Long Term PAC and PVC Suffer. Need your support and guidance

Posted by rr1967 @rr1967, May 23, 2023

Hello everyone. Thank you for reading this below is my story:

I have been dealing with PVCs and PACs for almost 20 years. They flare up once per year usually. I have had Zio Patch monitors, tons of EKGs, a stress echo four years ago, two heart CT scans two decades ago, many ER visits, etc, etc. All results were normal with the exception of showing PACs and PVC. My burden has always been below 2% when they flare up.
25-e some stats:
1. I am 55 and in good health
2. Borderline blood pressure: usually around 120-130/75-85 most normal days.
3. Borderline type 2 diabetic.
4. I do suffer from chronic anxiety and depression. Twenty years ago I suffered many panic attacks for the course of a year. But they have gone away. Mostly I deal with almost daily anxiety and worry.
5. Non smoker, no drugs
6. I do drink alcohol ( wine or beer) on weekends with my wife, only at night.
7. I am at a healthy weight. Cholesterol and Triglycerides all normal.
8. Resting heart rate: 50-60. Cardio doc states that this heart rate is normal for me.

Well my most recent flare up started two weeks ago and they seem worse. I feel the extra beat the moment I wake up they go on all day until I go to bed. I went to the ER and they did another EKG and ran a bunch of blood work. Of course...all normal. Diagnosis: PACs. Electrolytes also all normal.

In the last week, I have noticed my skipped beats increasing when I move around, go grab groceries, go for a walk, even exercise. This has me more scared than ever. My regular doctor told me not to worry, but I am seeing an electrophysiologist (EP) tomorrow. I did see an EP two years ago and he told me I was fine and prescribed Flecianide to take as needed. I saw the side effects and they scared me off so I never tried them. Eventually, the extra beats went away.

I have also tried Metropolol and they did not work. They also made my heart rate slower so my cardio doc told me to stop taking them.

But as stated, they extra beats are back and I am more scared then ever, especially with them increasing with movement or exercise. I have never fainted or felt dizzy from these. I only catch my breath and feel extra alerted.

Finally, my palpitations also seem to increase considerably after I eat a meal. Is this normal?

Any advice, recommendations, encouragement, support please.

Thank you and my apologies for any typos or writing errors.
RR

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Profile picture for jc76 @jc76

@712
Sorry just been dealing with heart failure for 24 years and abbreviations are something I overlook.

EF stands for Ejection Fraction. This is the perecentage (%) amount of blood that is pumped out of heart once it is filled with blood. Normal is around 60-70 and I think when it goes below 50 they considered it heart failure.

The term heart failure is not a good term and almost every cardiologist will say so. It only means that the heart is not pumping out the normal % of blood from LV. The LV (Left Ventricle) is the ventricle that sends blood throughout body. In my opinion the name should be changed to reduced heart function (RHF) as the term heart failure implies the heart has failed and it has not until it actually fails to pump enough blood to live.

You can have heart failure in the RV (right ventricle and/or LV (left ventricle). I only have it on the LV. It is why I can exercise without restriction and have little to no side affects from the LV heart failure. Cardiovascular disease nor a heart attack caused my heart failure. It was cardiomyopathy that they determined was caused by a virus than left scar tissue in my heart. I screwed up my electrical system and I have a AICD/Pacemaker.

I was advised to take the following supplements. Co-Q-10 and Fish Oil by my heart failue doctor. And my EP (electrophysiologist) wants me to take 400 mg of Magnesium Citrate.

I don't think I have any foods that trigger my PVCs but there may be and just don't know it. I know I try to avoid caffine as it speeds up your heart.
Hope this information helped.

Jump to this post

Thank you.

REPLY

@712
Sorry just been dealing with heart failure for 24 years and abbreviations are something I overlook.

EF stands for Ejection Fraction. This is the perecentage (%) amount of blood that is pumped out of heart once it is filled with blood. Normal is around 60-70 and I think when it goes below 50 they considered it heart failure.

The term heart failure is not a good term and almost every cardiologist will say so. It only means that the heart is not pumping out the normal % of blood from LV. The LV (Left Ventricle) is the ventricle that sends blood throughout body. In my opinion the name should be changed to reduced heart function (RHF) as the term heart failure implies the heart has failed and it has not until it actually fails to pump enough blood to live.

You can have heart failure in the RV (right ventricle and/or LV (left ventricle). I only have it on the LV. It is why I can exercise without restriction and have little to no side affects from the LV heart failure. Cardiovascular disease nor a heart attack caused my heart failure. It was cardiomyopathy that they determined was caused by a virus than left scar tissue in my heart. I screwed up my electrical system and I have a AICD/Pacemaker.

I was advised to take the following supplements. Co-Q-10 and Fish Oil by my heart failue doctor. And my EP (electrophysiologist) wants me to take 400 mg of Magnesium Citrate.

I don't think I have any foods that trigger my PVCs but there may be and just don't know it. I know I try to avoid caffine as it speeds up your heart.
Hope this information helped.

REPLY
Profile picture for jc76 @jc76

@rr1967
Have you had a echocardiogram? It can check the EF of your heart. That would be good to know as a good EF should reduce your stress.

I have tons of PVCs. They cause me a lot of stress which causes more PVCs. Was this relayed to you? Stress as well as eating can trigger PVCs. I find if I exercise my PVCs go down.

I have a ICD/Pacemaker since 2006. I have many shocks but now I like having the ICD/Pacemaker in my chest as without it I would not be typing this. I do not have exercise restrictions the opposite to keep the heart as strong as can be. I take Entresto and Carvididol. Two great heart medications that can really helped those with HF.

