1. < Digestive Health

Looking for advice..hemochromatosis

Posted by Nothing Helps @oliverlaurena, Apr 27, 2014

Looking for advice...I am 37 years old. For the last two years I have been experiencing food intolerances and mouth sores. The doctors have run all the lab work possible, allergy tests, and have done a colonoscopy. Nothing has been found. The only thing that seems to help is not eating gluten. But, even with that I still have really bad diarrhea around my period. This month the diarrhea is so bad I have had bleeding hemorrhoids for a week now. Taking my breath away pain.....Please HELP...

Interested in more discussions like this? Go to the Digestive Health Support Group.

psumom | @psumom | 1 day ago
In reply to @microcos "I was diagnosed several years ago. I had intermittent fatigue, joint pain, hemorrhoids, I seem to..." + (show)
@microcos

I was diagnosed several years ago. I had intermittent fatigue, joint pain, hemorrhoids, I seem to be getting sores from biting my cheek, although some were not from a bite injury because they weren't on my inner cheek.. I constantly had digestive noises. One day I started having difficulty with my eyesight while reading. I'm probably missing other issues

I tested high ferritin, very high saturation, slightly anemic. I went out of town to get genetic testing because I was told I had to wait, with no timeframe, to get an appointment in town.

I did a year, 1 unit of blood every 2 weeks. Now yearly I do 1 to 3 donations. My saturation can still be very high. My ferritin target is 50. I still have intermittent joint pain. I bite my cheek stil occasionally which results in a blister. Intermittent fatigue, I woke up freezing a few times even though it's not cold

And more that I am forgetting, ....... Oh.. brain fog .....

Jump to this post

Good to read your much better. I especially noted the eyesight issue. Lately I have some problem but then I’m old and maybe cataracts.

REPLY
psumom | @psumom | 1 day ago
In reply to @microcos "I was slightly anemic when I was diagnosed. You've been genetically tested ? If not, you..." + (show)
@microcos

I was slightly anemic when I was diagnosed.

You've been genetically tested ?

If not, you should, regardless,
if your brothers have it.

Jump to this post

My mother was from Ireland. Ireland tests for hemochromatosis because it is extremely prevalent in that population. By chance my GP put in a genetic test because he was stumped by why I have essential vibrations. Bingo. This was just discovered and I’m 77.

REPLY
View MoreView Less
Please sign in or register to post a reply.