Living with Parkinson's Disease - Meet others & come say hi

@johnjames That sounds like a good sermon! Thanks for the inspiration - The Good Samaritan in modern times!

Yes-your so right on- not sure why, so many-make it so hard and confusing to understand? it's like if they get to lone, for to long-they too make catch it or some thought like that. Most just avoid me or talk over me about something- I have no idea what their talking about.We have to pick each other up and support each other to keep going, as God says- Help your brother or Sister) with their burdens and help carry them. JJAMes

@johnjames Hi JJames: I did a little research for PD support groups in the Phoenix area and came across the website for the Barrow Neurological Institute (the Mohammed Ali Parkinson's Center). The website lists several support groups, many of which are afternoon/evening meetings, including locations in Mesa, Phoenix, Sun City, etc. Here is the website. https://www.barrowneuro.org/patients-families/find-a-support-group/
Keep in touch and let us know how you are doing. Best wishes for 2017!

Thanks for your kind reply @elizabethbryant. I wish you the best in 2017.

@knightkris Thanks for letting us know, we will continue to care about you. Keep in touch!

Thank you for your insight. This coming month I will be attending my first couselling session at the PD Society of BC Canada. From there and maybe before I will search for a support group in my area. I have attended grief couselling for 6 months, plus other couselling ( couldn't afford to continue) so I wait.

@johnjames Yes John, it could be me speaking your same words with my Dysplasia, I believe that their
lives have to go on. The isolation is bad for us. I wrote a dear friend this morning of your same thoughts
and everyone seems to run to you as they did this past April upon diagnosis and stay for a time and then
leave. This website is excellent but doesn't replace friends and family. I do know isolation is the worse
thing, there is a world of people just like us out there that are having the same feelings and those feelings
are very real.

Hi @johnjames. I'm assuming that "Desert Ridge" area is in Arizona? If you could provide a large city, that might be helpful for my research. Thanks!

@knightkris Thank you for sharing your story (and your mom's story) of loss with @johnjames and with the rest of us at Mayo Connect. Loss is a real part of disabling diseases. We not only lose our physical abilities and our strength but we can also lose the company of our friends and family. I suppose that is why I'm such a strong proponent of support groups. Support groups help us to adjust to a "new normal" and give us "living examples" of people who have walked the pathway that we are walking. I know it is very difficult for some people to make that step to attending a support group, some people are "private" but just attending, even if you don't share or say anything, provides a great place of solace and support. It also teaches us that we are not really alone nor do we have to be lonely. There are others who are willing to carry our burdens with us. Best wishes as you walk this journey of loss. I would encourage you to find a grief support group in your area. You are dealing with many losses right now and the loss of your mom is big one. Best wishes and keep in touch with us. We are "all ears."

Hello JohnJames

I do understand very much what you are going through. I took care of my mother for over a dozen years and through out that time, all of my friends stopped talking to me. My mother's family, the rest of them, including my sisters, stopped coming to see mom or just came once in a while. My answer has always been, buck up, it is your mother and to bad if you don't want to see her that way. Get a grip.

But during my mother's last years of life I was diagnosed with PD,then the next year I was diagnosed with Fibromyalgia, then this past year diabetes, This past January is when my mother passed away, So I am dealing with this loss as well. This compounds the situation further. . Plus everything else that was wrong with me before these diagnoses. Between my mother and my friends thinking that I could be making better use of my time, ( Taking care of my mother was the biggest gift I could of every received), car accidents and everything that has happened since, I don't have any friends left.

I know what it is like to be alone, I have experienced this allot in my life.,But being lonely, this is something different. This I can't get use to. I think it is everyone's loss that they can't deal with these issues. It should bring people closer, but most are afraid of things they can't understand. They are afraid of their own mortality. Again their loss.

John if you need to talk or write in this case, feel free to do so. I do understand what you are going through.

Kris