Living with Parkinson's Disease - Meet others & come say hi

I have recently been diagnosed with Parkinson's and interested in joining support group.

Hello @macowen,

I want to join @sillyblone in welcoming you to the PD support group on Mayo Connect. As she said, this is a place where you can share your concerns and receive support. When my PD symptoms began (many years before the actual diagnosis), I had balance problems, foot dragging, a soft voice, and one-sided weakness. Once I began treatment (carbidopa/levodopa) I noticed a marked improvement. Medication, combined with regular exercise, is an important factor in delaying the disability of PD.

I look forward to hearing from you as you share a bit about your husband's journey with a PD diagnosis. How long ago did his symptoms begin? Has he begun medication or physical therapy yet? What do you need to know?

Hello,
I just wanted to say welcome to the group. My spouse has had Parkinsons since 2013. It began with small handwriting and a fall at work. He was diagnosed with tremors . My brother is 67 yo in hospice with Stage 5 Parkinsons and Lewy Body Disease.My Dad died from complications from his Parkinsons in 2018. We received the official diagnosis 12 days after my Dad died. I cannot began to tell you all that has happened through the year's. He has Stage 4 + at this time. What did they say and what are you familiar with? Symptoms? I don't want to feel that you cannot share as it is very caring and supportive group. Please ask me anything that I have done with my family members. 🫂 🤗

New to this group because my husband has just been diagnosed with Parkinson’s this week. I want all the support and information I can get to help my husband in this journey.

Welcome! My name is Cheryl. I am a retired nurse. I’m 66 years old and I was diagnosed with Parkinson’s disease in June 2022. This is a very informative group so ask any questions that you may have with no question is too small or too stupid to ask cause if you don’t ask, how do you ever know?

Hello @emmys,

I want to join @sillyblone in welcoming you to the PD support group on Mayo Connect. It is helpful to meet others who are on this PD journey. I would enjoy getting to know you. Share as you are comfortable doing so, about your diagnosis.

For example, what were your first symptoms of PD? What treatments have you had (such as medication, physical therapy, etc.)?

Hello,
Welcome to the group. I am a caregiver to my spouse who has Parkinsons. Everyone is here for the same reason. We all either have Parkinsons or we have a loved one who is going through whatever you are experiencing. I hope you feel welcomed to ask questions and just share if needed.🫂

Hi all,
New to this and I'm wanting to connect with others. I was diagnosed with Parkinsons in2020 and would like to develop a kinship with others walking this path.
Emmy

Kari will be having her battery turned on Friday ? For group what is the best sleeping pillow, position etc? Any advice appreciated

Hello @vince195 and welcome to the Parkinson's support group on Mayo Connect, I see that you have been recently diagnosed with PD. A diagnosis of PD is not easy to think about. Have you begun treatment with medication and exercise yet?

I would encourage you to find an exercise routine that you enjoy and exercise on a regular basis. Exercise combined with medication tend to help the symptoms of PD.

Do you have any other troublesome symptoms?