Long Term PAC and PVC Suffer. Need your support and guidance

Posted by rr1967 @rr1967, May 23, 2023

Hello everyone. Thank you for reading this below is my story:

I have been dealing with PVCs and PACs for almost 20 years. They flare up once per year usually. I have had Zio Patch monitors, tons of EKGs, a stress echo four years ago, two heart CT scans two decades ago, many ER visits, etc, etc. All results were normal with the exception of showing PACs and PVC. My burden has always been below 2% when they flare up.
25-e some stats:
1. I am 55 and in good health
2. Borderline blood pressure: usually around 120-130/75-85 most normal days.
3. Borderline type 2 diabetic.
4. I do suffer from chronic anxiety and depression. Twenty years ago I suffered many panic attacks for the course of a year. But they have gone away. Mostly I deal with almost daily anxiety and worry.
5. Non smoker, no drugs
6. I do drink alcohol ( wine or beer) on weekends with my wife, only at night.
7. I am at a healthy weight. Cholesterol and Triglycerides all normal.
8. Resting heart rate: 50-60. Cardio doc states that this heart rate is normal for me.

Well my most recent flare up started two weeks ago and they seem worse. I feel the extra beat the moment I wake up they go on all day until I go to bed. I went to the ER and they did another EKG and ran a bunch of blood work. Of course...all normal. Diagnosis: PACs. Electrolytes also all normal.

In the last week, I have noticed my skipped beats increasing when I move around, go grab groceries, go for a walk, even exercise. This has me more scared than ever. My regular doctor told me not to worry, but I am seeing an electrophysiologist (EP) tomorrow. I did see an EP two years ago and he told me I was fine and prescribed Flecianide to take as needed. I saw the side effects and they scared me off so I never tried them. Eventually, the extra beats went away.

I have also tried Metropolol and they did not work. They also made my heart rate slower so my cardio doc told me to stop taking them.

But as stated, they extra beats are back and I am more scared then ever, especially with them increasing with movement or exercise. I have never fainted or felt dizzy from these. I only catch my breath and feel extra alerted.

Finally, my palpitations also seem to increase considerably after I eat a meal. Is this normal?

Any advice, recommendations, encouragement, support please.

Thank you and my apologies for any typos or writing errors.
RR

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@rr1967

Hello JC76.
I had a stress echo about 4 years ago...all was perfectly normal. I have been told many times that stress will increase PVCs and PACs. I have found that exercise does little to reduce my extra beats. I get scared when I have several in a row and it happens for an hour or so. I have been told that this is not Afib, but just a run of PACs or PVCs.
Thank you!
RR

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My cardiologist recently told me that stress really isn’t related to pvc’s. Omg … who do you believe! When my stress level was high that was when they started. Now that the stress is decreased, so did the pvc’s!

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@jc76

@rr1967
Have you had a echocardiogram? It can check the EF of your heart. That would be good to know as a good EF should reduce your stress.

I have tons of PVCs. They cause me a lot of stress which causes more PVCs. Was this relayed to you? Stress as well as eating can trigger PVCs. I find if I exercise my PVCs go down.

I have a ICD/Pacemaker since 2006. I have many shocks but now I like having the ICD/Pacemaker in my chest as without it I would not be typing this. I do not have exercise restrictions the opposite to keep the heart as strong as can be. I take Entresto and Carvididol. Two great heart medications that can really helped those with HF.

Too long I went not treating my HP and I think over the decades caused the HF. My BP now is the opposite as is usally around 100-60. So a little dizzy if stand up to soon. But deal with it to reduct pressure on heart if you have high BP.

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Hello JC76.
I had a stress echo about 4 years ago...all was perfectly normal. I have been told many times that stress will increase PVCs and PACs. I have found that exercise does little to reduce my extra beats. I get scared when I have several in a row and it happens for an hour or so. I have been told that this is not Afib, but just a run of PACs or PVCs.
Thank you!
RR

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@jc76

@713j Yes take Co-Q-10. Back in 2016 the cardiologist (Mayo Jacksonville) who prescribed a statin to me recommended I take co-q-10 as you can get muscle aches from taking the statin.

