Long COVID Awareness Month/DAY

Here is the main link.
https://www.longhauler-advocacy.org/public-health-resources

Hi looking for support groups for Long Covid in the San Francisco bay area (:-}

Wow, thank you for sharing! The Comprehensive Guide to Long COVID v2 (500pages) looks like a great resource.

I found Polybio a few weeks back.
The consortium project explorer let's you click body area, then pick Project and click to view Full Study.
https://polybio.org/consortium-project-explorer/
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https://polybio.org/longcovid/
The Long COVID Research Consortium is a scientific collaboration to rapidly study and treat Long COVID.
Long COVID not a mystery. New research is revealing key drivers of the condition, including evidence strongly suggesting that some patients with Long COVID do not fully clear the SARS-CoV-2 virus. Instead, the virus can persist in tissue where it may provoke the immune system. This could drive a wide range of downstream consequences such as blood clotting, neuroinflammation, and neuropathy. The persistence of SARS-CoV-2 in tissue is called a viral reservoir.
The Long COVID Research Consortium has established a comprehensive research program on Long COVID disease mechanisms, with a focus on viral reservoir. The program includes scientists and clinicians from institutions including Harvard Medical School, University of California San Francisco, the J. Craig Venter Institute, Johns Hopkins, University of Pennsylvania, the Icahn School of Medicine at Mount Sinai, Cardiff University and Yale University.

The Challenge
Long COVID has left hundreds of millions of people worldwide with crushing fatigue, neurological dysfunction, and other life-altering symptoms. Despite this immense burden, there are still no FDA-approved treatments and no validated diagnostic tests to guide care.
We face an inflection point: will this remain a mass disabling condition, or will we summon the resources and resolve to solve it?
PolyBio has built deep scientific collaborations that have accelerated the discovery of root-cause drivers of Long COVID. With the launch of the Long COVID Cure Initiative in the Fall of 2025, we are poised to move beyond discovery into diagnostics and treatment at scale to:
Develop diagnostic tools through programs like VIPER that identify the root causes of Long COVID and related infection-driven conditions with precision.
Work with industry to deliver personalized treatments by linking each patient’s biology to the therapies most likely to help.
Accelerate cures by mobilizing transformative collaborations across science, industry, and philanthropy.
This is not about incremental progress. It is about rewriting the story of Long COVID—transforming despair into hope, restoring lives, and unlocking solutions that will strengthen both human health and the global economy.

@fourleaf THANK YOU!!!!

The worst part of this damn virus is feeling okay and then waking up feeling poisoned. Yesterday I was able to go to my internship and felt pretty good. This morning I woke up feeling poisoned. I could feel the inflammation, especially in my legs. It is truly one day at a time.