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Living with Stage 4 Liver Cancer

Posted by cu2 @cu2, May 17, 2022

Has anyone been diagnosed with Liver Cancer, I'm just seeking knowledge and my emotions are all over the place. Everyday is a gift and I will forever be Grateful, Thankful and Blessed 🙌

Interested in more discussions like this? Go to the Liver Cancer Support Group.

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jshirley | @jshirley | Jun 27, 2023
In reply to @jalewallen74 "I have Bile Duct Cancer which spread to my liver. I did a year of chemotherapy..." + (show)
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I have Bile Duct Cancer which spread to my liver. I did a year of chemotherapy and am on immunotherapy currently. My treatment team has me drinking 2 quarts of water a day to keep my kidneys working and flushing out dead cancer cells and the toxic chemo drugs. I like to add lemon juice. It's not easy to drink that much water and it requires a lot of peeing but I remain fairly healthy and it's part of my treatment. A positive attitude is proven to help along with a Spiritual Connection with a Higher Power. I stay socially involved with other patients on this forum and their treatments- working, not working, side effects etc. I have my bad days emotionally too, especially before and after treatment and before doctor visits. I am thankful for treatment that is working. John

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Hi John,
A year of chemo!!! Oh my! I too have bile duct ca and they did a MRCP , MRI, Chest CT scan and a bunch of labs.
My tumor markers are elevated.
So are they or have they done a resection? And is Mayo doing the Chemo?

I can’t have a resection as I also have cirrhosis from Hemochromatosis, Polycythemia, and NASH.
Do you see the oncologist and the Transplant teams? Or just one of those groups.
I do wish you well in you journey.

James

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jshirley | @jshirley | Jun 27, 2023
In reply to @lynwarn "Dear Heart, Emotions are good and bad in any situation. I have stage 4 liver cirrhosis..." + (show)
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Dear Heart,
Emotions are good and bad in any situation. I have stage 4 liver cirrhosis with a 1.8 size cancer tumor. I gave to wait until the tumor grows to a size 2, then they will add radiation beads in the tumor, treat the diseased blood and plan on a liver transplant. I'm 66. When I first heard, I remember being overwhelmed, living in chaos and overthinking. My resolution for emotion is sharing with only those I trusted or here. It helped me to get it out, and find support groups. It's okay to cry. Crying relieves stress. Stress can be devastating to the healing process. I'm open to talk more. I've found I need support with others who have experience. I've been in this process since November and have improved emotionally. It's still on the surface daily.

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Hi @ lynwarn,
I am new to this and wondering what type Cancer do you have. Is it strictly HCC or a Mets from somewhere else??
I also have cirrhosis but diagnosed with CCA (Bile duct cancer). I had stable liver disease and just monitor by the Charlotte Transplant team. But all that changed in Fall 2022.
I have been septic with E. Coli and they couldn’t figure out the source. Long story short… I have since had 4 ERCPs, they found the duct tumor on the Third procedure and therefore had to repeat trying to get better biopsies. My liver team immediately sent me to an instate transplant center and Mayo.
Mayo has done many scans and labs. But I’m waiting on next step.

So are you on the LTP list?? Is Mayo treating the cancer? Are you local to the facility you go to?

I am a 7-8 hr. Drive each way to JAX. They mentioned on my consultation the protocol for my situation would 5 wks. Chemo and Radiation then if I am accepted, they keep me on oral chemo until transplant. But my cancer is not well treated without transplant as the cirrhosis disqualifies me a resection.
I’m sorry for lengthy response but when I read you have cirrhosis and liver Ca. I had to reach out.

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alfonso22 | @alfonso22 | Mar 13, 2023
In reply to @colleenyoung "I'm tagging @cu2 to make sure she sees your lovely post, @dbamos1945. I agree that her..." + (show)
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I'm tagging @cu2 to make sure she sees your lovely post, @dbamos1945. I agree that her posts and spirit are uplifting and her offers of help and hope inspiring.

How are you both doing?

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Cancer is not the end, It is just the beginning of a new story, A story of courage, strength and hope, A story of never giving up, A story of struggle until the end, This is the story of cancer, The story of us, who fight against cancer.

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gilbertre2 | @gilbertre2 | Feb 9, 2023

No I never thought I would have this terrible disease. God bless all of you and prayers for all !!!

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dbamos1945 | @dbamos1945 | Feb 9, 2023
In reply to @gilbertre2 "Thank you very much. I have to keep positive. Sometimes I have it rough thou. Prayers..." + (show)
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Thank you very much. I have to keep positive. Sometimes I have it rough thou. Prayers for all of us !!!

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Sending y’all love and peace each day. It sure has helped me accept this funky liver being reminded I am not alone fighting this battle!

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gilbertre2 | @gilbertre2 | Feb 8, 2023
In reply to @1mgd5700 "Gilbert: So glad you have positive attitude. It makes a big difference in beating that “beast”...." + (show)
Profile picture for 1mgd5700 @1mgd5700

Gilbert: So glad you have positive attitude. It makes a big difference in beating that “beast”. I had breast cancer in 2009; opted for bilateral mastectomies plus chemo. Chemo frightened me more than surgery but it was not as bad as I had imagined. Prayers & keep the faith!

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Thank you very much. I have to keep positive. Sometimes I have it rough thou. Prayers for all of us !!!

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1mgd5700 | @1mgd5700 | Feb 8, 2023
In reply to @gilbertre2 "I have liver cancer and pancreas cancer. I’ve been getting better with chemotherapy. My last mri..." + (show)
Profile picture for gilbertre2 @gilbertre2

I have liver cancer and pancreas cancer. I’ve been getting better with chemotherapy. My last mri showed it has reduced its size. We pray a lot. I drink a lemon water a day and some guana bana to kill cancer. I’m going to kill this disease

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Gilbert: So glad you have positive attitude. It makes a big difference in beating that “beast”. I had breast cancer in 2009; opted for bilateral mastectomies plus chemo. Chemo frightened me more than surgery but it was not as bad as I had imagined. Prayers & keep the faith!

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gilbertre2 | @gilbertre2 | Feb 8, 2023

I have liver cancer and pancreas cancer. I’ve been getting better with chemotherapy. My last mri showed it has reduced its size. We pray a lot. I drink a lemon water a day and some guana bana to kill cancer. I’m going to kill this disease

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alfonso22 | @alfonso22 | Feb 8, 2023
In reply to @dbamos1945 "Thank you… reading your words were just what I need to give me prospective. Liver metastases..." + (show)
Profile picture for dbamos1945 @dbamos1945

Thank you… reading your words were just what I need to give me prospective. Liver metastases is a tough pill to swallow.
Thanks again for sharing with me!

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No need to thank we all are here to support each other yes it’s hard sometimes but life is a Gods gift we need to enjoy it no matter what ❤️❤️🙏🏻🙏🏻❤️❤️

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dbamos1945 | @dbamos1945 | Feb 8, 2023

Thank you… reading your words were just what I need to give me prospective. Liver metastases is a tough pill to swallow.
Thanks again for sharing with me!

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