Looking for others experience with exercise and movement.

Posted by jum13 @jum13, Mar 10 9:18pm

When I first got my symptoms, the physical and sensory issues made walking impossible so I basically stopped accept for the bare minimum. This led to things getting worse and also obesity. I had no choice but to force myself to walk. It was painful at first. Eventually I joined a gym. Five years later, I do 20k steps a day, I bike , I lift. My symptoms are very manageable and now with Pilates I can move my toes separately. I still have sensory issues but I ignore them or have adapted.
I am now older and thought maybe I should cut back, take days off so I did . However, I soon found my symptoms getting worse and less manageable. I soon had difficulty walking. So I decided to go back to what I had been doing and immediately things calmed down and my symptoms were better. At 60 , I’m not sure I can keep up the 20k steps forever.
Just wondering if anyone had the same experience? Also do you find moving some throughout the day is better than just exercising at one time?

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Profile picture for arcuri24 @arcuri24

Hi Jum13 Your exercise regimen seems to be beneficial. As for one long workout or scattered throughout the day, I prefer mixing it up throughout the hours. I really can't sit still anyway and I have back pain from time to time so the movement helps neuropathy and spinal issues. Since I had my shin shave biopsy which is supposedly and hopefully in a healing or remodeling phase, I try to do more gentle, nerve gliding exercises. I am also at physical therapy 2x per week. So I can identify with NJEd because with an ailment or injury, the playing field must change. Sitting around cannot be an option for me both mentally and physically. Not too many doctors out there that will encourage exercise--they are trained nowadays to push medicines and shots. Exercise builds stamina, strength and a healthy outlook--priceless! No pill will give you that. Keep at it and your 60 will turn into 50. Neuropathy be gone!!

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@arcuri24 I can’t sit still either, glad I live across the street from the Y and on a park with a lake to walk. I think without neuropathy, I would be an obese old man with a cane. The illness forced me to get off my but. I just realized how true what you said about doctors being more pill pushers than exercise pushers is true. I even got silenced in a forum for suggesting it.

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Profile picture for jum13 @jum13

@ray666 I am 60, live alone. I would have balance issues if I stopped walking. I did very bad before I began exercising. I have fallen but rarely and due to things like ice. I do mat Pilates so getting off the ground isn’t an issue. My neuropathy keeps me from really feeling any knee pain or discomfort from the torn meniscus or arthritis so maybe I won’t have it.

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Hi, jum13 (@jum13)

I've had my share of falls, too, but so few I have a fleeting feeling of embarrassment when a doctor asks if I've fallen and I have to answer yes, but not since the year before last. I'll suspect the doctor is not believing me, as when a doctor asks how many drinks do I have in a week's time and (since I quit drinking 35 years ago) I have to answer none, suspecting once again he's not believing me. 🙂 From what you tell me, you're more active than I am. I meet with a PT once a week, and he expects I'll be doing some of our exercises on the other days of the week. I do, or at least I try to be good about doing those exercises on my own; some days I'm motivated, other days less so.

Cheers!
Ray (@ray666)

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Profile picture for Ray Kemble @ray666

Hi, jum13 (@jum13)

I've had my share of falls, too, but so few I have a fleeting feeling of embarrassment when a doctor asks if I've fallen and I have to answer yes, but not since the year before last. I'll suspect the doctor is not believing me, as when a doctor asks how many drinks do I have in a week's time and (since I quit drinking 35 years ago) I have to answer none, suspecting once again he's not believing me. 🙂 From what you tell me, you're more active than I am. I meet with a PT once a week, and he expects I'll be doing some of our exercises on the other days of the week. I do, or at least I try to be good about doing those exercises on my own; some days I'm motivated, other days less so.

Cheers!
Ray (@ray666)

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@ray666 don’t be embarrassed, who cares what they think. I tell my doc everything, at this age so what? Ha ha

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Profile picture for jum13 @jum13

@arcuri24 I can’t sit still either, glad I live across the street from the Y and on a park with a lake to walk. I think without neuropathy, I would be an obese old man with a cane. The illness forced me to get off my but. I just realized how true what you said about doctors being more pill pushers than exercise pushers is true. I even got silenced in a forum for suggesting it.

