Living with Parkinson's Disease - Meet others & come say hi
Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.
Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Parkinson's Disease Support Group.
Hello @beverlyann
While I don't have answers to all your questions, why not give Mayo Clinic a call and ask them these questions. I'm sure they would be pleased to talk with you. Here is the information about getting an appointment at one of their facilities: https://www.mayoclinic.org/patient-visitor-guide/arizona/appointments
If you would like to find out more about insurance at Mayo Clinic, please call Patient Account Services at 800-660-4582.
This webpage http://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance provides information on insurance at Mayo Clinic which includes:
Insurance types; Approval from insurers; Guidance for denied claims; International patients; Uninsured (self-pay) or underinsured patients
Insurance FAQs; Glossary of billing and insurance terms; Contact numbers and online form
Keep in touch and let us know how you are doing, Beverly.
Teresa
I’m just curious how this works when someone travel 12 hours to be seen by Mayo Clinic. Does one see a team of Doctors and then determine what all test need to be ordered. And do the test require prior authorization?
Hello @beverlyann
That is a good question. Yes, I have heard that tremors can come and go. Here is a link to an article from WebMD about tremors, https://www.webmd.com/parkinsons-disease/tc/parkinsons-disease-symptoms#1. If you read the article it will mention that when a person sleeps and they are relaxed that the tremor will often go away. I suppose stress and fatigue may be a factor. I know that when I am tired my symptoms are worse (even though tremor is not a big problem for me).
Teresa
Have you ever heard of a person with Parkinson’s having hand tremors that come and go, like can go 3-5 days with no tremors but then one day have them all day but can lay down in bed and they stop.
Thank you so much Teresa!!
That is great to know. Have been wanting my dad to take Mom to Mayo in AZ but didn’t know how that worked when live so far away. It is about a 10-11 hour drive for my parents. I think of the tv show “House” when I think of Mayo. I just think it would be so worth going but is very hard on my mom with the drive. She has had every test under the sun to always come back normal. Good to know they work with local Providers though. This group has really helped which I share it all with my sisters.
@cindylb
Here is some information about billing and insurances at Mayo Clinic as well as appointment information for the Arizona facility.
https://www.mayoclinic.org/patient-visitor-guide/arizona/appointments
If you would like to find out more about insurance at Mayo Clinic, please call
Patient Account Services at 800-660-4582.
This webpage http://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance provides information on insurance at Mayo Clinic which includes:
Insurance types
Approval from insurers
Guidance for denied claims
International patients
Uninsured (self-pay) or underinsured patients
Insurance FAQs
Glossary of billing and insurance terms
Contact numbers and online form
Let us know if we can be of further assistance to you.
Teresa
Thank you! We will consider that. We're still testing and if nothing comes of that we may have to travel or work outside our HMO to get more answers. Unfortunately, finances are a major concern as well.
@cindylb
Are you aware that there is a Mayo Clinic in Arizona? Perhaps that would be more convenient for you. Often, once you have a consultation at Mayo, they can work with your doctor in your area and you wouldn't have to travel all the time.
Teresa
Hello! No we live in Colorado and don't have access to the Mayo Clinic. I discovered this support service online and love the sharing and information.