Looking for People Diagnosed w/Autoimmune Autonomic Ganglionopathy
If you have the above diagnosis, please reach out to me. I just want to chat with others who experience some of my same symptoms and learn what works for you. Also, if you’ve done the Corticosteroid infusions and Rituxab treatment, I want to know your outcome, as I am considering the treatment.
Thanks! Sending much love and light to all.
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My daughter is 17 and I believe she has AAG. Autonomic specialist thinks it is autoimmune. She has urine retention, OH, upper abdominal pain and gastro issues, no sweating, eye issues. Did your blood tests come back positive? Trying to work to get her plasmapheresis or IVIG. Have you moved forward with any treatments?