Living with Parkinson's Disease - Meet others & come say hi

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Well, I can get the massages, but No Cannabis. NOT in Texas. People tell me their friends get it, but I cannot seen to get lucky. Plus a 78 year old women going to prison in Texas is not a pretty thing. For years I have had RA and for years I used Cannabis. Suddenly we moved to TEXAS. There is no withdrawal as it is not habit forming. I am ok there. I am just sad and disgusted by the lawmakers in Texas.

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Hi,
I too am new here. I was diagnosed 4 years ago, have ADHD,Tourettes, restless leg, and Parkinson's, as well as terrible stenosis with pain in legs and arms.
THE ONLY THING THAT HELPS PARKINSON'S IS EXERCISE. And Cannabis, which helps, pain, mood and focus.
I've tried cycling for Parkinson's, boxing, and aquatic cardio program which for me is best. Massages regularly are a great help as well. but get yourself out and exercise!!!!

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@trouble4343. Yes, that is what the doctor said. I usually have so MUCH to go through with her, that concentrating on one thing is difficult. I had not seen her since Oct and I had three weeks in the hospital recently. So, she put aside a great deal of time to share with me and me with her. I am very thankful it is not PD. BUT, what is the reason this happens?

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My Doctor would call what you have "Essential Tremor". I have it. My hands only shake with I want them to work, like eating or writing. My Doctor said if I was just sitting still and I had a tremor, that was PD.

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@oregongirl

Where do I get HEMP?

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A nutrition store sells hemp.

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I have RA. But with RA, there are other issues that pop up. My teeth need replacement. My teeth were PERFECT prior to this year. It may be some other reason than RA. Then being tired all the time. BUT, not tremors on my hands. Talking and maybe a word and it does not come out right. I am concerned the doctors don't know what to treat The drugs for RA are extremely hard on the system. The tremors are not constant. My doctor gave it a name. If I am picking up a cup, or trying to eat with a fork..The tremors will appear. THEN to add to all of the above, I passed out and fell. The fall was a bad one. I hit my head hard and got a black eye and other cuts. They did so many many tests and came back with SUGGESTIONS of my illness. There was NO brain bleed. Everything looked Great. Thank God. I noticed the tremors prior to my fall and for a few years. What else causes Tremors? I stopped the hard drugs given me by the RA doctor. I just cannot stand the damage to my body. I could not eat and was vomiting the entire time on the RA meds.

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@lisalucier

Hi, @mariemarie -- I have moved your post to this discussion with many members who have talked about Parkinson's disease to get your question about whether any of them take hemp for their Parkinson's in front of a good cross section of members. Hoping some of them may have experiences or personal research into taking hemp to share.

I'm inviting @robertlclark @tree2fly @gailb @ou90n93 @doxyjune to join the conversation, as they have all talked about using hemp for a variety of medical conditions and may have some insights for you.

Did the employee in the nutrition store mention for what symptoms people with Parkinson's take hemp?

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@mariemarie Interesting since sleep is a major issue for PD. Teresa

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@lisalucier

Hi, @mariemarie -- I have moved your post to this discussion with many members who have talked about Parkinson's disease to get your question about whether any of them take hemp for their Parkinson's in front of a good cross section of members. Hoping some of them may have experiences or personal research into taking hemp to share.

I'm inviting @robertlclark @tree2fly @gailb @ou90n93 @doxyjune to join the conversation, as they have all talked about using hemp for a variety of medical conditions and may have some insights for you.

Did the employee in the nutrition store mention for what symptoms people with Parkinson's take hemp?

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Lisa, the employee said some PD folks take hemp to sleep.

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Hi, @mariemarie -- I have moved your post to this discussion with many members who have talked about Parkinson's disease to get your question about whether any of them take hemp for their Parkinson's in front of a good cross section of members. Hoping some of them may have experiences or personal research into taking hemp to share.

I'm inviting @robertlclark @tree2fly @gailb @ou90n93 @doxyjune to join the conversation, as they have all talked about using hemp for a variety of medical conditions and may have some insights for you.

Did the employee in the nutrition store mention for what symptoms people with Parkinson's take hemp?

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