Looking for people who have high levels of B6 trigger neuropathy.

Posted by margesil @margesil, Nov 27, 2024

Two years ago I experienced a number of different symptoms that I thought were disconnected…nausea, heartburn, walking off balance, burning/ pinprick pain in feet, numbness. Found they were, in fact, symptoms of B6 toxicity. Requested bloodwork to test my theory, despite doctors skepticism. Level was at 72! ( norm near 10) I changed supplement so B6 was only 4 mg. Tried to cut down foods high in B6 , but found it difficult, as they were most easily digestible. After 6 months, B6 gradually came down, meds helped with digestive issues, lost 30 lbs. Unfortunately, the neuropathy has remained. I recently found myself with more wobbly gait, some sensitivity to light, just feeling off. Bloodtest showed B6 creeping back up, now 32. Has anyone found a reason for why B6 absorption may be problematic, if supplementation is not a cause?

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my case similar symptomology except B6 staying WNL as long as no Mg supplements. My main continuing issue is the wobbly gait. I've had vestibular tests; all normal. Has anyone found a successful therapy for the wobbly gait??

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Hola, alguien ha tenido sintomas de trastornos mentales aasociados a toxicidada con B6? Yo me ehe sentido mal, con ansiedad y ataques de panico, asi como mas sensible a todo y a veces enfurezco por todo.

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Two years ago I was having severe leg and foot cramps. My blood work showed my B6 to be 52, up from 26. I had to stop taking a supplement I took for my tortuous redundant colon, Emma. It worked great, better than anything else I tried before it or after going off it it. It had mega amounts of B6 in it. So I stopped and 3 months later it was back to normal. But I was also developing strange sensations in 3 toes in my left foot. The podiatrist suspected peripheral neuropathy and told me to keep and eye on it. I was off of it for a little over a year and tried again. I asked for bloodwork at my wellness visit in May of this year and it was 86. I went back off of it again. I was also take a hydration product that had a lot of B6 so I discontinued it also. Now I have tingling and some pain in my right foot, after I stopped taking the B6. After reading some of the comments, I would say I have experienced wobbly gait also more recently. I am also taking magnesium to help me sleep. I noticed assieljr mentioned magnesium in his note. I have researched self help ideas for peripheral neuropathy. Working on some of them. Any suggestions?

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Profile picture for dianesgk @dianesgk

Two years ago I was having severe leg and foot cramps. My blood work showed my B6 to be 52, up from 26. I had to stop taking a supplement I took for my tortuous redundant colon, Emma. It worked great, better than anything else I tried before it or after going off it it. It had mega amounts of B6 in it. So I stopped and 3 months later it was back to normal. But I was also developing strange sensations in 3 toes in my left foot. The podiatrist suspected peripheral neuropathy and told me to keep and eye on it. I was off of it for a little over a year and tried again. I asked for bloodwork at my wellness visit in May of this year and it was 86. I went back off of it again. I was also take a hydration product that had a lot of B6 so I discontinued it also. Now I have tingling and some pain in my right foot, after I stopped taking the B6. After reading some of the comments, I would say I have experienced wobbly gait also more recently. I am also taking magnesium to help me sleep. I noticed assieljr mentioned magnesium in his note. I have researched self help ideas for peripheral neuropathy. Working on some of them. Any suggestions?

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@dianesgk

I have increased my walking for over a year now and added strength training and weight bearing exercises for my osteoporosis and been diligent to make sure I am hydrated. Hope it eventually provides some help. I read a previous comment that it can.

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Profile picture for dianesgk @dianesgk

Two years ago I was having severe leg and foot cramps. My blood work showed my B6 to be 52, up from 26. I had to stop taking a supplement I took for my tortuous redundant colon, Emma. It worked great, better than anything else I tried before it or after going off it it. It had mega amounts of B6 in it. So I stopped and 3 months later it was back to normal. But I was also developing strange sensations in 3 toes in my left foot. The podiatrist suspected peripheral neuropathy and told me to keep and eye on it. I was off of it for a little over a year and tried again. I asked for bloodwork at my wellness visit in May of this year and it was 86. I went back off of it again. I was also take a hydration product that had a lot of B6 so I discontinued it also. Now I have tingling and some pain in my right foot, after I stopped taking the B6. After reading some of the comments, I would say I have experienced wobbly gait also more recently. I am also taking magnesium to help me sleep. I noticed assieljr mentioned magnesium in his note. I have researched self help ideas for peripheral neuropathy. Working on some of them. Any suggestions?

Jump to this post

@dianesgk I experienced a number of seemingly disconnected symptoms 4 years ago that turned out to be a B 6 toxicity issue. It was up to 74 then. Changed to no B6 supplement, and gradually got under control. Neuropathy remained with doctor saying damage was permanent . Over last few months I noticed a worsening of balance issues that I assumed was just a getting older problem. Surprise! The magnesium I started to take for cramps, sleep help had 2000 more B6 than daily required. I hadn’t noticed that it was added! Blood test showed B6 was up to 95!!!
Other than balance , it seems to have triggered OLP that had been dormant in my mouth. Stopped taking , but now I’m dealing with both problems, Using a steroid gel for mouth issue to resolve. Lesson learned: blood work will be tested for B6 3-3 times a year. I’ll be seeing my endocrinologist to check why my body is not metabolizing B6 normally. Yes, Mg had high amounts, but in past I was able to utilize body’s enzymes etc to rid myself of B6. I know staying hydrated, exercising is important as well. It seems like a little problem, but out of control it causes a dominoe of bigger ones,

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