1. < Parkinson's Disease
Profile picture for Colleen Young, Connect Director
Moderator

Living with Parkinson's Disease - Meet others & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Dec 8, 2016

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Profile picture for Teresa, Volunteer Mentor
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Sep 6 4:57pm
In reply to @emmys "Hi all, New to this and I'm wanting to connect with others. I was diagnosed with..." + (show)
Profile picture for emmys @emmys

Hi all,
New to this and I'm wanting to connect with others. I was diagnosed with Parkinsons in2020 and would like to develop a kinship with others walking this path.
Emmy

Jump to this post

Hello @emmys,

I want to join @sillyblone in welcoming you to the PD support group on Mayo Connect. It is helpful to meet others who are on this PD journey. I would enjoy getting to know you. Share as you are comfortable doing so, about your diagnosis.

For example, what were your first symptoms of PD? What treatments have you had (such as medication, physical therapy, etc.)?

REPLY
Profile picture for sillyblone
sillyblone | @sillyblone | Sep 6 2:48pm
In reply to @emmys "Hi all, New to this and I'm wanting to connect with others. I was diagnosed with..." + (show)
Profile picture for emmys @emmys

Hi all,
New to this and I'm wanting to connect with others. I was diagnosed with Parkinsons in2020 and would like to develop a kinship with others walking this path.
Emmy

Jump to this post

Hello,
Welcome to the group. I am a caregiver to my spouse who has Parkinsons. Everyone is here for the same reason. We all either have Parkinsons or we have a loved one who is going through whatever you are experiencing. I hope you feel welcomed to ask questions and just share if needed.🫂

REPLY
Profile picture for emmys
emmys | @emmys | Sep 6 1:14pm

Hi all,
New to this and I'm wanting to connect with others. I was diagnosed with Parkinsons in2020 and would like to develop a kinship with others walking this path.
Emmy

REPLY
2 replies
Profile picture for coachw
coachw | @coachwock | Aug 25 10:28am

Kari will be having her battery turned on Friday ? For group what is the best sleeping pillow, position etc? Any advice appreciated

REPLY
Profile picture for Teresa, Volunteer Mentor
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 23 7:19pm
In reply to @vince195 "wondering how the hell; i got this" + (show)
Profile picture for vince195 @vince195

wondering how the hell; i got this

Jump to this post

Hello @vince195 and welcome to the Parkinson's support group on Mayo Connect, I see that you have been recently diagnosed with PD. A diagnosis of PD is not easy to think about. Have you begun treatment with medication and exercise yet?

I would encourage you to find an exercise routine that you enjoy and exercise on a regular basis. Exercise combined with medication tend to help the symptoms of PD.

Do you have any other troublesome symptoms?

REPLY
Profile picture for vince195
vince195 | @vince195 | Aug 23 5:59pm
In reply to @vince195 "wah having sore legs and arm tremors" + (show)
Profile picture for vince195 @vince195

wah having sore legs and arm tremors

Jump to this post

wondering how the hell; i got this

REPLY
1 reply
Profile picture for vince195
vince195 | @vince195 | Aug 23 5:57pm
In reply to @vince195 "71 male just diagnosed last month" + (show)
Profile picture for vince195 @vince195

71 male just diagnosed last month

Jump to this post

wah having sore legs and arm tremors

REPLY
1 reply
Profile picture for vince195
vince195 | @vince195 | Aug 23 5:55pm
In reply to @colleenyoung "Hi @hopeful33250 @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle and @macbeth: I'd like to..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @hopeful33250 @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle and @macbeth:

I'd like to invite you to the new group on Connect dedicated to discussions about Parkinson's disease. It's a space where we can ask questions, share tips and learn about living with Parkinson's from each other. Whether you live with Parkinson's or care for someone with Parkinson's, please join us. Pull up a chair and tell us a bit about yourself.

Jump to this post

71 male just diagnosed last month

REPLY
1 reply
Profile picture for Teresa, Volunteer Mentor
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 23 12:07am
In reply to @coachwock "I think we’re in the right post just seems like we have to really look for..." + (show)
Profile picture for coachw @coachwock

I think we’re in the right post just seems like we have to really look for the replies on our post at times

Jump to this post

@coachwock
You have posted in several different discussion groups. If you look at your profile, https://connect.mayoclinic.org/member/00-d84867696dbfc336503373/activity/comments/, you will see the discussion groups where you have posted. You can then look and see what replies you have received. Give that a try and see if it helps you find your replies.

REPLY
Profile picture for coachw
coachw | @coachwock | Aug 22 8:33pm

I think we’re in the right post just seems like we have to really look for the replies on our post at times

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.