Looking for someone knowledgeable about chemo side effects

Posted by again2 @again2, Jan 24 11:16am

Finished treatment for my recurring endometrial cancer 4 months ago.My neuropathy in feet and hands and various pains have gotten worse recently. Pet scan showed I was clear of any growths,etc. First cancer was 3 1/2 years ago and was in remission until this new one. Just want to ask if there are any meds or anything to help me.Insurance doesn't cover palliative care so I can't contact them. I can't be the only one. Pet scan again end of February along with blood tests. Thanks.

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Hi there...I use ice and massage the affected areas. I use thin gloves (gloves I use for preparing foods or doing yard work or cleaning around the house -- not the plastic gloves) when inserting my hands into gel gloves ( I think there's gel inside the gloves) that you put in the freezer. Using gloves doesn't hurt my hands and can last about 10 minutes The gloves for feet aren't easy to use, so I just let my feet get cold (winter time anyway), until I can't tolerate the coldness anymore. It really helps a lot. Don't do more than 10 minutes each time you ice your hands/feet. I hope this will help your neuropathy.

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@c3b4

Hi there...I use ice and massage the affected areas. I use thin gloves (gloves I use for preparing foods or doing yard work or cleaning around the house -- not the plastic gloves) when inserting my hands into gel gloves ( I think there's gel inside the gloves) that you put in the freezer. Using gloves doesn't hurt my hands and can last about 10 minutes The gloves for feet aren't easy to use, so I just let my feet get cold (winter time anyway), until I can't tolerate the coldness anymore. It really helps a lot. Don't do more than 10 minutes each time you ice your hands/feet. I hope this will help your neuropathy.

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Many thanks.

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I use microwavable therapy mittens for hands, and also the ones designed for feet. The heat therapy helps reducing the neuropathy pain in my fingers and toes.

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@again2 Like you I had a recurrence of endometrial cancer (endometrioid adenocarcinoma) however I was prescribed radiation therapy and did not have chemotherapy. The recurrence was two years ago and so far my cancer surveillance appointments every 3-4 months have shown no sign of disease. This is all to say that these appointments and unfortunate recurrences are nightmares for us but I'm glad to know that your recurrence was caught when it was.

May I ask what kind of chemotherapy you had? I'm going to tag some of the members in our support group. I'll ask them to weigh in and hopefully provide you with more hints and information.

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I have neuropathy in my feet from chemo and have found the toe spacers and heat socks to help a lot. Both are inexpensive and can be found at CVS. I find the toe spacers really help a lot and the heat socks( heat in microwave) also help and just plain feel good!!

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@again2

Many thanks.

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I also do a lot of fasting; it helps a lot...

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again2 @again2 Also, on Tuesday, January 23rd, I had the recommended surgery to avoid recurrence...
PROCEDURES:
1. Robotic assisted operative laparoscopy.
2. Total hysterectomy.
3. Bilateral salpingo-oophorectomy.
4. Bilateral pelvic lymph node dissection.
5. Bilateral sentinel lymph node mapping.
6. Appendectomy.

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@c3b4

Hi there...I use ice and massage the affected areas. I use thin gloves (gloves I use for preparing foods or doing yard work or cleaning around the house -- not the plastic gloves) when inserting my hands into gel gloves ( I think there's gel inside the gloves) that you put in the freezer. Using gloves doesn't hurt my hands and can last about 10 minutes The gloves for feet aren't easy to use, so I just let my feet get cold (winter time anyway), until I can't tolerate the coldness anymore. It really helps a lot. Don't do more than 10 minutes each time you ice your hands/feet. I hope this will help your neuropathy.

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again2 @again2 I have only a tiny bit of neuropathy now on my finger tips and my toes, and I 'm confident this will go away soon. Keep trying methods that will help you...the heat pad didn't work for me; it only hurts my hands and feet.

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again2 @again2
I'm not quite familiar with this discussion group, so my response for you goes to who knows who (myself!) 🙂 I hope you can read it and I hope it helps < 3

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@c3b4

again2 @again2 Also, on Tuesday, January 23rd, I had the recommended surgery to avoid recurrence...
PROCEDURES:
1. Robotic assisted operative laparoscopy.
2. Total hysterectomy.
3. Bilateral salpingo-oophorectomy.
4. Bilateral pelvic lymph node dissection.
5. Bilateral sentinel lymph node mapping.
6. Appendectomy.

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@c3b4 Oh, my, gosh! You had this surgery just two days ago and you are already posting here? How are you feeling? Did you have this surgery in a one-day surgery? I had all of what you posted done except for #4 and #5 all in one day and then went home. Amazing that this was possible. I felt a lot of fatigue but not much pain at all.

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