COVID test negative: How can I be sure my symptoms are long COVID?

Posted by cathusa @cathusa, Sep 28 1:22pm

Hello. More than 1 month after the second dose, I had palpitations, fatigue, weight loss, hair loss, iron deficiency, chest pain, short of breath, back pain and more. Covid test negatif. But all symptoms lead to long haul covid. How to be sure ?

Hi @cathusa, welcome to the Post-COVID Recovery group. I'm sorry to hear that you are experiencing long haul symptoms.

Many people who were infected with COVID haven’t been tested. Some people who didn't experience symptoms at the time of infection and didn't know they had been exposed wouldn't even have thought to get tested. Now that you've been vaccinated (good for protection against reinfection), an antibody test will likely show that you have antibodies. These could be attributed to both the vaccine and to a previous infection.

Such as that is, the fact remains that you have symptoms that require attention. Have you seen your doctor about them? Have you considered a Post COVID Care Clinic?

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@colleenyoung

Hi @cathusa, welcome to the Post-COVID Recovery group. I'm sorry to hear that you are experiencing long haul symptoms.

Many people who were infected with COVID haven’t been tested. Some people who didn't experience symptoms at the time of infection and didn't know they had been exposed wouldn't even have thought to get tested. Now that you've been vaccinated (good for protection against reinfection), an antibody test will likely show that you have antibodies. These could be attributed to both the vaccine and to a previous infection.

Such as that is, the fact remains that you have symptoms that require attention. Have you seen your doctor about them? Have you considered a Post COVID Care Clinic?

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Thanks for your reply. Yes I’ve being seeing doctors but no diagnostic and it has been 4 months now. I cannot work properly and cannot live right. I will definitely consider a Post Covid Care Clinic. But not sure how to find one.

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@cathusa

Thanks for your reply. Yes I’ve being seeing doctors but no diagnostic and it has been 4 months now. I cannot work properly and cannot live right. I will definitely consider a Post Covid Care Clinic. But not sure how to find one.

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I can help with that. Mayo Clinic has a Post COVID Care Clinic (PCCC). You can read more about it here: https://connect.mayoclinic.org/blog/post-covid-recovery/tab/next-steps/

There are more and more PCCCs popping up all over the country. Survivor Corps has a list of Post-Covid Care Centers here:
https://www.survivorcorps.com/pccc
To help manage your symptoms in the meantime and get you on the road to recovery, I suggest connecting with other members in the discussions, like these ones:

– Post-COVID Syndrome is real https://connect.mayoclinic.org/discussion/pcs-is-real/
– Post Covid Stretching https://connect.mayoclinic.org/discussion/post-covid-stretching/
– What to expect at Mayo Clinic's Post COVID Treatment Program? https://connect.mayoclinic.org/discussion/post-covid-treatment-program/

What symptom are you finding the most challenging today?

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I get it!!! I believe I had Covid in April and tested negative. I got the JJ Vaccine about a month later. 5 days after I felt horrible and the symptoms began. I waited about three weeks before going to the Dr. thinking I would begin to feel better. It was that day that the JJ was "paused". I continue to have symptoms, shortness of breath, fatigue, sweating, brain fog, headache, pretty severe stomach pain with diarrhea, I get lightheaded and dizzy, joint pain, and after about 30 minutes doing anything, sometimes less, I have to sit down and can barely move, sometimes for hours. I have had many medical tests because I insist to my Dr. that something is wrong. Last week I was diagnosed with a kidney injury and stage 3B kidney disease. He said, "Something happened between October and April", because my blood work numbers were good in October and in April they were in the mid 30's. I believe I am experiencing long Covid. When I mentioned this to my Dr. a month or so ago he said there is no way to be sure. I will say it again when I go for my next visit and to get more test result. I am so frustrated…

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