Living with Prostate Cancer: Meet others & introduce yourself

Posted by Colleen Young, Connect Director @colleenyoung, Mar 19, 2019

Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

Follow the group. Browse the topics or start a new one.

Let's start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

cupman | @cupman | Mar 21, 2019

Well its decision day for me and I would love any feedback I can get on HIFU. I am waiting on feedback from Dr. Woodrum at Mayo MN. and another doctor in TX. I have read almost everything in the last 2 weeks and but still looking for more data to help me make the best decision on which treatment would be best. I have multilateral prostate cancer, a gleason score of 7, and my PSA is 4.5, I had surgery scheduled for March 26th, but have delayed it to learn more about this alternative treatment.

Norske stay positive, I not a doctor but the stress in dealing with this stuff can definitely wear you out. Good Luck

norske46 | @norske46 | Mar 19, 2019

Hi all. I am new to this whole experience so I will share a little about what is happening. In November 2017, I had a PSA of 8.1 in a regular annual checkup. My next PSA in January 2019 read 196.7. We set a meeting with urology at the VA for February 2019 and had another reading, this time 541. We started hormone treatment with bicalutamide (sp?) and scheduled a biopsy for March 1. Those results confirmed cancer with Gleason score of 10. Bone scan an CTscan followed on March 13. Those results are not yet in. Scheduled to meet on March 25 to get results and for an Elligard injection that day.

The whole thing of course is new so have been working to remain positive but uncertainty is hard. Waiting for test results is hard.

What questions should I ask regarding treatment options going forward? Is leg fatigue and body fatigue normal?