Long Term PAC and PVC Suffer. Need your support and guidance
Hello everyone. Thank you for reading this below is my story:
I have been dealing with PVCs and PACs for almost 20 years. They flare up once per year usually. I have had Zio Patch monitors, tons of EKGs, a stress echo four years ago, two heart CT scans two decades ago, many ER visits, etc, etc. All results were normal with the exception of showing PACs and PVC. My burden has always been below 2% when they flare up.
25-e some stats:
1. I am 55 and in good health
2. Borderline blood pressure: usually around 120-130/75-85 most normal days.
3. Borderline type 2 diabetic.
4. I do suffer from chronic anxiety and depression. Twenty years ago I suffered many panic attacks for the course of a year. But they have gone away. Mostly I deal with almost daily anxiety and worry.
5. Non smoker, no drugs
6. I do drink alcohol ( wine or beer) on weekends with my wife, only at night.
7. I am at a healthy weight. Cholesterol and Triglycerides all normal.
8. Resting heart rate: 50-60. Cardio doc states that this heart rate is normal for me.
Well my most recent flare up started two weeks ago and they seem worse. I feel the extra beat the moment I wake up they go on all day until I go to bed. I went to the ER and they did another EKG and ran a bunch of blood work. Of course...all normal. Diagnosis: PACs. Electrolytes also all normal.
In the last week, I have noticed my skipped beats increasing when I move around, go grab groceries, go for a walk, even exercise. This has me more scared than ever. My regular doctor told me not to worry, but I am seeing an electrophysiologist (EP) tomorrow. I did see an EP two years ago and he told me I was fine and prescribed Flecianide to take as needed. I saw the side effects and they scared me off so I never tried them. Eventually, the extra beats went away.
I have also tried Metropolol and they did not work. They also made my heart rate slower so my cardio doc told me to stop taking them.
But as stated, they extra beats are back and I am more scared then ever, especially with them increasing with movement or exercise. I have never fainted or felt dizzy from these. I only catch my breath and feel extra alerted.
Finally, my palpitations also seem to increase considerably after I eat a meal. Is this normal?
Any advice, recommendations, encouragement, support please.
Thank you and my apologies for any typos or writing errors.
RR
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
I have PVC’s and take Flecanide 2 x day and
Diltiazem 45 mg at bedtime. So far both of these have worked for me.
Consider another cardiologist for a second opinion regarding your care. Preferably outside the group that you are now in.
You might want to consider Valsalva/Vagul maneuvers. There are several that can be found on the internet. Also, I posted one that's worked for me when Tachycardia flares up ... I think it's in the Tachycardia discussion topic.
There is some evidence that statins cause memory issues as well. 😔
I know this is an old post but just joined and dealing with PVCs for 30+ years. Was recently and very casually told by my cardiologist after my first ever stress echo that I also have tachycardia. She put me on metoprolol also - took it for one day and was 100x worse. That was more than a year ago. Haven’t been back.
I’m 65, active, thin, former smoker, was infected with botulism poisoning from Botox injections 12 years ago so I have small fiber neuropathy and some neuromuscular damage but functioning fairly normally now with daily aspirin for pain from facial nerve damage. I don’t believe this impacted my heart but no way of knowing for certain as cardiologists really don’t understand the mechanism of botulinum toxins when they spread beyond the injection site and impact the CNS.
I’m just learning about Qunol and magnesium taurate - about to start taking both along with potassium but I agree with other posters: #1 aggravator is food - I’m on a clean diet most of the time and immediately notice increase in PVCs with alcohol, especially wine. Beer is an alternative that does not aggravate as much but wheat beers are out of the question. I have been told Bud light is made with rice while all others are made with wheat (although there’s wheat in all). A wheat beer will drop my heart rate to dangerous levels after 1 and I passed out the last time I had one. I try to eat loads of fresh veggies, nothing processed, all organic, no additives, preservatives, msg, etc. I am also dairy free now. Brocolli and celery are my hearts best friend now.
#2 100% is stress as others have noted. I have a MAJOR flare up right now and I know it’s largely stress induced so I’m really sticking to diet and trying to avoid other aggravators.
#3 SLEEP which is a catch 22 for me as when the PVCs are flaring, sleep is difficult but getting to bed early (before 10) and getting at least 8 hours consistently helps.
I read through most of the comments but if anyone has any personal or updated suggestions, I’d certainly welcome them. Thank you.
How high is your cholesterol? I am almost 76 and I get a blood test 1X a year and for years have had my cholesterol 299 or a bit less at times. I have read negative things about statins and have never taken. The first test I had was about 17 yrs ago and it was 299, and have lost 30 lbs and kept off many years but my cholesterol is still in that range.
I have read, and doctors of course say different, that people who have high cholesterol actually live longer. Investigate yourself and decide for yourself what you believe. I am female 5 ft 5 inches and weigh 120 lbs. I chop, cut grass with a mower without power, and saw down weeds usually 5 times a week and then walk downtown up and down steep hills at age 75. I take no meds.
@adam1000
I have been taking statins for about 10 years now. I too was never told by anyone that statins could cause PVCs. I am sure going to start asking questions now as I have to take medications to lesson the PVCs.
I had an ablation for afib, which cured the afib, but a couple months after I started having pacs. Doc gave me flecainide and its been quiet since then. Only side effect for me is maybe a little fatigue. People get their panties in a bunch over a study where flecainide caused problems in people with diagnosed heart disease or post heart attack. Consequently its not prescribed to those people anymore. For people with PVC's, PAC's and paroxysmal AFIB it is great, although the pills taste really bad if it doesnt go down quick.
Metoprolol caused me way more side effects including near syncope, where I almost passed out due to HR too low.
Statins gave me same issues, including afib, so I had to stop.
I also suffer from PACs and PVCs. 6 years ago I was diagnosed with high cholesterol and went on statins. Two months later I was in the ER with PVCs. Not one person would say that it was due to the statins but I decided to get off of that. I was back to normal within 2 months no heart issues at all. Just last year I got my blood work done and my cholesterol was high. I tried statins again and 6 weeks later I was in the ER for PACs. Now I have a dilemma where I have high cholesterol and when I take any medication to lower it even medication like zetia (which is not a statin), my body does not seem to like the lower cholesterol and it responds with PVCs or PACs. I just recently decided to get off of it again because I cannot live with my heart flip-flopping every 5 minutes. I am slowly getting better each day that goes by without taking a statin. I'm going to visit my doctor next month and I honestly do not know what to tell him. I can sympathize with all of you though because for those who never have had a "palpitation", they don't understand how disturbing it is in your day-to-day life. By the way, I am in great shape, I do cardio and weightlifting and have done it since I've been 13 years old. Bodyweight is good and I have a lot of muscle. I eat moderately healthy and of course eat even healthier now than I ever have since I am 52 years old. I don't know if there's going to be a solution for my situation but I choose quality over quantity of life if it comes down to it.
Anxiety can be such a difficult conditon. Do you wear a watch (Fitbit/Apple etc) to measure your heart rate throughout the day? This can help determine tachycardia and how high your heart rate goes during these events.
You mention your recent flare started 2 weeks ago, did anything precede it? Some possible triggers - recent illness, recent vaccines, allergic reactions?
Have any of your doctors mentioned dysautonomia or postprandial tachycardia?