Living with Parkinson's Disease - Meet others & come say hi

Thank you very much!! I really appreciate you!

Hello @beverlyann

Here is a link to a video about sleep disorders and Parkinson's. This is from a symposium on PD that was sponsored by University of Michigan, https://www.youtube.com/watch?v=6s4A6HFkjGo&feature=youtu.be

I would like to hear from you again and know how you are doing. Will you post again?

Teresa

My neurologist put me on 1/2 escalating to 1  0.6 mg Clonazepam at bedtime and another 12 hours later I guess to keep the blood level reasonably constant and it helps my moderate anxiety. Been a couple weeks and no particular difference though I am still on

the half tab. Hard to move forward after the NY Times article the other day. 

I have also been through the sleep test and have a mouthpiece, no CPAP required.  Later retest showed I was fine with the mouthpiece and that is not the case.

Steve  

I have a question about PD. As I have started reading this great book on PD it talks about all the other things which go along with PD. My mom suffers from all them. The nausea and doesn’t want to eat, depression, anxiety , frequent uti, but insomnia seems to be the worst. The book talks about the key to treating insomnia is adjusting the levodopa cardopa. I am just curious how anyone else is treated for the insomnia?

@pattywelch Hello Patty and welcome to the Parkinson's discussion at Connect. We are glad that you have joined us.

While, I'm not a medical professional, I have had a PD diagnosis and I know what you mean by restlessness. The term for this is "inner tremor." Here is some information about it, http://parkinsonhope.org/ask-doctor/tremors-inside-his-body/.

I have been part of many PD support groups and while the outer tremors are most common, I find that occasionally someone else will talk of the inner tremor or that feeling of restlessness that you speak of.

Regarding the stiffness, most of us in this discussion group feel the exercise is the only way to combat this. There are many good exercise programs for PD. I am part of an PD Dance Class (all done seated), also Tai-Chi is highly recommended for range of motion, some people like yoga (not a personal favorite of mine). Connecting with a good physical therapist who has experience with PD patients is a good way to get started. Here is a good article about exercise and Parkinson's.
http://www.parkinson.org/Understanding-Parkinsons/Treatment/Exercise
Here are some Youtube videos and may help you get started,

I would enjoy getting to know you. Please share with us as you are comfortable doing so, a bit more about your Parkinson's treatment and how you are adjusting to it.

I look forward to hearing from you again.

Hi everyone,
We just launched a new feature on Connect called Member Spotlights (https://connect.mayoclinic.org/newsfeed-post/connect-member-spotlights-shining-a-light-on-community-members/).

I think the members of the Parkinson's Disease group will be particularly interested to read today's member spotlight about Teresa, someone each of you have CONNECTed with.

– Meet @hopeful33250: Striving so No One Feels Alone with Personal Health Challenges https://connect.mayoclinic.org/newsfeed-post/meet-hopeful33250-striving-so-no-one-ever-feels-alone-in-their-personal-health-challenges/

Hi my name is Patty. i am 69yrs young. i was diagnosed with Parkinson's Disease 3 yrs ago. The tremor isn't my issue the stiffness and restless ness is very much an issue for me,

I just got my book in today, can’t wait to read it!!Thanks for the suggestion.

Thank you Teresa for posting an excellent article.

Hello All: @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @aperob @caryp43 @burgle @macbeth @knightkris @pjsammy @techi @bobbieingeorgia @gulfer @mojo1965 @brittalisse @ruby7dnj @brittalisse @moso @retairforceman @elizabethbryant @meggotty @ruby7dnj @lsdemspey @oronogo @melmaury @mariemarie

I just received this email from the National Parkinson's Foundation with information about non-motor symptoms of PD and I thought that you would all find it interesting.

Here is the link to the article, http://www.parkinson.org/Understanding-Parkinsons/Symptoms/Non-Movement-Symptoms. Most people would not think of these symptoms as being related to PD and they are certainly not visible as tremors are, but very real to those of us who deal with them.

I'm sure we can all relate to many of them.

Teresa