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Lobular Breast Cancer: Let's share and support each other
Since lobular breast cancer is only 10-15% of all breast cancer diagnoses and now understood to be a unique subset of breast cancer as a whole with different characteristics than ductal breast cancer necessitating different treatments and inherently different risks, I would like to see a separate category under the breast cancer forum so that the most appropriate info is being disseminated for this specific subset of BC. Just a thought.
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It's unfortunate that though lobular carcinoma was recognized as a very distinct type of breast cancer, different biologically than ductal carcinoma in the 1940s, we are still left with treatment specific for ductal carcinoma, a cancer with very different growth pattern. People think it's because it's 10-15% of breast cancers and so overlooked. But it still represents more diagnoses each year than ovarian cancer, so the numbers are significant. One of the main problems is that it rarely forms lumps and research wants to be able to identify changes in measureable disease. There are sometimes a few lobular patients included in research for drug approval but the numbers are too small to break out a separate analysis so the effectiveness on ductal carcinoma may not reflect the actual effects seen in lobular.