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Living with Prostate Cancer: Meet others & introduce yourself
Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.
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Let's start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?
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Who did you chose for Hifu I have visited with 3
I don't know anything about Dr. David woodroom but I'm meeting him on the 12th for a Tulsa consultation. I visited with the best surgeon. I could find Dr. Edward Schaeffer several other focal treatment clinics and radiation expert and I'm leaning toward the least invasive procedure if anybody can vouch for Dr. Woodrum one way or another I would appreciate it.
I think that the best way to judge your physician is his experience in an excellent medical group and facility (and not too young and not too old ) . A not so good physician would not be hired and retained by an excellent group. Hence, peer review is far better than a few lay people review on this site. That is the opinion of this old lawyer who is G9, CR, advanced PC.
I was diagnosed in about 2000 with a PSA of 2, but nodules on perimeter of the prostate suggested surgery. So,
I selected the seed implant to avoid incontinence and impotentance. 20 years later my PSA is up to 14, and then in 2 more years up to 16.7. Recently, we did a PET scan and discovered cancer migrating throughout my body.
So now we are on Lupron therapy and wondering what will happen next? It is difficult adjusting to certain facts
about my cancer. Is it really cancer? Seems after the first diagnosis we just waited for the next PSA reading to decide what next. It was always lets see what the next reading will be. Now it has spread throughout my body and
we are treating with hormone therapy and still waiting to see the next PSA reading. Compared to many readings,
a 16.7 is not tremendous. But, it is greater than 0, and that is a concern to me, along with not knowing what is next. Jim McCurry
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2 Reactions@pinotwinelover (I love pinot too), I believe that @bjroc @cupman @ronan2011 have all worked with Dr. Woodrum at Mayo Clinic.
Did you meet with Dr. Woodrum this week? Have you made your treatment choice?
I had my Prostate removed in 2000. Robotic. Not sure what went wrong but I am now a cripple.
Talked to my GP about doing a bone scan. Seems like my knees and joints are getting very bad. He explained time that if it came back and showed cancer, I would spend whatever life I have left treating it. Is that what I want to do? I am almost 76 now. I think not.
You haven't provided much information but it doesn't sound like your prostate cancer has come back after 23 years. Therefore I am not sure if anything went wrong. Sounds like it might be an arthritis issue.