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@jum13 I, too, live about a block away from a Y. Unfortunately, their fees have gone up and although they have a Silver Sneakers program, my health care plan does not pay for it. But I am happy to exercise here at home with my dog watching from the sofa. I do Classical Stretch but modify it according to my needs. I also incorporate free weights. I believe we were born to move and that can be part of the healing process for neuropathy and other health issues. Yet, we must be patient with ourselves both in what we do and the outcomes we are aiming for. Of course, the pills might work almost instantly but they might complicate things down the road. You are lucky to be near a park with a lake as nature can be restorative.

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Profile picture for NJ Ed @njed

@alwynne You mention knee replacement. Been to two well-known orthopedic surgeons and both said they would not replace my bone-on-bone knees. With PN, fear of me falling on knee(s) and seriously damaging bone attached to replacement. No room for gel shots. I guess a common issue for us with PN. Few years back, my mom at 95 put a cushion on her chairs, helped her stand more easily at higher position. Wish you the best.

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@njed Thank you for your reply, I had the gel shots and they helped for a while. I am fortunate to have a recliner that helps me get up however it is very problematic when I go anywhere such as a cafe or restaurant etc the seating is usually too low for me to get up without help. (Although you do meet some lovely people that way!)

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I’m 82 & have had PN for over 15 years. I ride an e-bike about 20-40 miles 3 or 4 days a week. It’s great for my feet & for my head. Plus PT for balance & strength.

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Profile picture for jum13 @jum13

@ray666 don’t be embarrassed, who cares what they think. I tell my doc everything, at this age so what? Ha ha

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I agree, @jum13, who cares what they think? But with a doctor who has a good sense of humor (of whom I've two or three) I love holding back. When asked have I fallen recently, I like to say, "No comment. I want a lawyer." (Maybe I've been watching too many British murder mysteries. 🙂 ) –Ray )@ray666)

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Profile picture for arcuri24 @arcuri24

Hi Jum13 Your exercise regimen seems to be beneficial. As for one long workout or scattered throughout the day, I prefer mixing it up throughout the hours. I really can't sit still anyway and I have back pain from time to time so the movement helps neuropathy and spinal issues. Since I had my shin shave biopsy which is supposedly and hopefully in a healing or remodeling phase, I try to do more gentle, nerve gliding exercises. I am also at physical therapy 2x per week. So I can identify with NJEd because with an ailment or injury, the playing field must change. Sitting around cannot be an option for me both mentally and physically. Not too many doctors out there that will encourage exercise--they are trained nowadays to push medicines and shots. Exercise builds stamina, strength and a healthy outlook--priceless! No pill will give you that. Keep at it and your 60 will turn into 50. Neuropathy be gone!!

Jump to this post

@arcuri24 YES
Not too many doctors out there that will encourage exercise--they are trained nowadays to push medicines and shots. Exercise builds stamina, strength and a healthy outlook--priceless! No pill will give you that. Keep at it and your 60 will turn into 50!

REPLY
Profile picture for debbieod @debbieod

@arcuri24 YES
Not too many doctors out there that will encourage exercise--they are trained nowadays to push medicines and shots. Exercise builds stamina, strength and a healthy outlook--priceless! No pill will give you that. Keep at it and your 60 will turn into 50!

Jump to this post

I go to Planet Fitness 5 days a week and use about 50% of the equipment. I’m a 86 yr old male. When I meet a new person they are surprised at my age. Eat right, exercise, don’t smoke. I’m a retired pilot of 36 years and I always took care of my body. Just get off the couch and exercise, your body will thank you.

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Keep moving, not always an exercise. Just getting up and down. I purposely go downstairs every morning to the bathroom just to exercise my legs and feet. I still work but find I need to sit down several times as I do walk alot, not fast as my legs don't like me anymore. I have struggled with cramps alot. I have done weekly massage just to help my muscles. I have lost alot of muscle all over. I just turned 70 and figured some was age but I think there is more going on. I mow my yard even though I don't have too. I look for things to do. I have drop foot so exercise is challenging anyway. I try not to focus on anything but moving. I am recovering from colon surgery and I still sore, but I know that I need to move anyway. Let us know how your rehab goes. I have done physical therapy and with a good therapist it can really help. My neurologist suggested physical therapy.

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