Too long I went not treating my HP and I think over the decades caused the HF. My BP now is the opposite as is usally around 100-60. So a little dizzy if stand up to soon. But deal with it to reduct pressure on heart if you have high BP.

Jump to this post

What is EF? Do you take supplements?what foods trigger your PVCs?
Thanks

REPLY

@rr1967
Have you had a echocardiogram? It can check the EF of your heart. That would be good to know as a good EF should reduce your stress.

I have tons of PVCs. They cause me a lot of stress which causes more PVCs. Was this relayed to you? Stress as well as eating can trigger PVCs. I find if I exercise my PVCs go down.

I have a ICD/Pacemaker since 2006. I have many shocks but now I like having the ICD/Pacemaker in my chest as without it I would not be typing this. I do not have exercise restrictions the opposite to keep the heart as strong as can be. I take Entresto and Carvididol. Two great heart medications that can really helped those with HF.

Too long I went not treating my HP and I think over the decades caused the HF. My BP now is the opposite as is usally around 100-60. So a little dizzy if stand up to soon. But deal with it to reduct pressure on heart if you have high BP.

REPLY
Profile picture for 713j @713j

Do you take any blood pressure medicine or heart medication? I take a product called heart calm. 300mg of magnesium made up of taurine,malate,glycine. Just started.

Jump to this post

Yes Enalapril Ace Inhibitor but no High blood pressure medicine. Have naturally low BP..

REPLY

Look into taurine and L-arginine, along with magnesium. They have helped me immensely with PVCs and PACs. But do your own home work.

REPLY
Profile picture for dizzyprizzy @dizzyprizzy

Magnesium is the key to PVCs. Men need 420 mcg per day. Best taken as food as supplements are roughly absorbed at roughly 10% of the mcg on the label.
I feel PVCs. It may be normal but sometimes it is not OK in my case.

To get enough magnesium I do this everyday. Breakfast: home made oatmeal or whole wheat breakfast biscuits, 1\4 cup walnuts, 1\8 cup almonds 1\8 cup raisins or dried tart cherries and 1-2 teaspoons honey. 8-10 ounces coffee. I use oat milk on the biscuit days as I am allergic to dairy products. Either breakfast takes 7 minutes to make. The magnesium load in the morning carries me all day long.

Jump to this post

Do you take any blood pressure medicine or heart medication? I take a product called heart calm. 300mg of magnesium made up of taurine,malate,glycine. Just started.

REPLY

Magnesium is the key to PVCs. Men need 420 mcg per day. Best taken as food as supplements are roughly absorbed at roughly 10% of the mcg on the label.
I feel PVCs. It may be normal but sometimes it is not OK in my case.

To get enough magnesium I do this everyday. Breakfast: home made oatmeal or whole wheat breakfast biscuits, 1\4 cup walnuts, 1\8 cup almonds 1\8 cup raisins or dried tart cherries and 1-2 teaspoons honey. 8-10 ounces coffee. I use oat milk on the biscuit days as I am allergic to dairy products. Either breakfast takes 7 minutes to make. The magnesium load in the morning carries me all day long.

REPLY
Profile picture for mpeters @mpeters

You might benefit from seeing an electrophysiologist ( specialized cardiologist). A friend had high burden of pvc’s , 25%, and the EP said since they were coming from the upper chambers of the heart, they were doing no harm.

Jump to this post

PVCs come from the lower chambers of the heart. PACs come from the upper.

REPLY
Profile picture for denisek1971 @denisek1971

Hello, I’m a 53 yo woman in pretty good health—on the outside with normal BMI. I don’t have high blood pressure. Never smoker, exercise a bit less than I should lately, cholesterol is borderline, and I have about one drink a month. I do have autoimmune problems and have taken Plaquenil and colchicine briefly, but I’m currently not taking anything. I also had a long wedge resection surgery in the summer for a lung nodule (benign, thankfully). That was the most significant surgery I’ve undergone with the exception of a C-section delivery about 15 years ago.

However, since February 4, I’ve had a heavy burden of PVCs at 23.8% that I have never ever had in my life before. They put me on atenolol which made it worse. They also prescribed flecainide and then told me not to take it after I told him that my BP and my heart rate were really low with the other medication. I go to see an EP in two weeks. Echo was done and came out normal.
I just want to let you know that, even though my PVCs are continuing and it’s driving me, absolutely crazy, I have read from a lot of people that you will be OK and I believe that. It’s very common, and it sounds like if they continue to increase that eventually people get the catheter ablation— if they can’t tolerate the medicine. So, I looked up catheter ablation and it looks like a lot of people who seem healthy on the outside have some kind of problem with their electrical functioning in their heart. My echo was completely normal, but I had PVCs the whole time they were doing it.
Have you thought about that heart calm supplement ? I’m going to give it a try because at this time I just want them to stop so bad and the ingredients look healthy.

Although I know, these PVC’s are incredibly frustrating, it sounds like they will not treat them until they reach a higher level or a higher burden.

In the meantime, I know that when I think of being healthy, I think of vigorous exercise and eating healthy with low-fat diet, lots of , veggies, etc. However, I think that I need to start reconceptualizing my vision of health to make sure that it not only includes exercise and eating right, but that I also do things like yoga and making sure that I can get enough rest.
I think that one I was growing up the importance of rest and relaxation was not stressed enough.
I wish you luck and hope your PVC burden does not get any higher. 😌

Jump to this post

You might benefit from seeing an electrophysiologist ( specialized cardiologist). A friend had high burden of pvc’s , 25%, and the EP said since they were coming from the upper chambers of the heart, they were doing no harm.

REPLY
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