Living with Parkinson's Disease - Meet others & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Dec 8, 2016

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Jul 25, 2024

In reply to @anitaxblack339 "I have Parkinson’s Does anyone else have it?" + (show)

Hello @anitaxblack339 and welcome to the Parkinson's Support Group on Mayo Connect. I see that you have already been greeted by @gingerw and @colleenyoung. As Colleen mentioned, you will meet many others here who are dealing with PD.

As this is your first post, please share, if you will, how long ago you were diagnosed and what your most troublesome symptoms are. I'm also wondering if you ae taking any medications now.

Colleen Young, Connect Director | @colleenyoung | Jul 25, 2024

In reply to @anitaxblack339 "I have Parkinson’s Does anyone else have it?" + (show)

Welcome, @anitaxblack339. I moved your post to this discussion in the Parkinson's Disease support group.
- Living with Parkinson's Disease - Meet others & come say hi
https://connect.mayoclinic.org/discussion/living-with-parkinsons-disease-meet-others-come-say-hi/
Here you'll meet others living with Parkinson's or caring for someone with Parkinson's like @hopeful33250 @elimseoj @21amy @jennyjoy @laurievr @enahs and many others.

Anita, have you been diagnosed with PD? Or are you caring for someone who has PD?

Ginger, Volunteer Mentor | @gingerw | Jul 25, 2024

In reply to @anitaxblack339 "I have Parkinson’s Does anyone else have it?" + (show)

@anitaxblack339 Welcome to Mayo Clinic Connect! Here is a link to the PArkinson's Disease support group. By typing in "parkinsons" [without the quote marks] in the search bar, you will be able to choose "discussions" and get information from fellow members.
https://connect.mayoclinic.org/group/parkinsons-disease/
I hope this helps you.
Ginger

anitaxblack339 | @anitaxblack339 | Jul 25, 2024

I have Parkinson’s
Does anyone else have it?

dkahlona | @dkahlona | May 1, 2023

Looking for normal again. ☹️

beachglass | @beachglass | May 1, 2023

Hi, I was diagnosed in 2022. My main concern is the nonmotor symptoms. I can’t seem to get much help with those. Everyday is hard with nausea, abdominal pain,choking. If anyone has any suggestions, I’d be grateful!

melaniego | @melaniego | Apr 30, 2023

In reply to @hopeful33250 "@melaniego Perhaps your local hospital, or your neurologist's office might have information on PD support groups..." + (show)

My tremors are my main symptom, and I refuse to take medications because I don't want to become dependent on drugs. Thanks for asking.

eliz722 | @eliz722 | Apr 30, 2023

Hi, I am 68, and I was diagnosed w/Parkinson's 3 yrs ago, after retirement. I recently joined this support group. I have been to the Michael J. Fox Foundation & Parkinson's Foundation websites. I have been told I am in the early stages of the disease. I am dealing w/dyskinesia alternating w/ dystonia. I take medicines for them. I would like to use this support group for getting some answers to some of my questions re: Parkinson's I am seeing a Movement Disorder neurologist, but would like to find a different one. Does anyone have any recommendations for such a doctor in Michigan who is taking new patients? Glad to be part of this group> Thanks.

Teresa, Volunteer Mentor | @hopeful33250 | Apr 30, 2023

In reply to @melaniego "I'm just so exhaussted from all the searching now ... I have spent my year since..." + (show)

@melaniego

Perhaps your local hospital, or your neurologist's office might have information on PD support groups in your area. I hope you find a group that can help you adjust to this health situation.

Is there any particular symptom that is most bothersome right now?

melaniego | @melaniego | Apr 29, 2023

In reply to @hopeful33250 "Hello @melaniego You might check the websites for both the Davis Phinney Foundation as well as..." + (show)

I'm just so exhaussted from all the searching now ... I have spent my year since being diagnosed last May, staring at a screen for a minimum of 10 hours per day. Overwhelmed and burned out.