Living with Stage 4 Liver Cancer

Posted by cu2 @cu2, May 17, 2022

Has anyone been diagnosed with Liver Cancer, I'm just seeking knowledge and my emotions are all over the place. Everyday is a gift and I will forever be Grateful, Thankful and Blessed 🙌

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@lynwarn

Dear Heart,
Emotions are good and bad in any situation. I have stage 4 liver cirrhosis with a 1.8 size cancer tumor. I gave to wait until the tumor grows to a size 2, then they will add radiation beads in the tumor, treat the diseased blood and plan on a liver transplant. I'm 66. When I first heard, I remember being overwhelmed, living in chaos and overthinking. My resolution for emotion is sharing with only those I trusted or here. It helped me to get it out, and find support groups. It's okay to cry. Crying relieves stress. Stress can be devastating to the healing process. I'm open to talk more. I've found I need support with others who have experience. I've been in this process since November and have improved emotionally. It's still on the surface daily.

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I am in a similar situation. My tumor reached the 2 cm mark and was removed by heat ablation. I am now on the transplant list inactive status as my liver function is good. Keeping up with appointments and meds and knowing you are doing what you can to stay healthy is a good strategy. I find that being grateful for each day and spending time or communicating with friends and family keeps me in a good place. I am thankful for all the people and wonderful life experiences I have. I guess it is just a matter of finding a way to focus on the positive things in life.
I have been inspired by so many on this forum. It always amazes me that people are so resilient and hopeful and successful despite life changing challenges. Thank you for sharing your story and best of luck to you in your journey.

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Yes, I was diagnosed with Hepatocellular Carcinoma (HCC) stage 3, on May 21, 2022. I had a 16.5 cm mass that they thought was an amoeba as I was in Mexico 2 weeks before. It turned out to be a tumor that attached itself to my healthy liver. I had the tumor removed along with 70% of my liver resected on May 27, 2022.
I had 3 months of NEDs then month 4, I was stage 4 as the HCC had traveled to my lungs and on a rib.
I am currently going through Immunotherapy and had 3 rounds of radiation.
So far, so good.

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I’m a stage IV throat cancer survivor but a good friend of mine has been diagnosed with stage IV liver/spleen cancer.
He and his family as well as my wife and I were devastated by this news. Of course he began searching the web and I did the same. Honestly we both found nothing but doom and gloom!
He was ready to accept the fact that he would be terminal and he was worried about going on disability like I am.
Well myself knowing better should have never searched the web because I did that when I was diagnosed and found bad results for my outcome as well.
Well he met with an Oncologist and was relieved to find out that his type cancer is not terminal and can be treated with a monthly injection! His stage IV will not affect his ability to remain functional and working!
Keep your good attitude and focus on your future. God is good all the time so hold on to that fact.
Praying the best for you!
MOJO

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I have Bile Duct Cancer which spread to my liver. I did a year of chemotherapy and am on immunotherapy currently. My treatment team has me drinking 2 quarts of water a day to keep my kidneys working and flushing out dead cancer cells and the toxic chemo drugs. I like to add lemon juice. It's not easy to drink that much water and it requires a lot of peeing but I remain fairly healthy and it's part of my treatment. A positive attitude is proven to help along with a Spiritual Connection with a Higher Power. I stay socially involved with other patients on this forum and their treatments- working, not working, side effects etc. I have my bad days emotionally too, especially before and after treatment and before doctor visits. I am thankful for treatment that is working. John

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@gilbertre2

Yes I have stag 4 liver and pancreas cancers. I’ve had 8 chemo sessions and getting another today. I only take two pain meds in the evening and I’ve been good. I lost like 20 lbs and been eating more now. I go to the Mayo Clinic in Phoenix next week. I try to stay positive about this. We pray a lot. I’ve also been drinking a cup of water with a lemon a day. I think it’s helping too.

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Hello I too drink a glass of lemon water that I fix at night to drink the next morning. It definitely helps with phlegm.

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Yes I have stag 4 liver and pancreas cancers. I’ve had 8 chemo sessions and getting another today. I only take two pain meds in the evening and I’ve been good. I lost like 20 lbs and been eating more now. I go to the Mayo Clinic in Phoenix next week. I try to stay positive about this. We pray a lot. I’ve also been drinking a cup of water with a lemon a day. I think it’s helping too.

