Long Covid and Doxycycline: Inflammation Theory
I was given doxycycline and azithromycin last November for Covid/Pneumonia. I was quite ill with sore throat, cough, fever etc. I was also given Paxlovid. A week later I felt much better and then a week after that I felt worse. I stopped the doxycycline after 20 days due to stomach upset, but did take the full course of other drugs. I now suffer from heart palpitations all the time, extreme fatigue, in and out sense of smell and taste, brain fog, and muscle pain. My energy is not even half of what I used to enjoy.
I decided to take the rest of the doxycycline which is about 10 tablets, one each day. Doxy has been proven to help with inflammation and my primary doc said the virus causes inflammation and that is what I am suffering from based on my symptoms. My primary doc who did nothing but talk to me, my cardiologist who tested me with a 7 day Zio heart monitor, Urgent Care team when I went back for a final x-ray, all had this advice: "wait it out, it could take two months or two years." I am a 75 year old female college professor and I am not going to sit around and watch muscle loss, suffer exhaustion, have poor memory, etc. without trying SOMETHING. So, I am taking the remainder of the Doxy that was prescribed for me in November 2023. I am taking it for the anti-inflammatory benefits. Has anyone else tried Doxycycline for long Covid symptoms?
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I have been using it for 2 years on and off to treat my long covid symptoms. I feel like I can’t live without it for I fear what I will face without them. It took me a long time to figure out why this medication works. I even spoke to MS patients who use it to manage their symptoms. Every time I have gotten off them my symptoms return. Please I ask the medical community to look into this drug and find a way to recreate it with minimal side effects because there’s something to this.
Your comments make so much sense. I had Lyme Disease in 2016 and get flare ups off and on. I also have to carry an Epipen because I have Alpha Gal and react to mammal ingredients and fumes. I am still on Doxy. No stomach issues, but my PVCS have not gone away...although somewhat better. I added CQ10 because I am taking a statin and for a short time (3 days) my PACs and PVCs were gone. Now they aren't. It's a real game and I'm truly exhausted from playing it but I am with you.....the healthcare field is ridiculously lazy, non caring and they do need a wake up. I am so sick of "that is not my specialty" or from my "never again cardiologist's PA" who said "What's Long Covid? We will all die before we can get an appointment with any of them it seems. And all they work for are the spreadsheets/numbers/and dynasty of a big corporation. Many physicians now do not work for patients anymore. SAD! Feel free to rant anytime!!
You are so right. There is something to it! The side effects no longer bother me if I eat something when taking 100 mg of doxy. I was so worried it would not work if not on an empty stomach. Here's where I found out that perhaps when I first got Lyme Disease, an empty stomach was required to help with "chronic lyme". Over the course of X number of years, when people just could not tolerate it, a small meal was introduced. NOW, my wonderful physician not only gives me 100 mg to take once a day, but he stresses to take with food. I researched why doxy was given to COVID patients and it was solely for inflammation because COVID can and will inflame one or more organs. It chose to mess with my heart.
I have a history of Ehrlichiosis, which took months to diagnose and left me with unresolved issues. I get these attacks that resemble seizures, with an elevated heart rate but were confirmed by EEG as not seizure activity—though one neurologist mentioned they can be difficult to capture.
In 2022 is when I got these long COVID symptoms and it worsened my "seizures" to a daily occurrence. I felt like I was on the brink of paralysis, waking up each morning with temporary muscle paralysis .
I started Doxy and it was a decision I made without knowing why, but it brought me relief. It took weeks and months for it to revive me, with intermittent flare-ups. Whenever I stopped taking it, my symptoms return. Doxy is known to modulate the immune system and act as an antiviral for COVID. I take it with food and find it effective, noticing issues only when I eat poorly, like consuming too much sugar or fried foods.
The anxiety of falling ill without adequate medical support, especially in hospitals, has made me somewhat bitter. The lack of help despite intense pain has left me feeling lost. I recognize that some physicians genuinely want to assist, but are limited by healthcare structures heavily influenced by insurance companies and financial ties with hospitals, creating an unfair system.
Thanks for letting me rant!
Oh I am so sorry to learn of this condition you have developed from Ehrlichiosis. And then you get more because of COVID. I can understand the anxiety of falling ill in these times, as I, too, feel the same way. Hospitals send us to Urgent Care, and Urgent Care sends us to hospitals. And Primary Care docs are booked months out. It's pathetic.