Looking for experiences - total colectomy

Hello everyone from Canada,

First post on the community that a fellow cancer survivor made me discovered today. I have a pretty rare profile that I have tried to summarize in my bio.

I am posting in this group because due to my rare genetic mutation (PTEN) I had recently my first colonoscopy with biospies (the gastro saw 100+ polyps). The lab results came back mentioning precancerous polyps, so a total colectomy has been suggested to me by the gastroenterologist. It is not something urgent, I don't have cancer.

So, in order to help me to take a decision I have begun to educate myself about colon stuff after learning so much about breast cancer, and I would really appreciate if you would willing to share what is life for you post surgery.

I am well aware that each of us is unique, but I am looking for real, daily struggles/challenges/issues, etc. that you have to deal with. I am very reluctant to have the surgery, because I am already dealing with many things due to my rare genetic mutation. And at the same time of course I am aware of the risks of not having the surgery.

I met with my surgeon yesterday, he explained to me what would look like the surgery, I have read the patient guide post surgery during hospitalization. So I guess that I need know patients experiences to complete the loop. 🙂