Living with Parkinson's Disease - Meet others & come say hi

@edieteresa,

Here is a link to YouTube videos where you can find PD exercises. Exercise is an important part of PD treatment. https://www.youtube.com/results?search_query=exercises+for+PD

There is a lot you can learn about PD from the Davis Phinney Foundation. There are informative webinars. Here is a link to the website: https://davisphinneyfoundation.org/. If you click on the "Resources" tab, you will find information on medications, webinars, etc.

Hello @edieteresa, and welcome to the Parkinson's support group on Mayo Connect. It sounds as if you have had a difficult time getting a diagnosis. Many of us with Parkinson's waited for several years before we found the correct diagnosis. How are you feeling now?

Have you begun any treatment yet? I'm thinking of medication or an exercise program? If so, have the treatments been helpful?

I look forward to hearing from you again. Will you post updates as it is convenient?

Hi Edie. Here is a list of online PD support groups including the Parkinson's Buddy Network. Best of luck to you.
https://www.michaeljfox.org/news/support-groups#

I am now living in a small rural town that is 3 hours away from Houston so nothing is available unless I drive at least 3chours away

I’m so sorry you don’t have anyone to help you with this, Edie. Since my husband was diagnosed we have discovered local Parkinsons Associations that offer boxing, dancing, etc which all help with balance and have helped him meet others going through the same things. Try a general internet search and ask your neurologist for suggestions. It’s a scary diagnosis but talking to others going through it helps.

Hello, I am Edie. I was diagnosed with Parkinsons on July 26 of this year after spending thousands of dollars with doctors trying to find out why I was blacking out with no warning. I had one syncope where I fell into the bathtub breaking my arm and thumb on opposite arms. All of the mris, stress and cardio test came back clear. I have no one for a support system.

My husband went today and had so much fun with his therapist with the boxing!

Hello @skyblue67

I see that you are enquiring about the boxing for PD patients. Here is a link to the program where you can search for classes nearby. https://rocksteadyboxing.org/

I have never tried it, but I've known of PD patients who have found it helpful. Exercise is important for Parkinson's and finding an exercise program that you enjoy is important.

Hello @skyblue67, and welcome to the PD support group on Mayo Connect. I see that @sillyblone and @susanarch have already posted with you.

Please share, as you are comfortable doing so, a little about your Parkinson's experience. Are you the patient with Parkinson's or are you a caregiver? What is the most difficult problem for you currently?

He goes out through the garage. I hear the garage door open and when he turns off security it makes a loud noise.