Living with Prostate Cancer: Meet others & introduce yourself

Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

Follow the group. Browse the topics or start a new one.

Let’s start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?

Hi, my name is Tim. I have not been diagnosed. At this stage I’m trying to understand my diagnostic options. A routine physical, and a follow up turned up a slightly elevated PSA, around 5.3.

I am told a biopsy is needed, and don’t know yet what they are recommending. I see the three most common methods, and believe I have a preference, but not sure how much luck I’ll have steering the process. Am I wrong to show a preference to transpereneal approach?

If it is inappropriate for me to post here, let me know.

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@tinker

Hi, my name is Tim. I have not been diagnosed. At this stage I’m trying to understand my diagnostic options. A routine physical, and a follow up turned up a slightly elevated PSA, around 5.3.

I am told a biopsy is needed, and don’t know yet what they are recommending. I see the three most common methods, and believe I have a preference, but not sure how much luck I’ll have steering the process. Am I wrong to show a preference to transpereneal approach?

If it is inappropriate for me to post here, let me know.

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@tconama Don't waste time.. Your Urologist should do that biopsy.. There are better, more conclusive methods now but get the specialist's advice.. K

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@ken82

@tconama Don't waste time.. Your Urologist should do that biopsy.. There are better, more conclusive methods now but get the specialist's advice.. K

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I just spoke with my doctor finally. He had ordered antibiotics, and I wasn’t sure why. Looks like they only do the transrectal approach. They indicated they have very low sepsis rates. I guess I have to go along with that though none of the approaches are ideal.

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@tinker

Hi, my name is Tim. I have not been diagnosed. At this stage I’m trying to understand my diagnostic options. A routine physical, and a follow up turned up a slightly elevated PSA, around 5.3.

I am told a biopsy is needed, and don’t know yet what they are recommending. I see the three most common methods, and believe I have a preference, but not sure how much luck I’ll have steering the process. Am I wrong to show a preference to transpereneal approach?

If it is inappropriate for me to post here, let me know.

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I would highly recommend a MRI guided biopsy. I believe you will get better results.

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@semeon

I would highly recommend a MRI guided biopsy. I believe you will get better results.

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They are scheduling a MRI just prior to the procedure. Thank you

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@tinker

They are scheduling a MRI just prior to the procedure. Thank you

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That’s great you will much more accurate results

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Hi Tim, you might check Mayo's website on transpereneal approach. Some of their doctors have discontinued using the transrectal approach. Your doctor may not be able to do it. If I had a choice, it's the approach I would take.

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@tinker

Hi, my name is Tim. I have not been diagnosed. At this stage I’m trying to understand my diagnostic options. A routine physical, and a follow up turned up a slightly elevated PSA, around 5.3.

I am told a biopsy is needed, and don’t know yet what they are recommending. I see the three most common methods, and believe I have a preference, but not sure how much luck I’ll have steering the process. Am I wrong to show a preference to transpereneal approach?

If it is inappropriate for me to post here, let me know.

Jump to this post

@tconama Yes, it's important to not waste time but it's also important to not treat this like a panic situation. Be thorough in deciding on a treatment decision if you have a positive biopsy . I had advanced intermediate prostate cancer and I got a prompt referral to a radiation oncologist. He allayed my fears about the cancer and told me that it wouldn't change my lifespan, if treated. I had 5- 35 minute CyberKnife sessions and 4 year later my PSA is 0.2 with no ill-effects. Best wishes!

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@waynen

Hi Tim, you might check Mayo's website on transpereneal approach. Some of their doctors have discontinued using the transrectal approach. Your doctor may not be able to do it. If I had a choice, it's the approach I would take.

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That’s how I started on this thread. Was first looking at active studies. One was about this approach. I’ve got an appointment this Friday at Mayo for a consult. Depending on what I learn there, I will pursue at Mayo, or fall back to the, now already scheduled, MRI, followed by a transrectal approach.

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@scruffy1

@tconama Yes, it's important to not waste time but it's also important to not treat this like a panic situation. Be thorough in deciding on a treatment decision if you have a positive biopsy . I had advanced intermediate prostate cancer and I got a prompt referral to a radiation oncologist. He allayed my fears about the cancer and told me that it wouldn't change my lifespan, if treated. I had 5- 35 minute CyberKnife sessions and 4 year later my PSA is 0.2 with no ill-effects. Best wishes!

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What good fortune. I wish all stories would go that way.

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@tinker

That’s how I started on this thread. Was first looking at active studies. One was about this approach. I’ve got an appointment this Friday at Mayo for a consult. Depending on what I learn there, I will pursue at Mayo, or fall back to the, now already scheduled, MRI, followed by a transrectal approach.

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Well good luck with everything. Since they are doing an MRI guided biopsy I believe you are in very good hands.

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@tinker

What good fortune. I wish all stories would go that way.

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I've attached a short video for anyone researching CyberKnife:

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