Living with Parkinson's Disease - Meet others & come say hi

Hello @nyparkie and welcome to Mayo Connect! I am so pleased to hear that you are endorsing exercise as the way to help you with the effects of Parkinson's. So many of us have found the same results. Without exercise people become very disabled. Exercise helps with range of motion (which counteracts the stiffness) and also balance.

I attend a PD dance class (done seated) because of the music which is energizing. I also find Tai Chi to be very helpful for range of motion and balance. I also use a recumbent exercise bike. I don't walk very much because of spinal problems that act-up when I walk very far.

Can you share with us what exercises work for you? Also, do you use any prescription meds like Sinemet? Please share with us only as you feel comfortable.

I look forward to hearing from you again.

Teresa

Well, I can get the massages, but No Cannabis. NOT in Texas. People tell me their friends get it, but I cannot seen to get lucky. Plus a 78 year old women going to prison in Texas is not a pretty thing. For years I have had RA and for years I used Cannabis. Suddenly we moved to TEXAS. There is no withdrawal as it is not habit forming. I am ok there. I am just sad and disgusted by the lawmakers in Texas.

Hi,
I too am new here. I was diagnosed 4 years ago, have ADHD,Tourettes, restless leg, and Parkinson's, as well as terrible stenosis with pain in legs and arms.
THE ONLY THING THAT HELPS PARKINSON'S IS EXERCISE. And Cannabis, which helps, pain, mood and focus.
I've tried cycling for Parkinson's, boxing, and aquatic cardio program which for me is best. Massages regularly are a great help as well. but get yourself out and exercise!!!!

@trouble4343. Yes, that is what the doctor said. I usually have so MUCH to go through with her, that concentrating on one thing is difficult. I had not seen her since Oct and I had three weeks in the hospital recently. So, she put aside a great deal of time to share with me and me with her. I am very thankful it is not PD. BUT, what is the reason this happens?

My Doctor would call what you have "Essential Tremor". I have it. My hands only shake with I want them to work, like eating or writing. My Doctor said if I was just sitting still and I had a tremor, that was PD.

A nutrition store sells hemp.

I have RA. But with RA, there are other issues that pop up. My teeth need replacement. My teeth were PERFECT prior to this year. It may be some other reason than RA. Then being tired all the time. BUT, not tremors on my hands. Talking and maybe a word and it does not come out right. I am concerned the doctors don't know what to treat The drugs for RA are extremely hard on the system. The tremors are not constant. My doctor gave it a name. If I am picking up a cup, or trying to eat with a fork..The tremors will appear. THEN to add to all of the above, I passed out and fell. The fall was a bad one. I hit my head hard and got a black eye and other cuts. They did so many many tests and came back with SUGGESTIONS of my illness. There was NO brain bleed. Everything looked Great. Thank God. I noticed the tremors prior to my fall and for a few years. What else causes Tremors? I stopped the hard drugs given me by the RA doctor. I just cannot stand the damage to my body. I could not eat and was vomiting the entire time on the RA meds.

Where do I get HEMP?

@mariemarie Interesting since sleep is a major issue for PD. Teresa

Lisa, the employee said some PD folks take hemp to sleep.