Then my heart failure docotor (Mayo Jacksonville) a couple of years ago recommended I take Co-!-10 for my heart failure. He suggested 200 mg.

What I take is a combination of Ubiquinol and Co-q-10. Ubiquinol is a much easier absorbed version of Co-Q-10 but much more expensive. I take 1 soft gel of Ubiquionol 100 mg. in morning. Then I take 2 more of pills of the regular Co-Q-10 (one at lunch/dinner) at 100 mg each. So I am taking 300 mg a day.

You can find the Ubiquionol at some good prices at Qunol, and Life Extension. VitaCost is also a huge supplier of vitamins and supplements and carries almost all brands as well as their own. It can be expensive so you can see why I do a combination. I was using Puritan Pride but unless they were have special sale found their prices for Ubiquionol expensive. Their prices for Co-Q-10 though are pretty good.

I never had the muscle aches as was already taking Co-Q-10 when told to take it by first cardiologist. I am kind of a supplement/vitamin fanatic who reads and researches a lot. So by the time my doctors recommend something to me like fish oil, magnesium, etc., I am already taking it.

My wife when she got prescription for statin did get muscle aches. I suggested to her try co-q-10 and she did. She told me it did help reduce the muscle soreness and eventually soreness went away. The heart is a muscle so what ever the Co-Q-10 does for muscles probably does same for heart and why my heart failure doctor wanted me to use it.

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It is a waste of money to buy Ubiquinone vs Ubiquinol. Ubiquinone is not bio available when a person is older than their 40s. Saving a few bucks on an item that is not absorbed is just a waste. I take 800 mg ubiquinol a day. Japanese researchers looked into very high doses of ubiquinol (4K mg/day) and found it useful for heart failure. I gave my 7 year old 40# dog 200 mg a day to cure her heart murmur. Look at additives in your supplements. Qunol uses an emulsifier called polysorbate 80 which is a neurotoxin. Blue bonnet uses an emulsifier called carrageen with destroys healthy naturally occurring probiotic called akkermansia muciniphila.
Magnesium citrate is used to helped the bowels. Magnesium taurate is used for heart issues. There are I think 7 or 8 different kinds of magnesium.
"Supplemental ubiquinol in patients with advanced congestive heart failure". https://pubmed.ncbi.nlm.nih.gov/19096107/
Abstract

Patients with CHF, NYHA class IV, often fail to achieve adequate plasma CoQ10 levels on supplemental ubiquinone at dosages up to 900 mg/day. These patients often have plasma total CoQ10 levels of less than 2.5 microg/ml and have limited clinical improvement. It is postulated that the intestinal edema in these critically ill patients may impair CoQ10 absorption. We identified seven patients with advanced CHF (mean EF 22%) with sub-therapeutic plasma CoQ10 levels with mean level of 1.6 microg/ml on an average dose of 450 mg of ubiquinone daily (150-600 mg/day). All seven of these patients were changed to an average of 580 mg/day of ubiquinol (450-900 mg/day) with follow-up plasma CoQ10 levels, clinical status, and EF measurements by echocardiography. Mean plasma CoQ10 levels increased from 1.6 microg/ml (0.9-2.0 microg/ml) up to 6.5 microg/ml (2.6-9.3 microg/ml). Mean EF improved from 22% (10-35%) up to 39% (10-60%) and clinical improvement has been remarkable with NYHA class improving from a mean of IV to a mean of II (I to III). Ubiquinol has dramatically improved absorption in patients with severe heart failure and the improvement in plasma CoQ10 levels is correlated with both clinical improvement and improvement in measurement of left ventricular function.

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@jc76

@713j Wow what a great supplement. It contains all of the supplements that I have read to help with PVCs and PACs.

I would love to take it as I take several different supplements. The only thing I need to check is the potassium. When I contacted my EP about reading that postassium was good for reducing PACs and PVCs then saw on my lab test I was already at the high end of potassium and said was not recommend I take a supplement for it. They did recommend the magnesium and to try the Taurine.

