Living with Parkinson's Disease - Meet others & come say hi

Thanks but my generic online searches have yielded nothing.

Our Rec Center has Parkinsons Boxing and Parkinsons Dancing which are great places to get some exercise and to meet others with Parkinsons. These are free and put on by The Parkinsons Association of the Rockies. There are surely other associations out there in different parts of the country. Good luck.

How do you find a group in your area?

early parkinson, wonder what the best stem cell treatment is

I am a 74 year old Male. Just had MRGFUS on Oct,
. 29th. DR. Sani at Rush Chicago was the neurosurgeon. I had a left hand resting tremor, tremor dominant Parkinsons. Long story short I tried every medication in every combination for tremor and nothing worked. After two years the neurologist I was seeing put up his hand and recommended I go to a teaching hospital neuro. Working with Dr. Gill for awhile she referred me to Rush's MRGFUS neurosurgeon, after a tele visit There are a few more steps to see if you qualify. My tremor stopped cold at end of procedure. I have a few expected side effects that should clear up in 3-6 months, such as a little numbness in my lips and tongue and a little gait disturbance when I walk but as an avid exerciser I have already been using my treadmill 30 minutes a day. My side effects are pretty minor I made a short story long but there was a lot to squeeze in. Good Luck

I am a caregiver to my spouse who has Parkinsons. It is the hardest roleI have had in my lifetime. It is so hard to be everything that is needed and sometimes you feel like you are not doing enough. All I can say is " One day at a time". Thank you for letting me share.

I have mild tremors. Recently bought a pillow top and find moving on it is difficult. I suggest a plain top.

I was diagnosed with Parkinson's in2019. I take boxing classes and balance classes at the local senior center. They are free, at least for me, for which I am grateful. I have many issues with Parkinson's both motor non-motor. For the past few months my most difficult is balance. I have very little money and find many treatments beyond my means. I am trying to keep moving forward but I am not hopeful. I have no family support and beyond the people in boxing one friend, newly reunited. Non motor issues are also problematic particularly gastrointestinal. That's at least part of my story.

So, I went to my behavior therapist to refill my decades long prescription for Abilify for Bipolar Disorder. I mentioned the likelihood that i was going to be officially diagnosed with Parkinson's. He replied that research has shown that long time users of Abilify sometimes also wind up with Parkinson's.
Wow!
Then we got into a discussion of the idea that discontinuing (tapering down) Abilify might alleviate some or all of my Parkinson's symptoms. I couldn't get a clear answer or picture of that from him.
In this whole situation, I must have like an hour's long set of questions for my Neurologist. In my first appointment, I only got 10 minutes- just long enough to prescribe the bunch of tests he wants and the Levodopa. Can't blame him- he had to open on a Saturday just to handle the overflow of patient appointments. Is that just the way it is for Medicare-taking-Neurologists?
My solution so far is to burn up the internet with questions. I'm very happy with the feedback i get from my AI app.
And here too! Thanks!

A local in-person support group would be a great addition to your other treatment options, @wagross. Prior to the pandemic, I was also part of an in-person support group where they had guest speakers from a local medical university hospital as well as social workers, physical therapists, etc.

You might consider looking at the videos and book called, Delay the Disease, produced by a physical therapist in Ohio. Here is a link to his work,
https://www.bing.com/videos/search?q=Delay+the+Disease&qpvt=Delay+the+Disease&FORM=VDRE