Living with Parkinson's Disease - Meet others & come say hi

hi this is Dan or jdb I was recently diagnosed with Parkinson's disease and I'm just starting to deal with it I have questions regarding medication exercises and what to anticipate it seems to be a good idea to become a part of this discussion group and I'm totally new to this so I could use some input as to how to get going. I did post something last night and I don't even know how to find it but I'm sure in time I'll get this all figured out glad you have this forum and I look forward to being a member of it thanks.

@sadiecora Restlessness at night is very common for people with PD. I understand the hot/cold phenomena very well! Here is a video you might find interesting about PD and sleep problems,

Hello All:

For many Parkinson's patients, we have experienced a lot of symptoms that are PD related but don't involve tremors, gait, etc. which are more typical of PD symptoms. As I subscribe to Davis Phinney videos, I thought you might find this video interesting as it deals with non-motor symptoms of PD which includes sleep problems, problems with the digestive tract, etc. The title of the video is The Parkinson's You Don't See: Cognitive and Non-motor Symptoms.

Here is the link, https://www.youtube.com/watch?v=S2LP_5PC9LU

@namaste88 Hello Lin,

I just read your profile and see that you have been recently diagnosed with Parkinson's (PD). I'm glad that you posted here. I see from your profile that sleep problems are most troubling right now. In addition to the link that Lisa, @lisalucier, provided I would also like to direct you to a Youtube video about sleep problems as they relate to PD patient. Have you tried any meds to help you sleep? Some of us have been helped by low doses of antidepressants, like Trazodone and Cymbalta. Also, exercise is an important factor in dealing well with PD. It helps with movement and maintaining balance as well as helping you sleep. What type of exercise program are you involved in, @namaste88?

Here is the link to the video that was produced by the University of Michigan at one of their Parkinson's seminars that I attended. I hope you will find the information helpful.
https://www.youtube.com/watch?time_continue=222&v=6s4A6HFkjGo

Hi Lin (@namaste88), I see that you summarized some of your story in your profile https://connect.mayoclinic.org/member/181600aa003b5fe59e52315e9c3eafd834c74440fd/ We look forward to getting to know you better and learning more about you.

You mention that one of your biggest challenges at the moment is not sleeping well. You may be interested in adding your thoughts to this discussion:
- Parkinson's and Sleep Problems https://connect.mayoclinic.org/discussion/parkinsons-and-vivid-dreams/

I can imagine that it is frustrating not to be able to make plans as you're never sure how you might be feeling. Have you found that family and friends are understanding if you have to cancel plans? Do you have things you like to do when you're feeling well that don't require planning - like a friend who can drop everything to come over for a cup of tea?

I started my story yesterday, with a "more later" ending. I promise to finish it soon.

Thanks, Lin

Hi, @namaste88 - I'd like to add my welcome to @hopeful33250's.

If you click VIEW & REPLY in this email notification, you can scroll back through the past and recent posts in this discussion on living with Parkinson's.

Will you share your story with Parkinson's: when you were diagnosed, what symptoms may have led you to seek a doctor, any challenges you might be encountering now?

Yes, @namaste88. Post it right here.

Thank you. Do I post my story here?

Hello @namaste88 and welcome to Connect's Parkinson's discussion group.

This is the right place to post your story. Have you been recently diagnosed with Parkinson's? I hope you are doing well.
Your post will be read by all of the participants that have posted in this discussion group.