Looking for long-term Transplant success stories

Posted by glm777 @glm777, Dec 9, 2025

My SIL is 37
Transplant at age 20
Recently had biopsy showing inflammation
12 plasma exchange treatments
Now protein in urine
Waiting for antibody blood work to come back.
He and my DD are in their mid 30’s and just found each other less than 2yrs ago. Please give me some hope that my SIL can live many more years!

Interested in more discussions like this? Go to the Transplants Support Group.

I am 44 years old. 2 years post liver transplant and doing well. I had a very complicated first year, but would do it again.

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Great news. Been doing a lot of reflecting myself. Congrats have a wonderful day.

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Profile picture for slow1 @slow1

I may not be long term but almost 2 years. I will say this. Pre-op was miserable but I finally focused on myself and what is important. I met a wonderful woman while I was at the worst of it. The day of our first date or supposed to be was the day I got the call for my Transplant. A year to the day we got married almost been married a year. I have a great family now and something to live for. For most people this is the one of the worst things that has happened them but for me it was the best. I now have direction, love and hope. All those I never had before, I was selfish and static. I know this isn't super inspirational but hey eat good, exercise and don't forget your meds. FYI your young if they go to take you off Cellcept have them heavily monitor you. They took me off for a month before a blood test and my levels took almost 6 months to regulate.

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@slow1

To all of you out there blessed to have been transplanted, today is my 5th rebirth day! 5 years since my liver- kidney transplant, felling great.
God bless you all as he has me.
FireCat

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Profile picture for slow1 @slow1

I may not be long term but almost 2 years. I will say this. Pre-op was miserable but I finally focused on myself and what is important. I met a wonderful woman while I was at the worst of it. The day of our first date or supposed to be was the day I got the call for my Transplant. A year to the day we got married almost been married a year. I have a great family now and something to live for. For most people this is the one of the worst things that has happened them but for me it was the best. I now have direction, love and hope. All those I never had before, I was selfish and static. I know this isn't super inspirational but hey eat good, exercise and don't forget your meds. FYI your young if they go to take you off Cellcept have them heavily monitor you. They took me off for a month before a blood test and my levels took almost 6 months to regulate.

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I am 35 yrs post liver transplant. I take tacrolimus. Was in my 20s when I had transplant. Have had wonderful life. Good luck. Best advice is take meds, do blood work, watch ur diet and exercise.

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Profile picture for slow1 @slow1

I may not be long term but almost 2 years. I will say this. Pre-op was miserable but I finally focused on myself and what is important. I met a wonderful woman while I was at the worst of it. The day of our first date or supposed to be was the day I got the call for my Transplant. A year to the day we got married almost been married a year. I have a great family now and something to live for. For most people this is the one of the worst things that has happened them but for me it was the best. I now have direction, love and hope. All those I never had before, I was selfish and static. I know this isn't super inspirational but hey eat good, exercise and don't forget your meds. FYI your young if they go to take you off Cellcept have them heavily monitor you. They took me off for a month before a blood test and my levels took almost 6 months to regulate.

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@slow1 Welcome to Mayo Clinic Connect! Lots of reasons for "congratulations"!
Ginger

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I may not be long term but almost 2 years. I will say this. Pre-op was miserable but I finally focused on myself and what is important. I met a wonderful woman while I was at the worst of it. The day of our first date or supposed to be was the day I got the call for my Transplant. A year to the day we got married almost been married a year. I have a great family now and something to live for. For most people this is the one of the worst things that has happened them but for me it was the best. I now have direction, love and hope. All those I never had before, I was selfish and static. I know this isn't super inspirational but hey eat good, exercise and don't forget your meds. FYI your young if they go to take you off Cellcept have them heavily monitor you. They took me off for a month before a blood test and my levels took almost 6 months to regulate.

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@tiabean
You are on your way to your own long term transplant success story! Two years with your new liver is fantastic, especially hearing that, "It gets better and better every day."

As for each of us with a transplant, there were struggles and hard times that we experienced along the way. Was there anything that you wished that you would have known ahead of time that might have helped prepare you for post transplant living?

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@rosemarya I think knowing about communities, like this one, are our there is immense. I would have taken the hardest times with more confidence that others had done it. The feeling that you are alone going through it is really rough.

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Profile picture for tiabean @tiabean

I am two years post liver transplant. It gets better and better every day. I know two years isn't that long, but every single day means so much to me. Living fully to honor my donor is a miracle. There were times I struggled, but I am still here. Organ donation is amazing, and I pray for your SIL.

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@tiabean
You are on your way to your own long term transplant success story! Two years with your new liver is fantastic, especially hearing that, "It gets better and better every day."

As for each of us with a transplant, there were struggles and hard times that we experienced along the way. Was there anything that you wished that you would have known ahead of time that might have helped prepare you for post transplant living?

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I am two years post liver transplant. It gets better and better every day. I know two years isn't that long, but every single day means so much to me. Living fully to honor my donor is a miracle. There were times I struggled, but I am still here. Organ donation is amazing, and I pray for your SIL.

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Profile picture for Ginger, Volunteer Mentor @gingerw

@luckee Welcome to Mayo Clinic Connect! Simply, wow! 46 years! That is difficult to imagine. How far the transplant community has come in that time! I hope your medical team is holding you up as an example of what can be accomplished, and that your case is written up somewhere.
Ginger

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@gingerw
As I always say, "I'm the LUCKIEST unlucky person I know!" : ) . . . and there is something to be said for a BIG family! We joke that we share EVERYTHING!! Ha! Ha! PS: I didn't have a medical team because I lived in Alaska. I was supposed to have it done in Seattle and the surgeon was fired so I ended up in San Francisco and glad I did!

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