunotherapy later. With this treatment it could possibly give me 4 years.
I have Big Faith that God has shown up and will do wonders so that I can share my testimony of Faith to others through this journey. I believe!!!
I am very healthy. No ailments. No one can tell what's going on inside of me.
I'll be meeting with an oncologist in 2 weeks and they've given me a number to call a dietician. I'm really appreciating Dr. Mussalem's tips! I'll be asking my oncologist and gp to check for vitamin deficiencies, as well.
And, I can’t forget…exercise. I walk at least 5 days a week anywhere from 30 minutes to an hour!
My husband is fine. I urge you not to jump the gun on anything the book or Google tells you u til you meet with your oncologist or a dietician that is versed in the right steps to take for cancer. I believe in my heart of hearts that my liver lesions are stable because of the advice Dr. Mussalem gave me. She even ordered a lot of blood work in addition to my oncologists orders. She checked for vitamin deficiencies.
These tips are great, thank you!! I'm going to print them and add them to my research folder...and buy the foods!