Looking for info on Vagus nerve stimulator devices for insomnia

Posted by ltfh @ltfh, 1 day ago

Has anyone tried a Vagus Nerve Stimulator (VNS) device to help with insomnia? The research looks positive for helping fellow insomniacs calm the nervous system in preparation for sleep. (https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2828072) (https://pmc.ncbi.nlm.nih.gov/articles/PMC8192665/).
The studies used a device that attached to the ear (transcutaneous auricular VNS). I have only located one device that attaches to the ear (Nurosym) which is quite expensive ($800 range). Pulsetto is worn around the neck and is about $300. Just wondering if anyone has tried this approach to insomnia and if so, I would love to hear the feedback.

Interested in more discussions like this? Go to the Sleep Health Support Group.

Here is my personal opinion. I spent over 10K on the implanted version. It was designed for depression. Basically a pace maker device implanted in the chest and lead run up to the Vagus nerve on the side of your neck. That is the tough part require the neurosurgeon to go in and strip the Mylan sheath off the nerve. Wrap the lead around the nerve. Although it was marketed for severe depression that includes symptoms of lack of sleep. It did nothing but fail. Took 2 years to have removed and further down the body have had lasting ill effects. If you want to spend money on an external device that is up to you. I had what was the Gold standard you couldn't get more direct stimulation. It was adjustable in the clinic and yes you could feel the pulses when turned up. Very sorry I tried given it did zip and the effects of having it removed. Just giving some background on real stimulator. In my own opinion they are just taking your money. I still can't sleep but would not even consider any type of device even if it just an external short period use. There is so much that goes into good sleep which I had at 8.5hr and could not be woken to 2.5hr if I am lucky and a catch up day 1 day a week. I had an entire sleep cognitive therapy at U of M which covers almost everything you read about. It all comes down to quieting the thoughts you can take you choice from breathing, meditation, etc. For me it's turning off the to do list and I heard some advice from a professional on a podcast that sound counter intuitive and different from journaling and was to write ever item down on you mental to do list before bed. I'm thinking that would just bring front and forward. Explained no its a loop that will continue to run, if write down it is like closing the tabs on your computer giving your brain permission to close those items out for the night. I think with severe insomnia your going to have to add a few other top useful hacks that personally work but it is a start and I use the Calm app with with the bilateral stimulation headphones and other found on there and start well before 1 hr before even thinking of getting into that ideal bedroom.

REPLY

I have migraines and chronic insomnia. My movement disorder specialist suggested trying one of the vagus nerve stimulators. I’m certainly willing to give it a try, but I’m certainly not willing to undergo any further surgical procedures. I have Parkinson’s with lots of complications such as gastroparesis, chronic insomnia, chronic pain from dystonia in my hamstrings so it’s very difficult to sit down. It has been for nearly 4 years. I had deep brain stimulation surgery, but the tuning of the DBS hasn’t quite gotten into a point where it has affected the dystonia. I have trouble sleeping at night because of the pain levels. Just finding a comfortable position is very difficult.

REPLY
Please sign in or register to post a reply.