Living with Prostate Cancer: Meet others & introduce yourself

No free lodging. You can get a small discount on hotels. The Hope Lodge (Arizona Transplant House) is on the campus but it doesnt house many patients and because it's also for transplant patients, I would think it's hard to get into for just cancer radiation treatment.

I saw the info on Hope Lodge but it only has 56 rooms and I imagine they're always full especially when the Snowbirds are here

It's called Hope Lodge and it is next to Mayo in Scottsdale. I was there for 5 weeks. God bless them.

@bamagirlinaz I'mm pretty sure Mayo-Phoenix has some free lodging for cancer treatment patients. I would check with them for available. Best of luck.

My husband was biopsied December 30 and cancer was found in 11 of the 12 cores. Gleason 7, grade 4+3, strong family history of cancer. Genetic test results are pending. A Phoenix urologist did the biopsy and wants to immediately talk about surgery even before scans are done. So, I made a call to request an appointment with Mayo Clinic. We've both had good experiences with Mayo and both had successful surgeries there. Gathering records to fax to Mayo and awaiting an appointment. I'm having trouble sleeping and tend to overthink like if he needs 48 radiation treatments, where are we going to stay? We live in Yuma. Cannot afford a hotel for a month or two.

I see I was mentioned in the above Email. Sorry for the delay but I was at the Mayo Clinic in Minnesota getting an MRI and talking with 2 of the specialists about newer ablation treatments. Unfortunately for a couple reasons, I am not a candidate for the Laser Heat Treatment or the Cryotherapy so will be having Prostate surgery sometime in the next couple months. I have not gotten info on radiation that makes me want to do it. At age 65 surgery appears to be the better way for me. I did find out that Cryotherapy freezing treatment is covered by insurance, but the newer Focal Laser Ablation is not covered for prostate, and could cost approx. $20,000 to have it performed.

As a newcomer to the Group, my prostate details are...
Diagnosed 2011 and treated with radiation then two years of three monthly injections of Zoladex. At the end of this period, PSA did not register or showed as 0.6.
PSA in 2016 had increased to 3.6 and PSMA scan showed cancer in lymph nodes and on lower ribs.
Three monthly Zoladex restarted.
PSMA 2018 showed a substantial reduction in previously revealed tumours.
Three monthly Zoladex continues and PSA remains in the low 3s.

I was diagnosed with breast cancer in 2004 and underwent surgery, chemotherapy and radiation followed by five years of daily temoxifin. There is no indication of return.

Aortic heart valve was replaced with a biovalve (cow) 2014 and functions normally

Currently under treatment for diverticulitis but otherwise healthy except for inability to undertake any prolonged or strenuous physical activity.

Your oncologist is technically correct, eventually..The question is when...?

It may be helpful to this group if you add your clinical history, diagnosis - is this a recurrence or were you diagnosed with metastatic disease - was it in lymph n nodes only, is it in your bones, organs..., Gleason Score, PSA doubling and velocity times, when you started treatment, your age, overall health status...

I would consider reading the NCCN PCa patient guidelines. Those will give you a starting point on what the urology, radiation and oncology communities agree as to the standard of care for PCa.

Do some research on intermittent ADT, if it is something you and your medical team is an option for you, that may extend the time to resistance to ADT.

The way ahead depends on the progression and clinical data associated with your specific PCa - is it high risk, GS 8 or above, are your PSA doubling and velocity times fast, how long have you been on ADT, how ow is your T while on ADT, less than 20 is best...

There may be a number of treatment choices ahead and you and your medical team will have to decide, Provenge, Xtandi, Taxotere, Jetvana, Radium 223.

Your posts indicates your PCa is under control, try and relax, live, do your research, talk with your medical team. There are so many new and emerging treatments that PCa may become like diabetes and AIDS, a chronic disease that is managed through combination therapies that are constantly updating.

Here's one link:
https://pcnrv.blogspot.com/2019/12/optimal-chemohormonal-sequencing-for.html
Here's another:
https://www.nccn.org/patients/guidelines/content/PDF/prostate-patient.pdf
Kevin

Hello to everyone dealing with prostate cancer. I was diagnosed with stage 4 prostate cancer and was treated with Lupron, and bicaludamide. Recently I started taking Zytiga and Prednisone daily. My oncologist tells me that eventually the metastasis will build up an immunity to my treatment. We haven’t discussed anything beyond that point. Has anyone heard what the next step will be when Zytiga is no longer effective. Thank you. Philnob

Hi @marko1, I believe that @ronan2011 @waynen @fairway5 @alphanumeric and @6608 all chose proton beam therapy for prostate cancer treatment. I hope they can answer some of your questions and share their experiences with you.