Living with Parkinson's Disease - Meet others & come say hi

@johnjames Thanks so much for sharing with us the difficult place that you find yourself in right now. I appreciate your honesty. I'm sure that you are hurting right now. Because Parksinson's is a brain disorder, there is an emotional component to having PD.When you say, that it's not your fault, you are right, it is most likely a brain chemistry problem. I would encourage you to talk with a doctor about how you are feeling. There are some good meds that help deal with the brain chemistry problem that Parkinson's causes.. There are a lot of different meds available, if one does not work you can always try another. I am hopeful that once the meds help the brain chemistry problem, you can then begin to get out with others. This might include a support group, an exercise class (water exercise is very good) and you will begin to feel better. Keep us posted on how you are doing. At one time those of us with PD have been where you are and we know the road out of isolation and depression is not an easy road to travel, but once you begin the journey you will be so glad that you did. Best wishes, my friend!

I have been diagnosed with Parkinson's 3-4 years now- really been affected by it the last 2 years, what's hard to deal with is-most al of my friends and co-workers has stopped coming around or even calling. I would say even my family at times think I'm too needy - about friendships and just being around people- which is also very hurtful to hear from those who ( I know -love me) but at times that doesn't come out maybe the way they mean it-or if I'm depressed from the parkinson's. So I have been isolating myself for the last year, not really seeing or talking to anyone and no one seems to pick up on the being alone -issues and think and tell me it's my fault, which I know it's not- God know we all need people and real friends- just to be friends. JJAMES

<br><br><br><br><br>Got it, thanks.<br><br>Steve  

Indeed @ggopher. It's the same gang of people, with Teresa at the helm. However, formerly the Parkinson's discussions were mixed in with the Brain & Nervous System group and topics of all things related to neurology. This group or section of the community is dedicated to topics specifically related to Parkinson's. If you click this link https://connect.mayoclinic.org/groups, you can see all the groups of Connect.

Make sense?

<br><br><br><br><br>I thought we had a group with Theresa.<br><br>Steve  

@knightkris So glad to be of help. Yes there is physical therapy for PD and it is great. It teaches you how to walk better and have better balance. Many hospitals offer balance classes as well. You can also look for Tai-Chi classes in your community, Tai-Chi is also good for balance. If you go the the National Parkinson's website you can probably find support groups in your area. Your neurologist's office also might be able to refer you to a support group! We wish you well - keep in touch and let us know how you are doing. Mayo Connect is a caring community!

Thank you for your reply.

I have a mild tremor in my right hand only I am taking meds. Levo Carb. It is helping out. It is a you stated, frustrating. The one thing that I did do at the start was to get a second opinion. didn't believe it myself. I never thought about Physical therapy for PD. No one suggested this to me. I will have to have the doctor refer me to this. I will have to look for a support group. This has been suggested to me, but I never did anything about it. Now is the time to do this.

I haven't reached out to anyone. As I am strong and can do everything myself NOT.

Thank you for getting back to me so quickly.

Kris

@trouble4343 Thanks for posting about your personal experience with tremors. Perhaps this will help @macbeth.

@trouble4343 Thanks for your encouraging words. That is great that you started your own group. We are stronger together than when we are alone!

Finding a support group is a great idea - and if you can't find one, be a part of starting one, You don't need a lot of people. Where I live, there are 6 of us who have PD and we got together and started one. We meet monthly and have outside speakers, or be our own speakers. We look up a topic and tell some of the things we found out about it - like PD and exercise, PD and dementia, PD and legal issues, PD and depression . . . and it's been interesting. There is a national support group for Essential Tremor, too.