The heart calm does a good job of including a lot of the supplements recommending not only by MCC posters but medical doctors as well. The Taurine, Magnesium, are things I take and will check again about the potassium and see if the leve in the supplement is something of a level my EP would allow.

Thanks for the information on Heart Calm.

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Your welcome.

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@713j

It’s made by(vital biologics). You can go on there website for review. Looking forward to your analysis.

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@713j Wow what a great supplement. It contains all of the supplements that I have read to help with PVCs and PACs.

I would love to take it as I take several different supplements. The only thing I need to check is the potassium. When I contacted my EP about reading that postassium was good for reducing PACs and PVCs then saw on my lab test I was already at the high end of potassium and said was not recommend I take a supplement for it. They did recommend the magnesium and to try the Taurine.

The heart calm does a good job of including a lot of the supplements recommending not only by MCC posters but medical doctors as well. The Taurine, Magnesium, are things I take and will check again about the potassium and see if the leve in the supplement is something of a level my EP would allow.

Thanks for the information on Heart Calm.

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@dennis123

#1- metoprolol, for people with relatively low HR, can make you dizzy and almost faint. Happened to me.

#2- Ask the doc for Flecainide. I had PACs starting after an ablation that took care of afib and was prescribed 100mg 2x/day. I split pill in half to start and it knocked out the PACs. You'll read bad stuff about Flecainide but if you do not have heart disease or havent had a heart attack, it is a great low side effect drug. I have trouble with a lot of drugs and was expecting nothing better with Flec, but I went from a few hundred to a thousand PACs a day to one or two.

#3- Get your anxiety under control. It is a condition not a disease and it is 100% possible to control. Anxiety is one cause of PACs and tachycardia. Metoprolol caused my anxiety after I stopped it and I had bouts of tachycardia until I got it under control mentally. Buy this book "At last a life" by Paul David.

My PACs may be caused by the ablation irritating the heart and they may go away on their own so I will pause the Flec at some point to gauge condition, but am glad so far that Flec knocks them out so quickly.

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@dennis123 I find a lot of medical professionals do not look at the stress level causing more PVCs and PACs. I see you mentioned it here.

I have passed this along to my EP and HF doctor many times. What I am finding is a drug that helps with one issue causes more of another. I found that with Mexiltine (spell) reducing the VTAC but causing a lot more PACs and PVCs. I am going to buy the book you mentioned and look into the Flecaininde with my EP after I have another holter monitor.

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I take magnesium at night and drink low sodium V-8 for potassium. Walk every day. Don't eat after 5pm and stay upright after eating. Simethicone (Gas-X chewable) for gas. Quigong and tai chi for breathing. The main challenge is stress because life is, well, stressful for all of us at some times.

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#1- metoprolol, for people with relatively low HR, can make you dizzy and almost faint. Happened to me.

#2- Ask the doc for Flecainide. I had PACs starting after an ablation that took care of afib and was prescribed 100mg 2x/day. I split pill in half to start and it knocked out the PACs. You'll read bad stuff about Flecainide but if you do not have heart disease or havent had a heart attack, it is a great low side effect drug. I have trouble with a lot of drugs and was expecting nothing better with Flec, but I went from a few hundred to a thousand PACs a day to one or two.

#3- Get your anxiety under control. It is a condition not a disease and it is 100% possible to control. Anxiety is one cause of PACs and tachycardia. Metoprolol caused my anxiety after I stopped it and I had bouts of tachycardia until I got it under control mentally. Buy this book "At last a life" by Paul David.

My PACs may be caused by the ablation irritating the heart and they may go away on their own so I will pause the Flec at some point to gauge condition, but am glad so far that Flec knocks them out so quickly.

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@windyshores

@713j I understand you were looking for help with PVC's and PAC's but I think the book applies. These are all electrical disturbances with common triggers and some common approaches, in my experience. But ask your doctor!

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Thanks

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@713j

I was looking for something to control PVCs and PACs.

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@713j I understand you were looking for help with PVC's and PAC's but I think the book applies. These are all electrical disturbances with common triggers and some common approaches, in my experience. But ask your doctor!

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