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Looking for help and support- OJ (isoleucyl-TRna synthetase) AB
Good morning,
I have been very sick for 12 months now and I had the myositis blood panel completed and have a high OJ (isoleucyl-tRNA synthetase) antibody. My symptoms are muscle pain, low-grade fever, flu-like symptoms, Raynaud's syndrome, fatigue, brain fog, etc.
I get really sick if I overdo any activity, get stressed, get overheated, or do physical activity. Such as cleaning the house, over-exerting myself by taking a walk, and enjoying a day at the beach. It kicks in about 24- 36 hours after exertion and I am in chronic pain for several days and can barely get off the couch or even sit up. My doctors (neurologist and rheumatologist) have no idea what to do since my other blood work does not show positives for anything else except low white blood counts and my muscle biopsies came back normal.
Does anyone have these same symptoms and the OJ antibody?
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@crissihairston Yes, I hate it,too, when they repeat lab tests and all. But, as I’ve learned, all hospitals have different sets of ‘normal” values, so it works better for the doctor. Have you seen the discussion on visiting Mayo? https://connect.mayoclinic.org/discussion/share-your-mayo-clinic-tips-in-the-visiting-mc-discussions/
There should be some good tips for you!
Thank you for the link! I have my first appointment Nov20 ! I need to start booking the trip . Isn’t there a site to give discount for Mayo? Looks like I will be spending Thanksgiving with hubby at Mayo. And our 7 Year anniversary
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2 Reactions@crissihairston, to get free concierge help with finding accommodation, travel plans, shuttles, things to do and more, contact Mayo Clinic Concierge Services
https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services
Regarding discounts, many of the hotels and other services offer Mayo patient discounts.
I recommend that as you prepare for your trip you join the discussions in the Visiting Mayo Clinic support group here https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/
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1 ReactionHello,
I have the exact same symptoms. I was on the couch all last week from cleaning my shower. I am having difficulty with finding information and assistance with things. I just feel lost and alone. I was diagnosed with anti-oj and mi2. I am open to speaking with others with a similar profile as mine. I have heard that anti-oj and mi2 in combination are pretty rare. I appreciate reading your post because it helps me discern what markers cause what. Feel free to contact me if you would like to discuss further.