Living with Parkinson's Disease - Meet others & come say hi

Hello @royprop,

From your post of yesterday, it sounds as if you are currently taking carbidopa-levodopa along with the thiamine regime. Is that correct?

1. Ignorance.
2. I am on carbidopa levodopa.
3. No.
4. Solved constipation by week one. Generally takes four months for gross improvement.

1. Ignorance.
2. I am on carbidopa levodopa.
3. No.
4. Solved constipation by week one. Generally takes four months for gross improvement.

Thiamine hcl or hci an over the counter vitamin.
Four grams daily, divided into 2 doses

Thank you so much for your reply. Is the this thiamine hc1 a prescription and how much did you need?

Prior to high dose thiamine hcl I had trouble covering in bed.

sadiecora. My husband has parkinson’s and I posted an introduction and question a few weeks ago. With all the messages on line, is there anyway people are notified and have their email pop up when there is a question or comment? My additional question is anyone having difficulty covering themselves at night? My husband is up a lot at night, too cold, too warm and too uncomfortable. When he gets back in bed and tries to cover himself, he can’t do it and gets cold. Would appreciate any special ggestions.

A number of questions...
1) If the thiamine regiment works, why don’t other neurologists recommend it?
2) Have you ever been on any PD meds?
3) Have you ever had any pain from your PD?
4) How long did it take for the thiamine regiment to work?
Thanks for taking the time to answer my questions.
Susan