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Dear Heart,
Emotions are good and bad in any situation. I have stage 4 liver cirrhosis with a 1.8 size cancer tumor. I gave to wait until the tumor grows to a size 2, then they will add radiation beads in the tumor, treat the diseased blood and plan on a liver transplant. I'm 66. When I first heard, I remember being overwhelmed, living in chaos and overthinking. My resolution for emotion is sharing with only those I trusted or here. It helped me to get it out, and find support groups. It's okay to cry. Crying relieves stress. Stress can be devastating to the healing process. I'm open to talk more. I've found I need support with others who have experience. I've been in this process since November and have improved emotionally. It's still on the surface daily.

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@jalewallen74

Welcome to our group. Looks like Somatuline Depot is the First Line long lasting drug of choice for you. It is good you are tolerating it well. My chemo side effects are different than the ones listed in information for Somatuline Depot. Being involved in your treatment is important. Bile Duct and Liver cancers are mine and my treatment side effects are fatigue, brain fog, forgetfulness, lack of appetite, the need to drink lots of water to keep my kidneys clear and general weakness. I take naps as needed. Stay in touch. John in Houston

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Hi John,
You’re the first patient on the Somatuline Depot extended release monthly shot I know of. My primary is pyloric channel (stomach/intestine) with metastasis to liver. I am assuming that your cancer is diagnosed as Neuroendocrine
Carcinoid Tumor. How long ago were you diagnosed? My side effects are fatigue, cement-like stool, joint discomfort; however I am grateful I don’t have any Carcinoid Syndrome (flushing) yet. I have avoided foods rich in serotonin, peel my apples, don’t eat many salads and include more protein in 4-5 small meal-snacks a day. I am grateful for activities that get my mind off my situation and have maintained my exercise/yoga routine as well as meditation practice.
I wish you much success with your treatments and hope your next test reveals improvement!
Be happy & well.

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@jalewallen74

Welcome to our group. Looks like Somatuline Depot is the First Line long lasting drug of choice for you. It is good you are tolerating it well. My chemo side effects are different than the ones listed in information for Somatuline Depot. Being involved in your treatment is important. Bile Duct and Liver cancers are mine and my treatment side effects are fatigue, brain fog, forgetfulness, lack of appetite, the need to drink lots of water to keep my kidneys clear and general weakness. I take naps as needed. Stay in touch. John in Houston

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Hi John I take naps a lot especially once I take my Lanreotide injection once every 4 weeks. I normally stay home on that day and not do to much for 24 or 48 hours but relaxing. When I first started I experienced sides effects like swelling at the injection site,headaches, functional diarrhea, being cold, kinda groggy. But now the side effects way more less now. Connie in Atlanta

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@colleenyoung

I'm tagging @cu2 to make sure she sees your lovely post, @dbamos1945. I agree that her posts and spirit are uplifting and her offers of help and hope inspiring.

How are you both doing?

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Hello Colleen, I’m doing well as expected. Thanks for asking. You know I read on here a lot and it gives me inspiration too have courage. What others or going through or experiencing, the Courageous strength that is shared here. I see resiliency that gives me courage to keep pressing forward. February 10th will be 2yrs of the Lanreotide injection for me. I have to say my journey Living with Stage 4 Liver Cancer is has still not been digestible for me yet. I mean I think everything seems to be stable for as the treatment but mentally I have good days and bad days. I am just now getting use to the commercials on TV about Cancer without panicking, and I have to be honest and say this is not a picnic in the park living with this thing called Cancer. I have been doing well and the Lanreotide injection has been less bothersome especially the injection site it doesn’t swell as much now. I have my next MRI on January 27th this always has my emotions all over the place and I be scared too. I know today I am very fortunate to be at this point with my treatment when there’s other people going through a lot more than I can imagine. I don’t know about tomorrow but today good diagnosis and bad diagnosis GOD IS GOOD. We all are experiencing some form of Cancer that we did not ask for but we are all in this together. Y’all give me Courage that I thought I would not have, Strength to share my thoughts with what I go through, I’m Grateful and Thankful for each and every one of you here in this portal. We all have HOPE 🌻🌻🌻

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