Living with Parkinson's Disease - Meet others & come say hi

My husband was diagnosed about 5 years ago. He has many tremors for a few years before he went to see a neurologist. With very basic treatment here, we arranged to have an evaluation at the Mayo Clinic in Scottsdale, Az. while already down there during the winter. The evaluation there was very thorough.

It is so good to hear from you, @ramblyn.

I am sorry to hear of your husband's PD diagnosis, but so pleased that he has exercise classes that he can be a part of. Exercise really does make a difference in delaying disability associated PD.

I look forward to hearing more about how your husband is doing. How long ago was he diagnosed? What were his main symptoms that led to his diagnosis?

My husband has Parkinson's and we live in The Dalles, Oregon. We are very fortunate to have a couple whom run a twice a week exercise program here. This program has been going on for about three months. Participants are in various stages of this disease. With the exercises, everyone has made so much positive progress.

@knightkris So glad to be of help. Yes there is physical therapy for PD and it is great. It teaches you how to walk better and have better balance. Many hospitals offer balance classes as well. You can also look for Tai-Chi classes in your community, Tai-Chi is also good for balance. If you go the the National Parkinson's website you can probably find support groups in your area. Your neurologist's office also might be able to refer you to a support group! We wish you well - keep in touch and let us know how you are doing. Mayo Connect is a caring community!

I am joining this group because my 74 year old mother has just been diagnosed with Parkinsons this year. My mom has my dad to help her daily and I am the only daughter that lives within close enough distance to assist on a regular basis. We are being seen by neurologist at Michigan State University and she is on Carbidopa and Carbidopa Levidopa. My biggest question has to do with how long does Parkinsons exist in ones body before the symptoms become detectable; my mom has had undiagnosed and unexplained nausea for approximately 10-11 years and no one seems to be able to diagnose. We have undergone every digestive test and scope / scan possible with no diagnosis including biopsies with negative results on all fronts. Does anyone else experience this with Parkinsons or not at all? Are there other drugs available for treatment of Parkinsons that do not cause severe nausea - she has tried taking with sweets, apple juice and plenty of water and nothing seems to help what is already a very tentative stomach/digestive situation - leaving her in bed for sometimes 4 out of 7 days a week....... looking for any straw

Normal B1 blood level is to be expected. The therapy involves increasing the thiamine hcl level (Vitacost thiamine hcl in 500mg easy swallow capsules).
My personal experience - The positives: no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...
parkinson's high dose thiamine hcl
https://www.facebook.com/groups/232260083958797/about/
https://highdosethiamine.org/therapy-2/
Tremor is not easily impacted by thiamine hcl. It takes time with thiamine hcl and carbidopa/levodopa.

Hi @hopeful33250 @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle and @macbeth:

I'd like to invite you to the new group on Connect dedicated to discussions about Parkinson's disease. It's a space where we can ask questions, share tips and learn about living with Parkinson's from each other. Whether you live with Parkinson's or care for someone with Parkinson's, please join us. Pull up a chair and tell us a bit about yourself.

Yes, it comes as a shock to PD patients to find that they must be their own advocates. Not all of us are temperamentally suited to stare down the doctor as he's about to bolt for his next patient to ask about recommendations for exercise, or PT, or speech therapy. But you should. Britain's National Health Service by comparison encourages an immediate team approach to PD care. Collegiality best benefits the patient. (cf. NICE Guidelines)

Thank you for your reply.

I have a mild tremor in my right hand only I am taking meds. Levo Carb. It is helping out. It is a you stated, frustrating. The one thing that I did do at the start was to get a second opinion. didn't believe it myself. I never thought about Physical therapy for PD. No one suggested this to me. I will have to have the doctor refer me to this. I will have to look for a support group. This has been suggested to me, but I never did anything about it. Now is the time to do this.

I haven't reached out to anyone. As I am strong and can do everything myself NOT.

Thank you for getting back to me so quickly.

Kris