Long-Covid symptoms help

Posted by covidsurfer81 @covidsurfer81, Jul 23, 2023

Hi everyone.

I’ve been suffering from I’m pretty sure are the effects of Long Covid, but I’ll try to give as much details as possible, as I’d really appreciate any advice it insight on how long this is all going to last for me.

Here goes.

Roughly 6 weeks ago, I fell very ill with the usual onset of symptoms: Fever, headache, cough, body aches, loss of taste/smell, etc.
I took a Covid test and it was surprisingly negative. My working theory is that I was actually positive and the test just registered a false negative.

After roughly two weeks, the flu-like symptoms resolved, however, I was left with horrendous body aches, debilitating fatigue, brain fog, itchy rash/hives on fingers and hands, loss of appetite, occasional irregular heartbeat here and there, and personality changes.

The symptoms fluctuate from me almost feeling normal again and go right back to leaving me bed ridden. It’s like an endless rollercoaster of nonstop symptomatic hell.

I can’t work or really do too much of anything, so I’m pretty much relegated to laying around the house and googling to try and find some answers as to when this nightmare will possibly come to an end.

If anyone either was or is in my position, I’d gladly appreciate any insight or speculation as to when this may fully resolve.

Thank you and I hope to hear from at least a few of you out there.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@lindy1965

No conventional Doctor was able to figure this out. I went to many. I ended up with an Integrative Doc and they ran lots of bloodwork. I too had mono in High School. My GP says I’m ‘depressed’ and that’s why I’m like this. I have a response to that comment but will refrain from posting it.

Long Covid can reactivate EBV.

EBV NUCLEAR AG EBNA AB IGG
and
EBV VIRAL CAPSID AG VCA AB IGG
To detect a reactivation.

I can’t seem to get my numbers below 600.
“Rollercoaster of nonstop symptomatic hell” accurately describes it. I feel ridiculously bad today.
I hope you find your answers. I’m here if you have other questions.
I wish I could tell you when it will resolve. Good luck my friend.

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How are you today? You get better?

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@gracevu

How are you today? You get better?

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No, I have not gotten better. Still not working, can’t drive for more than 5 min. Still experiencing bad PEM crashes along with all the other symptoms. Yesterday got driven to two appointments and last night was hell. I’m sure to pay the price for a while.
How are you? Anything working?

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I am 4 weeks into long C...at least we are feeling the sameish!!!I test positive so my roommate is masked all the time even though I am not contageious!!!

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@summerof42

@pcr - what's a PCR test? I wasn't aware of this, does it tell us if we have LT Covid?

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What is a COVID-19 PCR test?

The polymerase chain reaction (PCR) test for COVID-19 is a molecular test that analyzes your upper respiratory specimen, looking for genetic material (ribonucleic acid or RNA) of SARS-CoV-2, the virus that causes COVID-19. Scientists use the PCR technology to amplify small amounts of RNA from specimens into deoxyribonucleic acid (DNA), which is replicated until SARS-CoV-2 is detectable if present. The PCR test has been the gold standard test for diagnosing COVID-19 since authorized for use in February 2020. It’s accurate and reliable.

Sorry! Didn’t see this
If you have more questions you can look up Cleveland Clinic and type in for more specifics

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I definitely get the fluctuation of symptoms. We don’t have all of the same symptoms, but I get optimistic one day because I’ll seem better and then if I exert myself to do anything, it seems like I’m back at square one with symptoms reappearing the next day. Brain fog, fatigue, hair loss, nausea, dizziness are some of my symptoms that keep returning.

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